Low Risk Localised Prostate Cancer and Active Surveillance – Statement by Prostate Scotland Active Surveillance for low risk early prostate cancer has been in the news recently following the decision by the National Institute for Clinical Excellence recently to update their prostate cancer guidance for England and Wales. The NICE guidance sets out that men with low risk localised prostate cancer should be offered a choice of active surveillance, radiotherapy or radical prostatectomy. The guidance says that over a ten year survival period survival by men with low risk localised prostate cancer who opt for active surveillance is similar to those who have been treated with surgery or radiotherapy. The guidance however also sets out that surgery and radiotherapy reduce disease progression, by comparison with active surveillance, and are more likely to reduce the likelihood of the development of metastatic prostate cancer.
It should be noted that active surveillance is not a treatment but a management of the prostate cancer. The principle behind active surveillance is that the prostate cancer is actively monitored, so that if through the active monitoring procedure (PSA tests, DRE, scans and/or a biopsy) it is noticed that the cancer is starting to grow/progress, then the urologist is likely to recommend that treatment starts. For some men this will lead to a choice between surgery and radiotherapy. In practice the role of active surveillance as a management for low risk prostate cancer alongside the availability of radical treatments such as surgery and radiotherapy, has been increasingly offered as the appropriate first response for men with low risk localised prostate cancer in the past few years in Scotland. The new guideline from NICE effectively reflects the practice that is increasingly in effect the case across Scotland.
Many men with low risk prostate cancer opt for Active Surveillance as their choice as it can reduce the potential for side effects, and may be a way of deferring treatment, however many men also opt for the potentially greater certainty of curative treatment of surgery or radiotherapy. It should also be noted that many men on active surveillance where their cancer progresses go on to radical treatment.
It is important that men with low risk prostate cancer are offered the choice of relevant treatments and options (subject to clinical criteria) including the option of active surveillance, and it is crucial that men are offered relevant and accessible information and support on making a choice at this challenging time in their lives. Prostate Scotland has produced information about Early Prostate Cancer and also about Active Surveillance .
It should be noted that the NICE guideline/advice on active surveillance only applies to low risk and (in some cases intermediate) prostate cancer and not to higher risk cancers, where radical treatment is likely to be indicated and only applies in England and Wales. Men with early/low risk prostate cancer must fit certain criteria to be eligible for active surveillance.
2. Prostate cancer is the most common cancer amongst men in Scotland, with a lifetime chance of one in ten men developing it. There were over 33,258 new registrations of men with prostate cancer between 2005 and 2015 and 9,316 deaths of men in Scotland from prostate cancer during that period.[I] Encouragingly survival rates amongst men with prostate cancer have doubled over the past two decades with 80% of men with prostate cancer now surviving it[ii]. Over the past 20 years the number of men surviving prostate cancer has doubled and survival rates are now 80%.[iii] Projections by the NHS show that the diagnosis of men with prostate cancer is likely to rise by up to 35% between now and 2027.
[i] See Scottish Cancer Registry May 2017 and Cancer in Scotland, Information Services Division NHS National Services Scotland April 2017 [ii] Cancer in Scotland: ISD, NHS National Services Scotland, September 2011 [iii] See Scottish Cancer Registry May 2016 and Cancer Incidence in in Scotland (2014), and Information Services Division NHS National Services Scotland November 2015
Prostate Scotland is thrilled to be one of the nominated beneficiaries of the 11th BP Coast2Coast Cycle in May. This fundraising event has raised over £1.4m for a number of charities since its inception in 2008. This year, the 75 strong group will cycle a distance of 250 miles across Scotland.
The BP C2C group have had fantastic support over the past ten years from within the BP community as well as from the general public. The group’s aim is to continue fundraising for exceptional local charities and offer a sociable cycling challenge for many – those new to cycling and those more experienced. This year’s nominated charities are: Gravitate North East, Mental Health Aberdeen, Streetwork, Aberdeen Foyer and Prostate Scotland.
To support their fundraising, the organising committee have invited three inspirational speakers to spend an evening each speaking about their fantastic sporting achievements in mountaineering, sailing and cycling at Camphill School in Bieldside, Aberdeen. The first of these talks takes place on Thursday 11 April. One of Scotland’s leading winter climbers, Simon Richardson, will talk about his mountaineering adventures in the Alps, Alaska and Greenland; Colin and Ana Ladd will talk about swapping their jobs in Aberdeenshire for a 13m sailing yacht, and their round-the-world voyage by way of the South Pacific, Patagonia, and the Falklands; and Dean Stott, who cycled the Pan American Highway – a 14,000 mile route from Argentina to Alaska – gaining two world records and raising an incredible amount of money for charity. Information and tickets are available here.
