I posted this on Facebook earlier today, after I left the pharmacy. After a few requests to make it public so friends could share, I did—and it seemed reasonable, 12 shares, 45 reactions and 59 comments later—many shocked that this happens in Canada—to post it on my blog, too.
Do you know why Canada needs true national Pharmacare? I do every day, but especially on days like today where I leave $642.01 behind at the pharmacy counter just to function for a month, for just 4 of my 7 meds.
Did you know that despite being self employed and having two part time jobs, I can’t get insurance in Canada that covers medication for my preexisting conditions? Okay, actually I can, but it would cover $500 in medication: less than one tenth of my annual medication costs. Less than I just paid today.
I can survive without Vyvanse for my severe ADHD, but I can’t thrive. That’s the expensive one, and it’s not an enhancer, just a sort-of equalizer.
I require four different inhalers to manage my moderate-to-severe asthma. (One of those I’m on right now isn’t covered for asthma under Manitoba Pharmacare, so I pay out of pocket. Despite how well it works, I’ll switch it for another drug in not-winter to save money.) This is to BREATHE, which is not exactly optional.
Barring other radical intervention for my fibroids, I’ll need to stay on oral contraceptives for another several decades–and this is the only drug I may have a forseeable end date on. Despite my persistence, this is not optional. (And also, even if I were using them for contraception, does the province not realize paying for the pill for a decade is cheaper than probably just getting a baby born? Never mind making them a good human?)
Oh, and on top of the asthma medicine, I have allergic rhinitis, for which I consider the drugs “the optional ones”, but only because my sinuses aren’t super impairing–note, my doctors disagree with the optional-ness of daily nasal steroids, and support the use of singulair as an add on.
I am productive and mostly healthy because I have these medicines. I’m lucky I can afford the deductible which is thrown at people like me in a lump sum at the beginning of the fiscal year. I will have another pharmacy trip or two where I leave a not-insignificant amount of money behind. Just because I can afford this now–with minimal expenses, living with my parents–doesn’t mean I’ll always be able to.
Am I happy to have some provincial coverage? Yes. Do we need to do better? Unquestionably yes.
We need this for every person who needs to choose between food and medicine. For every person who cant financially handle a $500 emergency—40% of Canadians. For the parents who forgo their meds to let their kids play soccer–and for the ones who can’t play soccer because their parents need medicine. For every would be enterpreneur who could change the world but is stuck at a job because of benefits.
We need this to be a better Canada–that place where healthcare is a right because we take care of each other and we take pride in that. Except we stopped short, leaving patients who are still patients after they leave the doctors office often fighting to survive. We need more than “gap filling” solutions, we need Pharmacare for everyone, all the time.
Canada, we can do better.
Do you have a story about inadequate access to medication or medication coverage in Canada? Please SHARE IT so others know why this issue matters. One way you can share your story is to reach out to my friend Bill at FacesOfPharmacare.ca. You can also send your story to your Member of Parliament (find them here), and most importantly, VOTE in October for a candidate who supports a true national Pharmacare strategy for all Canadians.
It’s the first day of spring and, how they say, the anniversary of the first day of the rest of my life. There have only been three posts here between today and my last ADHDaversary—my fifth. And I can chalk that up, too, to ADHD.
The words from last year’s post are just as true today, except for some numbers that have increased by one. I’m still just doing my best to balance everything (which some days isn’t too good), to try to focus on what matters, to try to be mindful. Yes, ADHD makes that all a challenge, and general life makes it a challenge, too. That’s just how it works. We’re all constantly works in progress and I’m down with that (mostly. I mean, it can suck sometimes having to work at being awesome).
Every so often though, I’m reminded of why I share these stories online. And, without me realizing it this time until my ADHDaversary popped up on my calendar, just that happened yesterday. A friend from high school who I’ve recently re-connected with mentioned her current quest towards diagnosis of whatever may be causing her struggles with executive function (more about WTF that means here), and beginning ADHD medication. I threw her a blog link to my starting concerta post from 2013 and from a Facebook post she sent me a message, and a conversation began. (It also covered where has vegetarian/vegan gravy, because hello, you can’t expect anything to stay topical, who do you think we are? But I digress…)
Again, I was reminded that at least on occasion, people are actually reading this thing. I was reminded that you just never know who your story is going to impact. Not just in this case, but within a single-sentence story my friend told me:
“[My fiancée] originally actually told me about how you were instrumental in her getting her diagnosis and treatment!”
This is why the power of simply telling your story, sharing with people where you’re at is so important. Because someone who comes after you will also be there too, needing that reassurance that they are not the only one. No matter what that story is.
So, I will continue to trust the process that this, too, is getting to the right person, when they need it.