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Hi! Not new to reddit but new to this subreddit. Hopefully you guys could help me. I'm posting on behalf of my mother, since she's not very tech savvy. Though she does know this subreddit exists. I'm looking for help because my mother is in a great deal of pain. Ever since i was four years old (I'm eighteen now) my mother has suffered from Crohn's disease badly. She's lost all of her weight over time since she was first diagnosed and only has 25% of her intestines left after numerous amounts of surgery and hospital visits. This has been very hard on her. It's hard for her to love herself, or to feel the love from others. This morning she cried out to god and seeing her in tears broke my heart as her daughter. When she looks at her thin body now all she sees is a shell of her former glory, a "bag of bones" or a "crackhead" as she puts it. She often finds it hard to put on and keep on weight, since all of her food goes through her so quickly. It's a tiring existence for her, and now she talks about how god should just come and get her so she's put out of her misery. Is there anything we could do? Is anyone else here in a similar situation as her? If so, please share your story and how you found strength and support to keep going and living life. And most importantly, how you learned how to enjoy life again? Additionally, are there any support groups in the Fredricksburg, VA area for people with chronic illnesses? Thank you so much for the support!

submitted by /u/Bhunt2401
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So I’m in the process of being diagnosed with ibd. My ct scan showed that either chrons or colitis was present, and I’m getting a colonoscopy next week to determine which. Since my symptoms started in Feb, I’ve lost almost 25 lbs. I’m still at a healthy weight, but I can already tell that my disordered eating habits are coming back. I have no appetite and so much of the food I used to eat upsets my stomach, so I’m mainly living off of meal replacement shakes, salads, and bread.

It’s really difficult because I know losing weight so fast isn’t good, and is causing me to wear out fast, but that ed part of my brain is kind of excited to be losing the weight.

It’s a really hard connection between the two that I wasn’t really expecting. Anyone else have an experience with this?

submitted by /u/iambaby11
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Chronic Illness | Reddit by /u/vasculitisfoundation - 1d ago

Raising awareness of vasculitis begins with your own understanding of this complex disease. The best way to learn from the world's medical experts is to attend our 2019 International Vasculitis Symposium.

https://www.vasculitisfoundation.org/2019-international-vasculitis-symposium/

https://i.redd.it/hsxkgg6yq5531.jpg

submitted by /u/VasculitisFoundation
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I have severe insomnia. 4 months now. Cannot fall and stay asleep. Go days without sleeping. Sleeping pills work a few days then quit working. I had palpation when taking sleeping pills hr went from 65 to 150 in nothing flat. When I have palpitations hard to breathe. Has not done that since. I have Rheumatoid so I had bad joint pain. I had chest pain like burning of the rib cages a month before the insomnia. Back and neck pain. Before the insomnia I was sleeping 9 hours and felt unrefreshed. I have muscle spasm and myoclonus. Tingling and pain in the hands and feet. When I do not sleep burning all over. Been told the abnormal lab value was a high calcium which I has started taking a supplement 2 weeks prior and a low TSH but not enough to send me to an endocrine doctor.

submitted by /u/missy161616
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