A supportive community for those eating a gluten-free diet. This diet is required of those with Celiac Disease, Dermatitis herpetiformis, Eosinophilic esophagitis, Leaky Gut Syndrome, Hashimoto's thyroiditis, gluten ataxia, and general Gluten Sensitivity.
I went gluten free back in March and felt great, I kept up til a couple weeks ago because I decided I should get tested for celiac again (had a test a year prior because almonds made me sick, but I was low carb at the time so I didn’t know if the test result was accurate).
So I contacted my doc and was to go back on gluten for 6 weeks. First couple of days were ok but by day 4 my neck lymph nodes were swollen and tender and my body aches came back and I was just miserable. So I immediately went off the gluten because I was scared of the neck swelling, it’s been five days since then and my neck still feels uncomfortable (am able to breathe and swallow just fine, but it feels like a tightness or constriction). At this time I also discovered I don’t carry either of the two major celiac genes. So I did some research and found Hashimoto’s matched some of my symptoms and asked to be tested. Also tested for celiac anyway at this point.
Those tests came back normal, no Celiac (though I wasn’t on gluten for the full 6 weeks, but again I don’t have the genes anyway) and no Hashi’s (they did both thyroid antibody tests).
I’m at a loss here. On gluten, I get body aches that range from barely there to really painful, acid reflux, swollen lymph nodes... Any ideas where to look next? My doc doesn’t seem concerned. Is this all this just a sensitivity? I’m intolerant to some nuts and that manifests so differently - stomach cramps, vomiting, diarrhea... I thought I was on to something with hashi’s since I’ve been trying to lose weight and I’ve been having trouble, I get sick easily and take a long time to recover, and I’m tired all the time.
Where could my fiancé and I honeymoon that has a great deal of access to delicious gluten free options? We were thinking about Hawaii, Iceland, Oregon, or Maine. Do any of you have any experiences or recommendations for a great gluten-free friendly honeymoon destination?
So, my wife picked up some GF croissants from Schar recently. When we went to prepare them, I noticed the back of the label said "contains wheat*", even tho it says Gluten Free right on it. I did some research and it turns out Europe has some new method of removing gluten from Wheat flour and using wheat starch in certain products to make more fluffier and flaky products.
So, I went back to a normal varied diet, including gluten. I just got back from visiting family in Hawaii, and local foods have a lot of soy sauce and breading. The stomach pain really only returns with ingesting eggs, but other symptims persist, such as racing heart, brain fog, and fatigue, and reflux.
I've been to the er for the heart symptoms and they cleared me although I was supposed to follow up with a doctor....which I did. However, both my gastro and gynecologist are unconcerned because my labs are all normal, and my bp and heart rate are always normal in the doctors office.
I'm just looking for anecdotes of glutening that DO NOT include stomach pain.