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EveryLife Survey – What’s the cost of rare disease to YOU? 
FDA Asked to Approve Casimersen, Exon 45 Skipping DMD Therapy 
PPMD Signs Onto Telehealth Letter to Congress 
NS Pharma Announces Launch of Patient Support Hub 
PPMD’s 2020 Virtual Annual Conference Agenda – Now Available! 
NS Pharma Announces Launch of Patient Support Hub 
Don’t Feel Bad About Calling Me ‘Inspiring’ 
Duchenne UK grants £500,000 to overcome immunity challenges in gene therapy 
Sarepta signs agreement with Hansa Biopharma for imlifidase 
Embrace This Moment – Part 2 
Coronavirus Relief Fund Created to Help DMD Patients, Families 
Sarepta Therapeutics Signs Agreement with Hansa Biopharma for Imlifidase 
Meeting report: Improving access to the Standards of Care: roundtable discussion hosted by the Mayor of Greater Manchester - Andy Burnham, Joining Jack & Duchenne UK 
CHMP Recommends Translarna Label Update That Enables Treating DMD Patients Unable to Walk 
Applications Open for PPMD and Duchenne UK $1 Million Joint Research Grant Call for Gene Therapy 
Translarna: Update for Non-Ambulatory Patients with DMD 
PTC Therapeutics Announces CHMP Recommendation of Translarna™ (ataluren) Label Update for Non-Ambulatory Patients with Duchenne Muscular Dystrophy 
Sarepta is seeking the approval of casimersen for DMD patients 
Sarepta Therapeutics Completes Submission of New Drug Application Seeking Approval of Casimersen (SRP-4045) for Patients with Duchenne Muscular Dystrophy Amenable to Skipping Exon 45 
Duchenne Dash AT HOME raises £440,000! 
Looking Backward but Living Life Forward With MD 
Duchenne UK Webinar: DMD Hub and Clinical Trial Update 
Positive Safety and Efficacy Data from Micro-Dystrophin Gene Therapy