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Honoring Those Who Went Before Us 
Sharing Our Personal Stories With Lawmakers Is a Transformative Process 
Supporter takes on 300,000 step challenge for The Haemophilia Society 
Fitusiran update following EAHAD 2021 Congress 
Low Risk of Developing Inhibitors Found for Nuwiq Patients 
FDA Partially Rescinds Added Indications for Two FIX Products 
Sanofi Revises Fitusiran Dosing Regimen to Mitigate Risk of Vascular Thrombosis 
Why I Don’t Hate My Dad for Giving Me Hemophilia 
Rare Disease Day at NIH, Set for March 1, Growing Year by Year 
Octapharma Announces Final Results of Nuwiq® Study 
Spark Announces Preliminary Data from Investigational Gene Therapy Trial 
Third National Patient Satisfaction Survey Launching Soon! 
EHC publishes update on the nasal desmopressin spray recall 
Take part in survey about your experiences of the COVID-19 vaccine 
New guidelines for diagnosis and management of von Willebrand Disease published