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Hi Everyone! My new company, AssuredAllies, is building a set of solutions designed to support family caregivers. As we prepare to launch later this year, we are looking to speak to as many caregivers as we can to ensure our offering meets your needs.If you are open to completing a brief caregiver survey providing some feedback on our ideas, I'd be very grateful. And as a thank you for you time, we will be donating $10 for every survey completion the Caregiving.com Respite Fund, helping to raise money to send 10 family caregivers to the National Caregiving Conference this year! See more details here: https://www.gofundme.com/ncc18

submitted by /u/andy_freedman
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Reddit | Caregiving by /u/cryskelly - 2w ago

Hello,

I'm gathering data for the research stage of a product that will assist caregivers with documenting and sharing information.

https://goo.gl/forms/z8NxTkyyTvJ9KSrf2

Thank you in advance

submitted by /u/cryskelly
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Are there individual emails that go out to a family member? Is it a phone call? Is there an internally-made notification website or app that staff and family members can access?

And what staff members are included in this communication chain? The nurses? The director? Etc.

Thanks!

submitted by /u/Watermellon53
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I wanna make this my full time job. What are the steps

submitted by /u/throwawaycomputer17
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Hello,

I’m a journalist working on research for a long-form magazine story about caring for senior citizens in Canada (though I’m also interested in US stories).

I’m wondering if anyone has a story about their a patient receiving a “certificate of incapability” or otherwise being deemed incapable, who has felt that this label was incorrect or unfair. I’m interested in how seniors who may be struggling with some aspects of their lives may feel like their rights have been stripped away prematurely. Of course, I understand any wishes to keep private information confidential.

Thank you!

submitted by /u/sharonjriley
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Hello! Mods, please remove if this isn't appropriate, but I thought my project may be of interest to some of the subscribers here.

I am a Sociology graduate student at the University of Nebraska at Omaha currently conducting my thesis research titled "Men Who Care: an Examination of Masculine Caregiving".

My work sees to understand how younger (19-49) men taking on the role of an informal caregiver experience stress, and how that stress may be impacting current health and future risks.

Participation involves a visit to the UNO campus where you will be asked to complete surveys, provide simple body measurement like height, weight, and blood pressure. Compensation is provided for those who participate.

Please see our research page for more info. https://www.facebook.com/UNOcaregivingmen/ Contact caregivingmenstudy@unomaha.edu with any questions, and fee free to share with anyone you think might be interested.

Thanks so much for your time!

submitted by /u/CargivingMenStudy
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Are you a caregiver of someone with Alzheimer’s Disease? I am a MSW student at the University of Washington, and hope to learn through this study how caregiving affects your stress and what actions you take to help care for yourself and the person you care for. This should take about 10 – 20 minutes to complete, and will not retain any data that can be used to identify you. You have options to explain more about your situation in short answer form, and you can choose to receive a copy of the results once the survey is completed, but these are not mandatory actions. Thank you very much for your time, and all that you do in your daily life!

You can access the survey here: https://tinyurl.com/ycnpzrex

submitted by /u/KameraKase
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Hi everyone,

I hope you are well. My sincerest apologies if research projects are not welcome here, but I would like to tell you about a study we are conducting at the University of Newcastle:

You are invited to participate in the research project identified above, which is being conducted by a team of researchers led by Professor Billie Bonevski from the Faculty of Health and Medicine at the University of Newcastle. This project has been approved by the University’s Human Research Ethics Committee, Approval No. H-2017-0312.

My name is Alexandra Denham https://www.newcastle.edu.au/profile/alexandra-denham. I am a PhD student at the University of Newcastle (AU) who is leading the study, “Caring for those who care: A global survey of the health behaviours and health-related needs of informal caregivers.”

This study aims to investigate the prevalence of health risk behaviours and unmet needs of informal caregivers of a person with a health concern requiring in-home care by conducting a global online survey of caregivers. The caregiver groups that we are interested in include, but are not limited to: (1) Alcohol and other drug issues; (2) Alzheimer’s, or other dementia; (3) Cancer; (4) Mental/emotional illness; (5) Mobility/physical disability; (6) Stroke; and (7) Surgery/wounds. However, caregivers will have the opportunity to specify another group if they feel that they care for someone with a different health concern. The survey will be conducted in Australia, New Zealand, the United States, the United Kingdom, and Canada.

With this information, we will be able to develop helpful tools and resources to support caregivers in achieving healthier lifestyles, and address their unmet needs. This will also be the first study

Our survey is now available online from the 16th of March 2018 to the 14th of June 2018.

Please access our survey here: https://ands.newcastle.edu.au/quon/public/health_of_caregivers

Please feel free to share the survey with friends and family who may also provide care for someone else.

We would greatly appreciate it if you would share our study on Facebook with friends and family who may also be caregivers, or within any groups involving carers: https://www.facebook.com/UONengage/photos/a.1430062440566019.1073741830.1430036077235322/1992623040976620/?type=3&theater

Please do not hesitate to contact me if you have any questions, comments or thoughts about this study. We would also appreciate suggestions of any other organisations and/or services to contact who may be willing to promote our study through their networks. The research team is available via HealthOfCarers@newcastle.edu.au

Looking forward to hearing from you, and we greatly appreciate your participation.

submitted by /u/HealthOfCarersSurvey
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