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Michele Longabaugh is a 9-year stage 4 cancer survivor. She was diagnosed in 2010 with anal cancer and has far exceeded her 3-year “expiration date,” as she described it.

During our conversation we discussed:

  • The challenging treatment she went through
  • The stigma associated with anal cancer
  • The long term side effects of her treatments and how she’s managing them
  • What she meant when she said “I wish they would have treated me like I was going to survive.”
  • Why she feels like she’s now “living the dream” as a cancer survivor.
  • The fact that many oncologists and surgeons fail to address the impact of cancer on the sexual function of cancer survivors and patients and how she’d like this to change.
  • How she wishes patients would be offered “cancer rehab.”
  • How surviving cancer has changed her.
Links Mentioned In The Show

Interview with Dr. Sage Bolte – https://wehavecancershow.com/069

52 Shades of Blue – http://www.52shadesofblue.com

Michele’s book If You’re Not Laughing, You’re Dying – http://www.52shadesofblue.com/her-book/#

Follow Michele

Her blog – http://ihavebuttwhat.tumblr.com

On Instagram – https://instagram.com/pollyannalife

On Twitter – https://twitter.com/crazyasscancer

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest
Email Lee

The post Rehabbing From Cancer, With 9-Year Survivor Michele Longabaugh appeared first on WE Have Cancer.

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The Colon Club – WE Have Cancer

The guests for this episode were Phoung Ly Gallagher, Executive Vice President, and Kristina Smith, Vice President of Communications for The Colon Club.  The Colon Club provides resources for those touched by colorectal cancer.

During our conversation we discussed:

  • The story behind the beginning of The Colon Club
  • The Colon Club’s Four pillars: Colon Talk, The Kimberly Fund, the blog and the On The Rise magazine.
  • Kristina’s own experience as a recipient of The Kimberly Fund
  • Phuong’s connection to colorectal cancer
  • The upcoming Colon Camp retreat and the life-changing experiences attendees can expect.
Apply to Attend the 2019 Colon Camp – Deadline is February 1, 2019!

To apply visit: https://wehavecancershow.com/colonclub

Links Mentioned In This Episode

Colon Club – http://colonclub.com

Colon Talk – http://coloncancersupport.colonclub.com/viewforum.php?f=1

The Kimberly Fund – https://colondar.wufoo.com/forms/r1lbim8y1rxx58x/

On The Rise Magazine – http://colonclub.com/on-the-rise/

Our First Interview With Kristina Smith – https://wehavecancershow.com/054

Our Interview With Diana Sloan – https://wehavecancershow.com/077

Our Interview With Riley Castro – https://wehavecancershow.com/061

Our Interview With Nikki Moore – https://wehavecancershow.com/090

The Five Star Retreat In Nunnelly, Tennessee – http://www.fivestarretreat.com

Connect With The Colon Club

On Instagram – https://instagram.com/colonclub

On Twitter – https://twitter.com/colonclub

On Facebook – https://www.facebook.com/colonclub/

Visit Their Website – http://colonclub.com

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest
Email Lee

The post The Colon Club – Providing Support and Healing to Those Touched By Colorectal Cancer appeared first on WE Have Cancer.

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Dean Hall is Swimming In Miracles

Dean Hall is the first person in history to swim the entire 184 miles of Oregon’s Willamette River. He accomplished this feat in June of 2014 while he still had active leukemia and lymphoma to prove to cancer patients around the world that you don’t have to give up your dreams or your drive simply because you received a diagnosis. Now, cancer-free he continues to go to great lengths to raise money for cancer research and spread his inspirational message of healing and hope around the world.

During our interview we discussed:

  • How cancer played a significant part of his life before his diagnosis.
  • The meaning of Swimming in Miracles and how water has played a significant role in his physical and emotional healing.
  • How a quote from Albert Einstein helped him chart a new course with his life.
  • The role faith has played in his life.
Connect With Dean

His website, Swimming in Miracleshttps://www.swimminginmiracles.com

On Instagram: https://instagram.com/swimminginmiracles

On Twitter: https://twitter.com/swimminginmiracles

Links mentioned in the show

Forest bathinghttp://www.shinrin-yoku.org/shinrin-yoku.html

Wim Hofhttps://www.wimhofmethod.com

The book Blue Mindhttps://www.amazon.com/Blue-Mind-Surprising-Healthier-Connected/dp/0316252115

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest
Email Lee

Lee@wehavecancershow.com

The post Dean Hall Is A Cancer Survivor Who’s Swimming In Miracles appeared first on WE Have Cancer.

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Dr. Karin Hehenberger – CEO/Co-Founder, Lyfebulb

Dr. Karin Hehenberger, is the CEO and Co-Founder of Lyfebulb, a non-profit organization whose mission is to “Reduce the burden of chronic disease through the power of the patient.”

