QBE Shootout Golf Tournament Raises Critical Funds for Childhood Cancer Research
The 2018 QBE Shootout golf tournament brought together some of the world’s best golfers for a PGA Tour team competition and a chance to raise critical funds benefitting our mission to end children’s cancer. Joseph Campione, CureSearch superhero and Ultimate Hiker attended the event representing all our smallest cancer-fighting superheroes. Stories like Joseph’s are the inspiration behind this charitable event.
Joseph Campione was born with a different kind of strength than most kids – he was born with rhabdomyosarcoma, a type of bone cancer. At just 3 weeks old, Joseph would start chemotherapy and radiation treatments, fighting for his life every single day. He would go on to spend his first birthday in isolation to protect his immune system, which was severely compromised by his treatments.
The first 18 months of his life were spent fighting cancer before he was finally declared cancer free. The effects of his cancer journey were long term; Joseph still struggles from the side effects of his treatments even as he celebrated his 12th birthday this year.
Joseph and Greg Norman
“I wish that no child should have to go through this because the effects still affect me today. No person should have to go through what I went through in life because even after the doctors say that you are discharged you are never discharged,” said Joseph.
Joseph’s family supports CureSearch because they too believe that finding better, less-toxic children’s cancer treatments is crucial so that kids can both survive and thrive after battling childhood cancer.
Joseph with Darius Rucker
Founded in 1989, the QBE Shootout was started by World Golf Hall of Famer, Greg Norman. Since then, the event has raised more than $13 million for CureSearch and kids like Joseph, as well as other charitable causes.
We are incredibly thankful to continue to partner with QBE Shootout and Greg Norman on this annual event.
Raleigh kids train to take on the Ultimate Hike to honor their cancer-fighting superheroes and sisters
Maggie Morton, 11, and Daniel Griffith, 12, have already made their 2019 New Year’s Resolution – to hike 28.3 miles in one day. Maggie will be hiking in honor of her sister, Violet, who was diagnosed with hepatoblastoma before her first birthday. Daniel will be hiking to honor his sister, Eve, who was diagnosed with bilateral Wilms’ tumor at age 2. Maggie will be completing the Ultimate Hike for the first time and Daniel will be making his first trek without a parent on the trail.
“Eve’s journey has definitely helped shape Daniel into the empathetic and selfless young man he is today, someone who doesn’t think twice about finding out how he can help others,” said Daniel’s mom, Christy. Daniel is in the 7th grade at Lufkin Road Middle School and enjoys camping with his Boy Scout Troop and volunteers to feed the food insecure.
“Growing up around Ultimate Hike, Maggie has volunteered and watched her parents and sister hike, so we’re excited she is going to be part of it too,” said father, Chris, who is one of the coaches for the Triangle training team. Maggie attends Sterling Montessori and loves art, singing, acrobatic dance, and playing in the woods.
Today both Violet and Eve are doing great, but their entire families are aware of the need for research that will lead to more cures and less side effects for survivors.
Information meetings for the 2019 Foothills Trail Ultimate Hike will be held in January. To RSVP for a meeting, or to learn more, please visit www.ultimatehike.org/foothills.
In its ninth year, CureSearch’s Ultimate Hike is the only national hiking fundraiser dedicated to fighting children’s cancer, and the original 28.3 mile event on the Foothills trail. The Ultimate Hike program has raised more than $5 million for children’s cancer research to date. Support programs like these and donate today.
Resolve to make it your best year yet by training for the ultimate adventure with CureSearch! The CureSearch Ultimate Hike is the only national hiking fundraiser dedicated to fighting children’s cancer. This fully supported adventure of a lifetime is your chance to make 2019 your most memorable year yet.
Here are five ways to meet your resolution with the CureSearch Ultimate Hike:
Get more exercise. Are you one of the 65% of Americans who plan to exercise more in 2019? Then plan on joining CureSearch’s Ultimate Hike program and train for a 20-30 mile trek in one day. Helping end children’s cancer is great motivation to get moving!
Spend more time with family. A day in the woods with a sibling, spouse or child can lead to a lifetime of memories and change your relationship in the best of ways.
Make new friends. You’ll make lifelong friends on one of the many beautiful trails across the country. Get started by visiting ultimatehike.org and signing up for one of our info sessions.
Get outside more. Spending time in nature reduces stress and with Ultimate Hike it also helps drive treatments and cures to a child fighting cancer. Whether it’s the mountains on the Foothills Trail or the fall foliage on the Tecumseh Trail, there are gorgeous views waiting to be seen. Check out our seven Ultimate Hike locations.
