Loading...

Follow WE Have Cancer on Feedspot

Continue with Google
Continue with Facebook
or

Valid

Lacuna Loft provides young adult cancer resources no matter where you are

Mallory Casperson is the CEO and founder of Lacuna Loft. A former aerospace engineer, Mallory was thrust into the cancer world after being diagnosed with Hodgkin’s lymphoma.

During our interview we discussed:

  • How her mother’s cancer diagnosis, and subsequently her own diagnosis, caused her to leave the aerospace industry and start a non-profit.
  • How Lacuna Loft began as Mallory’s blog about her experience as a young adult cancer survivor.
  • The three main challenges young adult cancer patients and survivors face; the lack of connections to people like them, the feeling of isolation and the need for validation.
  • The range of online support resources available for young adult cancer patients and survivors.
Connect With Lacuna Loft

On their website – https://lacunaloft.org/

YouTube – https://www.youtube.com/channel/UCu8vPgF5kkUv4–AeqsYQgg/featured

Instagram – https://www.instagram.com/lacunaloft/

Twitter – https://twitter.com/lacunaloft

Facebook – https://www.facebook.com/LacunaLoft/

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post Lacuna Loft Provides Young Adult Cancer Resources No Matter Where You Are appeared first on WE Have Cancer.

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

Kyle Woody is the founder of Jack’s Caregiver Coalition, a non-profit organization striving to provide world-class hospitality to men who care cancer caregivers in the Minneapolis-Saint Paul area. The mission of Jack’s is to improve the way men think, feel and act in their role as cancer caregivers.

During our conversation we discussed:

  • The unique needs that men have when serving as caregivers.
  • How Jack’s is an event-based group, providing an alternative to the traditional “sit in a circle” support group. These events have included ax throwing, fishing and hunting outings and golf games.
  • The bonding and deep conversations that naturally happen at these events.
  • The long-term goal to grow to a national organization supporting men who serve as caregivers for those affected by more than cancer, including Alzheimers, A.L.S. and Post-Traumatic Stress.
Links mentioned on the show

Contact Jack’s Caregiver Coalition via email – contactus@jackscaregiverco.org

Call Jack’s Caregiver Coalition – (612) 547-6929

Follow Jack’s on Facebook – https://www.facebook.com/jackscaregiverco

Follow Jack’s on Twitter – https://twitter.com/jackscaregiver

Follow Jack’s on Instagram – https://www.instagram.com/jackscaregiverco/

Follow Jack’s on YouTube – https://www.youtube.com/channel/UC8JT0S_wxclzLA7ElMW_WVA

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media

Like our Facebook page – https://www.facebook.com/wehavecancershow/

Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/

Follow us on Twitter – https://twitter.com/wehavecancerpod

Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post Jack’s Caregiver Coalition – Cancer Support For Men In the Twin Cities appeared first on WE Have Cancer.

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

Randy Lopez is a 20-year survivor of Stage IV colon cancer. He was diagnosed in 1998 at the age of 34.

We talked about the lasting impact that his diagnosis has had on him and how taking an integrative approach to his treatment, through the support of the Block Center for Integrative Cancer Treatment, helped him tremendously.

He shared the variety of advocacy work that he’s done, working with the Colorectal Cancer Alliance and presently, as a board member for the Colon Cancer Coalition.

As a marketing professional, Randy runs own marketing and branding agency, The JAKE Agency. He leveraged his branding talent in creating the iconic colon cancer awareness logo: 

Randy was featured on CNN’s Special Investigation: Saving Your Life hosted by Dr. Sanjay Gupta.

Links Mentioned in This Episode of WE Have Cancer The Colon Cancer Coalition: https://coloncancercoalition.org/ The Colorectal Cancer Alliance: https://www.ccalliance.org/ Block Center | Integrative Cancer Treatment: http://blockmd.com/ Follow Randy on Twitter: https://twitter.com/stage4survivor Follow WE Have Cancer: Facebook: https://www.facebook.com/wehavecancershow/ Twitter: https://twitter.com/wehavecancerpod Instagram: https://instagram.com/wehavecancerpod

The post Interview With 20-Year Cancer Survivor, Randy Lopez appeared first on WE Have Cancer.