Adam Gaines, Director of Prostate Scotland said “this coast to coast cycle ride is a huge undertaking and we would like to express our thanks to all the riders for participating in this amazing challenge. We would also like to thank them for having nominated Prostate Scotland to be one of the beneficiary charities – the support from the ride will be a major help to us in our work to provide vital information packs and help to men in Scotland with prostate cancer.”
We’d like to say a very big thank you to Joy Johnston and family who walked all four Kiltwalks in 2018 to raise awareness and fundraise in aid of Prostate Scotland.
Starting with the Glasgow Kiltwalk in April, Joy and family then participated in the Aberdeen event in June, the Dundee event in August, and completed their challenge in September in Edinburgh.
Their fantastic commitment was rewarded with contributions totalling £1,413 in aid of our work, and we were delighted to meet and present Joy, her dad and her daughter with their Certificate of Thanks in person last Saturday when they joined us at our awareness day with Dundee United.
Many of their extended family members joined in with the challenge throughout the year, all wearing Prostate Scotland t shirts with their kilts. Their 11-strong team for the Edinburgh event even included their three dogs!
We’d like to say well done and thank you for your commitment to completing all four Kiltwalks, raising awareness of our cause and your continued support of Prostate Scotland.
More information on their wonderful achievement can be found here
Dundee United Football Club extended another warm welcome to Prostate Scotland at Tannadice Park on Saturday for their second Prostate Awareness Day during their match against Alloa Athletic Football Club.
Dundee United players warmed up in bespoke t-shirts to symbolise the partnership between Prostate Scotland, DUCT (Dundee United Community Trust) and ArabTRUST, and the teams exchanged commemorative Prostate Scotland pennants. Our discreet ‘Brief Guides to Prostate Disease and Prostate Cancer’ were distributed to supporters inside the stands, and posters were put up throughout the grounds. Two prostate awareness stations were set up where supporters could take the opportunity pre-match and at half time to speak to Prostate Scotland and Clinical Nurse Specialists from Ninewells Hospital in Dundee. Announcements were broadcast in the stadium highlighting the activities taking place. Dundee United also published their own article and generously provided space for a Prostate Scotland advert in the match programme.
Dundee United Managing Director Mal Brannigan said: “Dundee United is delighted to be working with Prostate Scotland, DUCT (Dundee United Community Trust) and ArabTRUST to raise awareness about the most common cancer in men in Scotland. Thanks to tremendous advances in treatment, there are many men who would not be living as full a life as they are today and we all need to continue to support the results achieved from research. Early detection and subsequent diagnosis is key and today is all about communicating those first symptoms to look out for.”
Community Trust Chairman David Dorward said: “Generally speaking, as men we are still not very good at looking after our own health and it is high time for an attitude change. Tannadice brings together thousands of male supporters on a matchday and as such, it is the ideal place to start having the conversation we might otherwise choose to avoid.”
ArabTRUST Chairperson Susan Batten added: “ArabTRUST is proud to sponsor the T-shirts the United squad will be warming up in today and by doing so hopes to encourage supporters to use the opportunity to pick up information leaflets or speak with the specialist nurses in the lower tier concourses today.”
Prostate Scotland would like to thank sincerely the Directors, players, staff and fans of Dundee United; our volunteers, the ArabTRUST and DUCT for their enthusiasm and support. We would also like to thank the ArabTRUST for sponsoring the t-shirts, and Alloa Athletic FC for their participation.
We’d like to say thank you to Sharon and Iain Schreuder for their hard work throughout 2018 fundraising and running in aid of Prostate Scotland.
Starting with the Kilomathon in April, Sharon and Iain together completed marathons in Stirling, Edinburgh, Fort William, Loch Ness, the Mhor Marathon from Callander to Balqhuidar; as well as The Great North Run, The Aviemore Half Marathon, The Illuminator 15 mile night trail run in Aboyne and their first Ultra Marathon. Sharon also ran in the London Marathon and Iain in the Men’s 10K Edinburgh.
We’re grateful for their commitment to training, competing, fundraising and awareness raising throughout last year and we’ve really enjoyed reading their entertaining updates on their fundraising page at justgiving.com/fundraising/sharon-schreuder1 Their hard work has been rewarded with a fantastic fundraising total of £2,379.67. Said Sharon “The generosity shown by everyone has been amazing and we’re truly thankful.”
A very big thank you and congratulations to Iain and Sharon for this amazing achievement, and their superb support of Prostate Scotland.
