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After about a 16-month fight to get Remicade approved by my insurance, I managed to get them to cover Inflectra (the cheaper version). I finally managed to get my 1st infusion at home yesterday, and have recently learned that I will be due for the next one in 2 weeks time. I have plans to travel out of state this week and am looking for some options for getting my next infusion while I'm away before I cancel the trip.

I am having trouble accepting that anyone who needs to refill certain medications or requires any kind of non-emergent treatment, is just expected to forget about traveling out of state for longer than a few days for any reason ever. I realize our healthcare system is hopelessly broken, but has it really come to this? Out-of-network coverage is no longer even an option for individual health plans, and I am essentially uninsured If I cross state lines.

I am searching for an affordable option to get an IV infusion in New York, but finances are extremely tight these days, because (big shock), I'm already practically bankrupt from medical costs despite all of the hoops I jump through to maintain coverage through the ACA exchange, something I'm wondering is even worth bothering with at all since they don't pay for anything anymore, and my doctors are jumping ship one after the other.

Anyone have any recommendations for this kind of situation?

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Reddit - Crohns by /u/sad-and-boujee - 21h ago

Hi there,

To give a bit of backstory, I’ve been hospitalized twice over the past two months due to recurrent pelvic abscesses. The doctors are insinuating that the reason that the abscesses keep coming back is because part of my bowel is inflammed and is causing tiny tears, which in turn is causing infections.

I had a colonoscopy on Thursday afternoon and the GI said that they could get about 1/3 of the way before they saw inflammation and decided to stop.

I do not have an ultimate diagnosis of Crohn’s yet, as the biopsy results haven’t come back. I have really only dealt with symptoms of diarrhea, which to be honest, hasn’t really affected my daily life all that much. I’ve never had blood in my stool, extreme fatigue or weight loss as I’ve noticed are main symptoms that have been outlined here in this community. I am also aware that this condition manifests itself differently in everyone.

I guess my main concern is that my doctors are immediately looking at surgery to resolve this. I have never had a major surgery before and I am scared beyond belief. However, it looks as if I don’t get this surgery then my abscesses are just going to keep coming back.

I’m just looking for some more insight on the bowel resection surgery itself and if it helped anyone in the end/what the recovery process was like. It might help give me some peace of mind going into it.

Thank you in advance.

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Reviewed by: Dr Tim Bull

www.sgul.ac.uk/research-profiles-a-z/tim-bull

Associate Dean of the Biological Research Facility; Senior Lecturer in Infectious Diseases.

Review: Crohn's MAP Vaccine

www.humanpara.org/expert-review-crohns-map-vaccine-may-2019-research-paper/

In summary this approach to vaccination was safe in humans and had the capacity to stimulate a modest and possibly transient immune response against MAP. Further studies to test the possibility of adding a second boosting dose using either the same vaccine or one that boost delivers the same MAP components via yet another type of delivery vector is warranted.

Full article in comments or click on the link:

www.humanpara.org/expert-review-crohns-map-vaccine-may-2019-research-paper/

The full paper:

Safety and Immunogenicity of a Novel Recombinant Simian Adenovirus ChAdOx2 as a Vectored Vaccine

https://www.mdpi.com/2076-393X/7/2/40

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Hi all! I have CD and have struggled with psoriasis in the past, and now I'm having the worst time with alopecia areata.

I've been on Remicade (Inflectra now--don't get me started ugh) and I've been battling the alopecia for about 2 years. I had it a number of years back but I had success with steroid injections in my scalp. The injections still help, but so much of my scalp is without hair that the injections are growing my hair at the same rate that I'm losing it. I could go on and on, and I do have an excellent dermatologist who is really trying to help, but I am just curious--has anyone else had experience with this, or any other inflammatory skin conditions? Or am I just getting more punches on my autoimmune conditions punchcard?