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

A Routine Colonoscopy Saved His Life, With John Cavanaugh

in May of 2014 John Cavanaugh was diagnosed with colon cancer after a routine colonoscopy.

John’s story was profiled in this Colon Cancer Coalition’s Faces of Blue article.

On my 50th birthday, I promised my wife I would make an appointment for a full physical. On May 5, 2014, my primary physician, Dr. Troy Fate, MD scheduled a routine colonoscopy. I had two polyps removed and one turned out to be cancerous with positive margins. After a consultation with Dr. Scott Brill, a Colon and Rectal Surgeon at Ohio Health in Columbus, we elected for surgery on June 6th (Lilly’s birthday). Dr. Brill found no evidence of cancer in the section removed, but one lymph node out of 13 tested positive for cancer cells. One of the risks of my operation was the possibility of a leak. Unfortunately, that occurred and I fell ill with sepsis which required a second emergency surgery. Luckily Dr. Brill is an Army Veteran with trauma experience so he was able to save my life. I needed two additional procedures to install drains for fluid build up near my lungs. My wife never left my side for a month and slept next to me on a recliner (Much like the scene where Robin Williams describes the meaning of love to Matt Damon on the park bench in Good Will Hunting).

After a several rounds of antibiotics, I recovered enough to be discharged from the hospital with a temporary ileostomy. After three weeks of intensive physical and occupational therapy at home, I was able to participate in our daughter’s wedding ceremony. Then I endured several months of chemotherapy that made me look like the main character from “Unbroken”. In December, right before my birthday and the Christmas holidays, Dr. Brill reversed the diversion and I spent much of 2015 recuperating. On May 5, 2015, Dr. Brill performed a colonoscopy which resulted in a normal finding. Later in December, I had a CT scan and received a clean bill of health. I continued to be followed closely by my oncologist with regular blood screening, but am now back to work full-time.

Want your holiday greeting shared on an upcoming podcast episode? Call (813) 434-3215 and leave a short holiday greeting to a friend or loved one. Links Mention In This Episode:

The Colon Cancer Coalition:  https://coloncancercoalition.org

Cancer + Careers: https://www.cancerandcareers.org/en

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post A Routine Colonoscopy Saved His Life, With John Cavanaugh appeared first on WE Have Cancer.

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 


What an honor it is to share episode #100 with you. Never did I realize when I launched the podcast 3 1/2 years ago that I would someday be talking about such a milestone.

I could not think of a better way to celebrate this important episode than by sharing Heather and Fred’s story.

I met them at Fight CRC’s annual Call-on Congress earlier this year. Heather serves as an ambassador for Fight CRC. Their story touched me in so many ways. During this interview we discussed Heather’s wonderful progress in her clinical trial. When I saw Heather during our Skype interview – which was conducted in May, 2018 – I almost didn’t recognize her; she looked that good!

The three of us also discussed the impact has on a marriage and how they’ve relied on their love for each other, and their faith, to cope with Heather’s disease.

Links Mentioned in This Episode of WE Have Cancer Heather’s One Million Strong story: https://fightcolorectalcancer.org/blog/meet-one-million-strong-heather-schiller-georgia/ FightCRC: https://fightcolorectalcancer.org/ Follow Heather on Twitter: https://twitter.com/tisHeather Follow Heather on Instagram: https://instagram.com/tisHeather Follow Fred on Instagram: https://instagram.com/fs_7phoenix Follow WE Have Cancer: Facebook: https://www.facebook.com/wehavecancershow/ Twitter: https://twitter.com/wehavecancerpod Instagram: https://instagram.com/wehavecancerpod

The post Fred and Heather Schiller Are Coping With Cancer Through Love appeared first on WE Have Cancer.

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

Separate tags by commas
To access this feature, please upgrade your account.
Start your free month
Free Preview