Greater awareness and earlier diagnosis can help save lives is the message of Prostate Scotland’s new prostate awareness initiative, which includes a new impactful TV and radio campaign. The ‘Pull Your Finger Out’ Initiative by Prostate Scotland aims to promote greater awareness of prostate cancer and disease and its symptoms. It also encourages more men who become aware of potential signs and symptoms to get these checked. The campaign includes a TV advert promoting greater awareness in order to encourage earlier diagnosis and thereby even greater survival from prostate cancer. The broadcast commercial will run in prime time and day time slots on STV in the run up to World Cancer Day on 4 February 2019. An awareness radio advert on radio on several local stations will run alongside the TV advert.
Prof Alan McNeill, Trustee of Prostate Scotland and Consultant Urological Surgeon said: “We are encouraging men if they have prostate symptoms to pull their fingers out and see their doctors. Earlier diagnosis and treatment improvements have dramatically improved survival rates – but greater awareness of the condition is required as the number of men likely to develop prostate cancer over the next few years is going to increase. Every now and again I meet men with prostate cancer who were unaware that their own risk was increased because their father or brother had had the disease. Sometimes this lack of awareness leads to them presenting late by which time we can’t offer curative treatment. Prostate cancer affects more men in Scotland than any other cancer, with one in ten men being at risk. ”
Adam Gaines, Director of Prostate Scotland said: “This initiative and TV and radio adverts are about promoting greater awareness of prostate cancer and disease in Scotland, as too few men are aware of potential signs and symptoms. It is encouraging that survival from prostate cancer has doubled over the past 20 years, and we hope that the Pull Your Finger Out Initiative, the new TV and radio advertisements and awareness materials will further raise awareness of prostate cancer and disease and encourage more men where they have signs or symptoms to get these checked early.”
2. Prostate cancer is the most common cancer amongst men in Scotland, with a lifetime chance of one in ten men developing it[i]. There were over 33,258 new registrations of men with prostate cancer between 2005 and 2015 and 9,316 deaths of men in Scotland from prostate cancer during that period.[ii]. In 2016 in Scotland 3,167 men were diagnosed with prostate cancer and 894 men died from it[iii]. Encouragingly survival rates amongst men with prostate cancer have doubled over the past two decades with 84% of men with prostate cancer now surviving it[iv]. Projections by the NHS show that the diagnosis of men with prostate cancer is likely to rise by up to 35% between now and 2027[v]. Signs and symptoms of prostate cancer can be frequent, bloody or painful urination, erectile dysfunction and lower back pain. sometimes with early prostate cancer there may not be any symptoms. In the case of symptoms get them checked by your GP who may take a blood test to check PSA levels (prostate protein) and conduct a rectal examination to check the size shape and feel of the prostate and may refer a man to a urologist for further investigation and possible biopsy.
3. The TV advert was directed by award winning Scottish director Ewan Stewart, acted by Carole Rafferty, and developed by the Union Advertising Agency for Prostate Scotland and produced by Mallinson Television Productions.
[i] See Cancer in Scotland: ISD, NHS National Services Scotland April 2018 pp9 [ii] See Scottish Cancer Registry May 2017 and Cancer in Scotland, Information Services Division NHS National Services Scotland April 2017 [iii] See Cancer in Scotland ISD April 2018 [iv] Cancer in Scotland: ISD, NHS National Services Scotland, October 2018 pp 16-21 [v] See Scottish Cancer Registry May 2016 and Cancer Incidence in Scotland (2014), and Information Services Division NHS National Services Scotland November 2015
We’ve been delighted to hear from many of our supporters – long term and new – about their plans for fundraising in aid of Prostate Scotland this year. Walking will be a popular past-time for some supporters this year, with The West Highland Way set to be a well trodden path for many, and we’re glad that coffee and cakes are also featuring regularly in fundraising plans! Running is also on many people’s agendas.
We are pleased therefore to be able to offer a number of free places in organised sporting events including The Great Stirling Run on 28 April and The Edinburgh Marathon Festival which takes place on 25 & 26 May, and while the standard entry period is now closed for this, we do have special Charity Entries available. Over that weekend, there are various events, from a 5K to a relay to the full marathon itself. You can request your free place here – please scroll down to the form – and it takes just a couple of minutes to complete.
Even if you, or your family or friends are just starting to think about undertaking a fundraising activity, you are welcome to get in touch to chat it through. Our supporter care direct phone number is 0131 603 8664, you can email us here or you can fill in a short registration form below. We’re always happy to hear from you and we look forward to supporting you in your fundraising this year.
