I am in a really bad flare. Often when this happens my appetite drops and I struggle to eat normal food. I know this is not healthy but I like to eat Nutella on crackers. What about you? Do you have any foods or snacks you eat during a flare?
Ever since I got sick at 18 I have fallen in love with gardening. After moving around for 2 years I finally have a veggie garden again. I was so excited I went out and bought everything, planted it all. Trimmed the surrounding bushes. And now, for the past two days, it hurt to stand, sit walk, lay down, especially sit on the toilet because my legs hurt so bad. Was it worth it? Yes.
I totally overdid it yesterday. Cleaned the house, grocery shopping, laundry, etc etc. I had a bad feeling that I’d pay for it later and wow did I. I woke up at 4:30 am from excruciating aches in my arms and legs.
Achy legs is nothing new. I get them almost nightly, and can usually throw on compression socks to help enough for me to sleep. But now my arms have joined the pain party and I don’t know what to do! I’ve considered compression sleeves, but then I picture myself in them along with the socks and it’s so sad. At this point though I’ll try anything, no matter what I’ll look like. I can’t this anymore.
Does anyone have any suggestions for the extreme body aches, especially in the arms or legs?
My FMS is really debilitating. On normal, regular days, any one of these things would absolutely destroy me for the rest of the day. But today I managed to do all 3. I really hope I won't pay for it tomorrow!
I hope everyone else is having as good a day as me. And if not, I hope you have a better one soon!
This is reposted, my original title was rejected...
I’ve been posting my experiences as I’ve been getting KIT (ketamine infusion therapy) for my depression and fibromyalgia. Today is a no treatment day but I wanted to let you know I woke up pain free for the first time in 8 years! I’m still tired from the infusions but nothing hurts on my body. It’s a foreign experience. Everything I do is overshadowed by me constantly taking inventory of my body and all the parts that usually hurt or hum with underlying pain. But there’s nothing there!
I had an acupuncture appointment today and I bombarded my Chinese Med Dr. with questions. I wanted to know if she could tell a difference with my body.
First she said my inflammation and swelling were way down. Even from before my fibro started, I have less inflammation. (I’ve been seeing her for 14 years, initially for allergies after several sinus surgeries that failed). I totally agree! I need new bras with a smaller cup size and my waist is several inches smaller and doesn’t swell up when I eat. I’m hoping I’ll finally be able to lose weight when I exercise now! No matter what I’ve done in the past 5 years the weight wouldn’t budge.
She has been speaking with other doctors about ketamine and said one explained the effects of psychedelics as removing layers of built up paint on a canvas. Like you should be a blank canvas but the negative psychological and physiological effects build up from trauma, illness, and stress. Clinically administered Ketamine removes layer after layer until you’re left with a blank canvas again, with no adverse issues on it.
I also learned KIT stimulates your pituitary system so the increase in irritability right after treatments is just your body trying to continue to fix systems that haven’t worked quite right in a long time. The fatigue that is often reported for a few weeks up to two months after KIT is from your mind and body working so hard behind the scenes, resetting systems that aren’t working at optimal levels.
I find this all so interesting and can’t wait to see what my Internal Med doc says at my physical this Friday.
I know many of you have said you’ve tried ketamine before for pain. But I think it’s important to point out the official ketamine infusion protocol for pain is less than two years old and many medical professionals who give the treatment may not follow the protocol.
In order to fix chronic pain the infusion of ketamine needs to total about 20 hours within 14 days. The pain will get worse, or feel worse before it gets better. The ketamine is reestablishing neural pathways that may not have been functioning for a very long time. My pain got worse for a few days, but you can’t stop the treatment. Pain receptors aren’t really affected until you hit the fourth infusion.
My current protocol was for depression and pain so I’ll be finishing at about 14 hours. I need to probably do at least one additional 4-hour to get me closer to that 20-hour mark. But I’ll discuss that with my CRNA at my infusion tomorrow.
I believe we must be our own advocates in healthcare. Research what doctors tell us and find scholarly articles and research to verify their plan. With the internet its all out there, just watch the sources! Peer reviewed research is what you’re looking for, I also look into the college or clinic that published the study.
After published research, I look at newer opinions of practicing professionals who have the opportunity to fine tune the research available.
Over the years I’ve run into fantastic medical professionals and also ones that most likely graduated at the bottom of their class from a junk college. Search out the fantastic ones and never give up hope.
I just got home from an eye exam and got new contacts. Terrible experience. The Drs were great, but I see worse now than I did before. My eyes won't focus and I experience blurred vision at random. I thought for sure my glasses were the problem. Nope.
Sorry for the frustration. I'm 35 and I never thought it'd be like this. For those of you struggling with far worse issues, my heart goes out to you.
Recently diagnosed by one of the best rheumatologists in town...however, I knew in my heart I had fibro because I have been like a completely different person since a major surgery I had in 2016.
Anyway, the weekends are usually easiest for me because I know I have no where to be and no one is looking for me (work). I operate my own business but its getting harder and harder. So Fri after work got in bed and now its Monday evening and I haven't moved much. I have been soooo exhausted its like I am doped up. My back is killing (also have DDD) but my shoulders are both burning and aching and I just feel like crap. My period is ready to hit so maybe thats playing into it. Also, have been extremely nausested. Don't think its the flu.
Any thoughts, is this a "fibro flair?" Can someone give me any input? Thank you so much. Laying around for all these days has caused pretty bad depression.