In our conversation we discussed:

  • The origin and goals of Lyfebulb since its inception in 2014.
  • How her own diagnosis with Type 1 Diabetes at the age of 16 and subsequent kidney and pancreas transplants impacted her and the mission and goals of Lyfebulb.
  • The roles of Patient Ambassadors and Patient Entrepreneurs.
  • Why Lyfebulb is a patient-centric organization.
  • The upcoming Lyfebulb-Helsinn Innovation Challenge.
  • The future of Lyfebulb.
Apply For the Lyfebulb-Helsinn Innovation Challenge – https://lyfebulb.com/innovation-award/helsinn-2019/ Connect With Lyfebulb

Visit their website – https://lyfebulb.com/

Lyfebulb on Instagram – https://instagram.com/lyfebulb

Lyfebulb on Twitter – https://twitter.com/lyfebulb 

Lyfebulb on Facebook – https://www.facebook.com/Lyfebulb

Lyfebulb on YouTube – https://www.youtube.com/user/Lyfebulb

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post Lyfebulb – A Patient Platform That Embraces and Stimulates Innovation Toward Better Quality of Life appeared first on WE Have Cancer.

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Teri Griege

In 2009, shortly after completing her first Ironman Triathalon, Teri Griege was diagnosed with Stage IV colon cancer. She was 48 years old.

During our conversation we discussed:

  • How her diagnosis saved the lives of her two older sisters.
  • Her setting a goal to complete a half Ironman one year after her diagnosis and how she trained for this during her cancer treatments.
  • Completing six major marathons around the world.
  • Her book, Powered by Hope and the non-profit she created by the same name.
  • Her advocacy work with Pedal the Cause, the Colorectal Cancer Alliance and Fight CRC.
Links Mentioned In The Show

Teri’s website – http://terigriege.com/

Powered by Hope – https://www.poweredbyhope.org/

Pedal the Cause – https://www.pedalthecause.org/

Colorectal Cancer Alliance – https://www.ccalliance.org/

Fight CRC – https://fightcolorectalcancer.org/

Call On Congress – https://fightcolorectalcancer.org/events/save-the-date-call-on-congress-2019/

Colon Cancer Coalition – https://coloncancercoalition.org/

Teri’s Story
IRONMAN HAWAII - The story of Teri Griege - YouTube
Connect With Teri

Facebook: https://www.facebook.com/teri.griege

Twitter: https://twitter.com/TeriGriege https://twitter.com/PoweredByHope

Instagram: https://instagram.com/poweredbyhope

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post Powered by Hope; An Interview With Ironman Triathlete and Stage IV Cancer Survivor Teri Griege appeared first on WE Have Cancer.

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A Car Accident Saved My Life; An Interview With Lung Cancer Survivor Yovana Portillo

Yovana Maria Portillo is a young lung cancer survivor who was diagnosed with stage 1b lung cancer purely by accident.

During our conversation we discussed:

  • The story behind the accident that saved her life.
  • The details of her surgery and subsequent follow-ups.
  • The impact her disease had on her life.
  • The stigma associated with lung cancer and the burden of blame that many lung cancer patients and survivors face.
  • Where Yovana turned to when she needed support.
  • How she dealt with friends and family who were afraid to utter the word “cancer” in her presence.
  • The important roles exercise and spirituality play in her life
Connect with Yovana

Read her story herehttps://www.cancersupportcommunity.org/blog/2018/10/advocate-spotlight-yovana-portillo-phoenix-arizona

Follow her on Instagramhttps://www.instagram.com/azhikeryogirunner/

Connect with her on Facebookhttps://www.facebook.com/yovanamariaportillo

Follow her on Twitterhttps://twitter.com/asuxfin

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitterhttps://twitter.com/wehavecancerpod
Follow us on Instagramhttps://instagram.com/wehavecancerpod
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post A Car Accident Saved My Life; An Interview With Lung Cancer Survivor Yovana Portillo appeared first on WE Have Cancer.

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Candace first appeared on the podcast back in 2015. You can listen to that interview here.

Much has changed in Candace’s life since then. During our conversation we discussed:

  • How her life has changed 15 years since her original diagnosis.
  • The alarming number of questions she is asked during her advocacy work that reflect many people’s lack of knowledge about their own bodies.
  • The advocacy work she is doing, along with Dr. Andrew Albert, in the Chicago area.
  • The growth of her non-profit, The Blue Hat Foundation.
  • The reason why many people of color are distrustful of the medical community.
Links mentioned in this episode

The Blue Hat Foundation – https://www.thebluehatfoundation.org/

Call On Congress – https://fightcolorectalcancer.org/events/save-the-date-call-on-congress-2019/

Candace on Instagram – https://www.instagram.com/penelopepit_stop/

Candace on Twitter – https://twitter.com/colon_survivor

The Blue Hat Foundation on Twitter – https://twitter.com/BlueHats4colons

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post Interview With 15 yr. Cancer Survivor and Passionate Advocate Candace Henley appeared first on WE Have Cancer.

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Lacuna Loft provides young adult cancer resources no matter where you are

Mallory Casperson is the CEO and founder of Lacuna Loft. A former aerospace engineer, Mallory was thrust into the cancer world after being diagnosed with Hodgkin’s lymphoma.