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I declare I will be 18 years or over on the day of the event. I accept that Prostate Scotland will not be liable for any loss, damage, action, claim, costs, expenses, which may arise in consequence of my organisation of and participation in the events and that the event is not the responsibility of Prostate Scotland and will ensure that it is not described as on behalf of the charity. I shall do nothing that brings the name of Prostate Scotland into disrepute and not make any public statements on behalf of the charity. Any reference that I make to Prostate Scotland will ensure that I state that I am raising funds in aid of Prostate Scotland. I undertake not to collect funds in the street in aid of Prostate Scotland without obtaining a local authority licence. I also hereby give Prostate Scotland my permission to use my name and photographic likeness for promotional purposes for the charity.Please note that we ask cyclists who are fundraising in our aid to wear helmets for their own safety
The Prestonfield Burns Supper is being held in aid of Prostate Scotland on Thursday 24th January 2019. It features a tremendous line up including Cammy Goodhall, who will give The Immortal Memory, Willie Hunter will propose The Toast for the Lassies, and Anna Morris The Reply from the Lassies. We are delighted to have broadcaster Grant Stott returning again this year to host.
The event, which is taking place in Edinburgh at Prestonfield House Hotel, one of Scotland’s most famous venues, is being generously held in support of Prostate Scotland. Guests will enjoy a welcome drinks reception, followed by a three-course dinner with coffee. A few tickets are still available. Tickets are priced £50 with seating at tables of ten. There will be an auction and prize draw during the evening to support Prostate Scotland’s work.
To book your place at this fabulous celebration of the life and poetry of Robert Burns, please call Prestonfield on 0131 662 2305 or email email@example.com
Thank you for your support of Prostate Scotland over this past year. We’d like to let you know of the progress we have made in our work and about our plans to further our work in the coming year.
This has been a significant year in terms of prostate awareness – with the topic being higher up the public agenda than before. We have sought to play our part in further increasing awareness through launching a new awareness initiative called ‘Pull Your Finger Out.’ This initiative reached many tens of thousands of people through a special partnership with the Daily Record and many regional papers across Scotland, through social media, and awareness materials in community centres and social clubs. Following it we have seen a significant increase in demand for information materials and in visits to our website.
We have provided many thousands of people with information about prostate disease and its treatments. We developed the range of information materials by publishing seven new guides and extending the number of hospitals where these materials are now available – with the vast majority of hospitals treating prostate disease in Scotland now stocking them. We have backed up the provision of information through a range of talks and workplace workshops from Thurso to Dumfries. We have continued our partnership with Rotary Clubs on the Rotary Ride for prostate cancer; and developed our partnership with the Freemasons across Scotland, whose generous support has now reached the mighty figure of £450,000.
In addition, we are pleased to report on a special new project to research into the future treatment and services needs of men with prostate cancer. This has included the taking forward of a national survey, as well as focus groups with men with prostate cancer held in Glasgow, Inverness, the Lothians, Tayside and the Western Isles.
We also launched a special Fellowship Scheme to support the training of future surgeons in Scotland in robotically assisted prostate cancer surgery.
Our hard working supporters have continued to make an amazing difference through donating and volunteering, as well as cycling, singing, running, kiltwalking, munro bagging, dancing, music making, baking and hosting social events, raising generous funds in aid of Prostate Scotland. Many have completed great personal challenges while raising awareness of prostate health.
During 2019, our focus will be on: taking our Scotland wide research project into patient treatments and future service needs further forward; further developing our Pull Your finger Out awareness initiative to reach out to even more men and their families; continuing our successful awareness initiatives in the workplace and last but not least taking forward our information and advice work to ensure that even more men and their families can benefit and receive support.
We very much appreciate your support of Prostate Scotland and would like to wish you all the very best for the festive season and for the New Year.
A tremendous line up has been announced for the Prestonfield’s Burns Supper being held in aid of Prostate Scotland on Thursday 24th January 2019.
The 2019 line up includes Cammy Goodhall, who will give The Immortal Memory, Willie Hunter will propose The Toast for the Lassies, and Anna Morris The Reply from the Lassies. We are delighted to have broadcaster Grant Stott returning again this year to host.
The event, which is taking place in Edinburgh at Prestonfield House Hotel, one of Scotland’s most famous venues, is being generously held in support of Prostate Scotland. Guests will enjoy a welcome drinks reception, followed by a three-course dinner with coffee. Tickets are priced £50 with seating at tables of ten. There will be an auction and prize draw during the evening to support Prostate Scotland’s work.
To book your place at this fabulous celebration of the life and poetry of Robert Burns, please call Prestonfield on 0131 662 2305 or email firstname.lastname@example.org