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Reddit - Crohns by /u/giselle_17 - 21h ago

After my diagnosis, I had a course of prednisone and pentasa. I started to feel better on the steroids (after I got used to the nasty side effects) and my inflammation markers were significantly lower. The MRI also showed no sign of inflammation in my intestines. I had an upper endoscopy which showed that all my stomach ulcers were healed (still waiting to see the biopsy results). I thought I was in remission, so my GI and I decided to stop medications and see how I do. But then I started having symptoms again: nausea, discomfort when I eat, bloating, heartburn and reflux, one episode of severe pain and a partial bowel obstruction. After this obstruction I have been feeling terrible. My GI says that she can't really understand how this obstruction happened since the MRI showed no inflammation whatsoever on my intestines. She wants to put me on Inflectra now, which I think is the best choice. However, I keep reading that even during remission you still have symptoms, it's just that your inflammation markers are normal. Is this the case? I'm just so worried that this is the best I'll ever get (which is not good at all). Will biologics even help with these symptoms?

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Reddit - Crohns by /u/winningbuffalos - 21h ago

So my insurance has denied the auto injection pen- rasuvo that I have been using samples of for 2 months now. My doctor wants me to come in and try doing the syringes but that absolutely terrifies me. I really enjoy the pens it’s pretty pain free and easy. I’ve also had no major side effects.

Next steps: do I fight insurance on it? Or do I suck it up and do the syringes?

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Reddit - Crohns by /u/spicystrippers - 21h ago

Just curious what some of you do for work! How do you manage work while being sick and how does your boss react?

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Reddit - Crohns by /u/kendallybrown - 1d ago
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Reddit - Crohns by /u/snowie1020 - 1d ago

Have slight back pain and don’t think it’s related to my Crohn’s, just slept funny. Is it ok to take panadol with Crohn’s

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22/M/ 170ish Pounds/ powerlifter (3-5 times a week)/ Almost never drinks (last one was my 22nd birthday going on a year ago)

As a kid, lets say 8-14 I would sometime bleed when I used the bathroom. Assuming this was because I would try to hold it until I was home and such they (doctors) believed it was anal fissures, it was bright red and would even drip.. I was too embarrassed and freaked out to let the doctors do much though, and (knock on wood but I havent really had any bleeding issues recently, maybe once the last year from I assume the same thing). I also struggle to go nearly every single time, I cant just "relax" I must be tense.

So recently, I am not sure what struck the cord, I have begun to worry because I always have had issues with the bathroom. I get bad pains when I REALLY need to go, and have trouble going out in public due to worrying about the issues because it also seems to increase how bad I feel. Along with all of this, I am not exactly sure what "pencil-thin" p**p looks like, because It doesn't look literally pencil thin from the 3 images I can get on google (ive been searching a bit and nothing stands out), point being I feel as though I have thinner/ or ribbon like P**P, really more oval shaped, usually normal coloring of light or dark brown..

On top of this sometimes I have a little bit of mucus (clear or sometimes yellow its hard to recall) when I just cant go, or go very little solid.

And I've read about feeling a lump in the lower right side of the abdomen, I think I feel that at times, its at belly button level and im not sure if my mind is playing tricks on me or not. (Nothing is sticking out so i wouldnt think its a hernia, and doesnt hurt to push anywhere really)

-list of thought to have symptoms for too long dont want to re-read-

1: bright blood when 8-14, maybe once the last year (thought to be anal fissures, it did hurt too but not too bad)

2: Oval shaped P**P (my concern for pencil thin, or ribbon since I dont know what that exactly is)

3: clearish white mucus sometimes when I struggle to go. (probably a little yellow at some point but IDR)

4: phantom or real pressure feel on the lower right side, even with belly button. (doesnt hurt to push on, comes and goes I think?)

5:EDITED: I also feel bloated a lot, but can always eat even if not necessarily hungry...

It's in line with IBS, but the bleeding from my child-hood still haunts me when I think about it, even though it didnt then.

I am so nervous about anything being wrong with me (I must get this from my mom), I am practically white in the face searching for explanations and writing this stuff, there's times I needed to lie down during searching. I even pass out at needles so please please don't be rude if I seem ridiculous. I am not trying to joke about this in the slightest.

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