During our interview we discussed:

  • How her mother’s cancer diagnosis, and subsequently her own diagnosis, caused her to leave the aerospace industry and start a non-profit.
  • How Lacuna Loft began as Mallory’s blog about her experience as a young adult cancer survivor.
  • The three main challenges young adult cancer patients and survivors face; the lack of connections to people like them, the feeling of isolation and the need for validation.
  • The range of online support resources available for young adult cancer patients and survivors.
Connect With Lacuna Loft

On their website – https://lacunaloft.org/

YouTube – https://www.youtube.com/channel/UCu8vPgF5kkUv4–AeqsYQgg/featured

Instagram – https://www.instagram.com/lacunaloft/

Twitter – https://twitter.com/lacunaloft

Facebook – https://www.facebook.com/LacunaLoft/

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media
Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod
Know someone touched by cancer who has an inspiring story?
Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post Lacuna Loft Provides Young Adult Cancer Resources No Matter Where You Are appeared first on WE Have Cancer.

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Kyle Woody is the founder of Jack’s Caregiver Coalition, a non-profit organization striving to provide world-class hospitality to men who care cancer caregivers in the Minneapolis-Saint Paul area. The mission of Jack’s is to improve the way men think, feel and act in their role as cancer caregivers.

During our conversation we discussed:

  • The unique needs that men have when serving as caregivers.
  • How Jack’s is an event-based group, providing an alternative to the traditional “sit in a circle” support group. These events have included ax throwing, fishing and hunting outings and golf games.
  • The bonding and deep conversations that naturally happen at these events.
  • The long-term goal to grow to a national organization supporting men who serve as caregivers for those affected by more than cancer, including Alzheimers, A.L.S. and Post-Traumatic Stress.
Links mentioned on the show

Contact Jack’s Caregiver Coalition via email – contactus@jackscaregiverco.org

Call Jack’s Caregiver Coalition – (612) 547-6929

Follow Jack’s on Facebook – https://www.facebook.com/jackscaregiverco

Follow Jack’s on Twitter – https://twitter.com/jackscaregiver

Follow Jack’s on Instagram – https://www.instagram.com/jackscaregiverco/

Follow Jack’s on YouTube – https://www.youtube.com/channel/UC8JT0S_wxclzLA7ElMW_WVA

WE Have Cancer Links Subscribe to the show:
Follow WE Have Cancer on Social Media

Like our Facebook page – https://www.facebook.com/wehavecancershow/

Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/

Follow us on Twitter – https://twitter.com/wehavecancerpod

Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

The post Jack’s Caregiver Coalition – Cancer Support For Men In the Twin Cities appeared first on WE Have Cancer.

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Charles Griffin Jr. Copes With His Stage IV Cancer Through Faith and Positivity

Charles Griffin, Jr. was diagnosed with stage IV colon cancer at the age of 32. Shortly after, he discovered the Colon Cancer Alliance through their Facebook group COLONTOWN. It opened his eyes to the wonderful community of support for those impacted by this disease! Read his story below. 

In my 34 years of life, I’ve earned a reputation for being a do-it-all kind of guy. I’m a husband to my college sweetheart Britni, a father to our four young daughters, a former college football star, an avid golfer, a motivational speaker, a YouTube entertainer and a novice screenwriter.  My name is Charles Griffin Jr. and I never thought I would be a stage IV colon cancer patient. I’m reaching out to you today to ask you to join me in supporting the Colon Cancer Alliance. Two years ago, I suffered excruciating abdominal pain while playing golf. With no family history and no additional symptoms, I had to beg my doctor for a colonoscopy which revealed a golf ball-size tumor in my colon. Further testing showed the cancer had metastasized with multiple tumors to my lungs and liver. I was in the prime of my life with a beautiful family and a budding career when I got the worst news imaginable. I had stage IV colon cancer. Shortly thereafter, I discovered the Colon Cancer Alliance through their Facebook group Colontown. It opened my eyes to the wonderful community of support for those of us impacted by this disease. But now that I’m two years into my treatment, I’m eager for a cure, or at least treatment options that aren’t as taxing on my body. That’s why I support the Colon Cancer Alliance and their deep commitment to colon cancer-specific research. The Colon Cancer Alliance has taken an even bolder stance on research going forward, committing publicly to grow its investment in colorectal cancer-specific research to $10 million by 2021. Research that could ultimately save my life. I’m proud that the Colon Cancer Alliance is on the cutting-edge, exploring immunotherapy, biomarkers and personalized medicine. In 2016 alone, the Colon Cancer Alliance, in partnership with the Never Too Young Coalition, funded two grants to help researchers explore young-onset colorectal cancer in an attempt to better understand why people under the age of 50, like myself, are being diagnosed with this devastating disease. This is where you come in. Through your generous donation, the Colon Cancer Alliance will be able to expand its funding for life-saving and innovative research, putting us closer to realizing our vision of eliminating colon cancer in our lifetime. With your support, there will be a future for me and the thousands of other colon cancer patients waiting for a cure. Please give today. I am the reason Tomorrow Can’t Wait. Click here to listen to me tell my story.

The post Charles Griffin Jr. Copes With His Stage IV Cancer Through Faith and Positivity appeared first on WE Have Cancer.

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