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I recently applied for disability. I've been on dialysis since Oct 2015. I was laid off from my job in June 2018.
I've been low on money and unlucky in finding work. My social worker suggested I apply for disability as I qualify.
Well today the disability office called to say I was gonna be denied because "I've been disabled less than 12 months".
When I originally applied I put my dialysis start date as my disabled since date. Some lady from the office called a couple weeks ago to go over some things and she suggested I change that date to when I was laid off. I think this is the main issue.
I also stated I was still looking for desk work, but that shouldn't effect my claim.
Basically I feel I was railroaded in withdrawing my claim as the lady who called today said it was going to be denied.
This all seems not right... anyone have any advice? Should it go from the start of my dialysis or from the last day I worked? Does looking for work effect anything? I know it will/could when/if I find work, but right now that shouldn't matter.
Any help would be awesome as I'm almost totally broke and really need this or a job to come through soon.
It's my fault. When I got put on the list at Vanderbilt, they said I needed to go to the OB/GYN and a dentist(the 2 docs I avoid like the Plague)
It really stinks because I am a mom and wife and it's so hard for me to keep my my energy and not be depressed when no end to this dialysis crap in sight. It puts a strain on my family and honestly... NO support system. My husband knew I was sick when we got married but he had no idea how much hospital time and clinic time would be involved long term (I was only Stage 2 when we got married).
I am just feeling sorry for myself. And depressed. Medicare doesn't make it easy to find a therapist or shrink, and when you do find one, it is a several MONTH waiting period for an appt. I have already attempted suicide, because in my fucked up brain, it will be easier on my family if I wasn't here.
Its been a year since I very literally almost died from a suicide attempt, and I have not tried any in that time. But I would be lying if I said the thoughts did not pass through my head when I see my husband struggling to make ends meet for us because I can't work full time with my day time dialysis hours. He won't say a word but I can see it in his face every day.
I just want a fucking kidney. I heard that the younger you are the better chance you have.... Well I was 30 when I started dialysis and my 35th birthday is coming up. I'm feeling hopeless.
I need to just delete social media like Instagram and Facebook cause it always just makes me feel bad about things. I know that's pretty cliche to feel that way but man it's hard to see what everyone else is doing - what everyone else is ABLE to do. I see all the people I graduated high school with going to cool places like Panama and Hawaii, going on cruises. My own family went to Mexico last year without me cause I'm stuck here on dialysis. I've been on dialysis for 4 years from age 18-22. I'll be turning 23 in about a month and I feel like my life is just passing me by. I'm watching everyone else do these cool incredible things and I don't get to do anything but sit here and wait for my kidney. I have a job, I work in a call center but that's not very fun and it actually makes me feel worse half the time cause it's an attention focused job and I'm usually not focused on that. I'm thinking about how something hurts, or I feel nauseous,and when is my transplant coordinator gonna call me?
Ugh I know this probably sounds like I'm just complaining and I am. Sometimes this gets frustrating. What I am grateful for is my wonderful partner who helps take care of me like no one else ever would or could. We both work so we can afford things together and we've accomplished that pretty well despite everything. So because of that, the frustrating stuff is bearable. But hopefully one day it gets easier to focus on that good stuff. Thanks for reading this if you did, I just needed to vent I guess
He is in the ICU for last 2 days. Mental confusion improved today. He is being treated for sepsis. A central line was put in his neck and after 4 day of stay in hospital ,he was released . 3 days after release, he Bagan to pass stool very frequently. He was admitted the same night in to a hospital.
Now what do we do to minimise infection(again) due to dialysis access .
I am going to be starting dialysis very soon. I got my latest blood test results yesterday and I’m down to 5% kidney function. I can feel that it’s time to start, so that’s fine, but I am curious how long it took you all to get back to life after starting. I have a trip at the end of May and another at the end of June. I’m feeling ok enough I could probably put the surgery off until I’m back from that trip, but I’d actually like to have the catheter placed in June, heal for a few weeks, go on my end of June trip, then start training as soon as I get back. Is that too ambitious, or, based on your personal experiences with this surgery, would that even be possible? I’ve had surgery before, but nothing like this, so I don’t really know what will be ok and what won’t be possible. Obviously I’ll talk to my doctor and surgeon, but it’s still a few weeks til my next appointment, so I’d love some input here, too.
i just... needed to vent for a minute... im so pissed... hurt? idk... i was presented to the board this week. and finally heard from the doctor... ive not been denied but im not approved either. they have "concerns" about my compliance. im 100% compliant now... so its not with my history but with my future of taking my meds as directed because they feel i might not be able to afford them as my current clinic is out of network and therefore costs a ton. yeah... their concern is that even though im paying $12k a month out of pocket, i may not be able to afford $1k a month tops for meds when im no longer on dialysis and therefore may not be compliant, though i havent missed a treatment in over a year. and they have concerns over my support system, even though i see a therapist weekly by another centers recommendation, and ive had multiple family members at every appointment supporting me. how do i even begin to fix these issues? the doctor said theres not one medical issue holding anything up, its all from the social workers. and i know i cant be the only one who doesnt have much extra needing a transplant, so how is this a "new" problem they cant get around?