Make a difference. One of the best ways to change your life is to make a difference in someone else’s! It’s time to lace up your hiking boots and make an impact for the 43 children diagnosed with cancer each day.
‘Tis the season for giving – giving hope to all those affected by childhood cancer. All throughout the year, Ella Doll, the bald friend of Barbie®, helps children understand the hair loss that is common among cancer patients. Through a partnership with Mattel, CureSearch is able to give hope to kids with cancer by spreading good will and cheer at no cost to the family.
Taylor, age 4, diagnosed with acute lymphoblastic leukemia
CureSearch for Children’s Cancer not only funds critical childhood cancer research, but also provides families with the resources to help handle a cancer diagnosis and opportunities to lift the spirits of those affected by a diagnosis.
CureSearch Walk participant enjoys her very own Ella Doll
Navigating the holidays can be difficult for anyone, but especially those dealing with the realities of cancer. For CureSearch, this holiday season is about giving hope – the hope that every childhood cancer patient can live the long, healthy life they deserve. Join CureSearch in this mission to spread hope and get an Ella Doll for your cancer-fighting superhero.
CureSearch able to provide Ella Dolls to the following: children affected by childhood cancer, siblings of children affected by childhood cancer and children whose parent/guardian is affected by cancer in the United States. Consider supporting our programs like the Ella Doll with your donation today.
We heard from a couple different families who received Ella dolls for their child in treatment, here’s what they had to say:
I ordered the Ella Doll a few weeks after my daughter was diagnosed as a Christmas gift. She only recently lost her hair, and so now more than ever it is important to have this doll around. Thank you for this gift for her. – Theresa, St. Paul
I LOVE THEM!! The gals that we have given them to are so thankful and it has helped throughout their treatment. Especially during the time that they are walking through the process of losing their hair! – Lisa, San Diego
Sydney was just 5 years old when she was diagnosed with Wilms’ tumor – a type of cancer that starts in the kidneys. Sydney immediately started on a grueling treatment process that would span over multiple years. However, she did not let it take away from her happy and positive spirit that touched everyone around her.
Sydney’s first round of chemo was proving to get rid of the cancer, but after her 12th cycle of chemo, the doctors ran a scan and found out she had relapsed the first time. The doctors started a new form of chemo treatment and prepared Sydney for a stem cell transplant. The stem cell transplant was initially successful, but after just one year, she relapsed again. They did another round of chemo treatments and for four months she was cancer free before the cancer returned and doctors told her family that she was out of options.
Sadly, Sydney passed away in February of 2018. Sydney’s mom remembers her as an extremely loving child. She loved music and arts and crafts and when she was told that she only had months to live, she made a bucket list. The number one thing on that list was to collect 1,000 toys for kids in area hospitals. She would go on to collect more than 4,600 toys!
“Childhood cancer isn’t like adult cancers. Without organizations like CureSearch, who actually fund children’s cancer research, there will never be better treatment options or a cure,” said Dana, Sydney’s mom.
Help us give hope to families like Sydney’s – the hope that better treatments and cures are possible for our smallest cancer-fighting superheroes. Donate and help fund critical childhood cancer research today.
Harlan, was an active and happy toddler when his world changed forever. At just two-years-old, Harlan was diagnosed with a rare brain cancer for which there was no cure.
With no new treatments in over 20 years, Harlan bravely endured standard therapies – radiation, chemotherapy and brain surgery. Yet even in pain, his infectious giggle and big smile captured the hearts of everyone he met.
For his family, daily life revolved around Harlan’s cancer and holding him tightly as he courageously fought his battle for nearly two years. And then, just before his 4th birthday, Harlan lost his fight. Harlan had spent half of his little life battling cancer.
Sadly, we know Harlan was not alone. Each day, approximately 43 kids are diagnosed with cancer and 43 families’ lives are turned upside down as they embark on a new life affected by this terrible disease.
Harlan’s family vowed to do everything in their power to change this outcome for other kids, to eliminate the pain of cancer and bring hope to families affected by it. They became involved with CureSearch and rally annually to raise funds to support childhood cancer research.
Join Harlan’s family and CureSearch to help make this a season of hope for every child and family experiencing a heartbreaking cancer diagnosis. Give for kids like Harlan, and for the hope that together we WILL change the future by advancing new, less-toxic childhood cancer treatments and cures. Make your end of year contribution today.
Three ways to give holiday hope to kids with cancer
At CureSearch for Children’s Cancer, this holiday season is about giving hope – the hope that every childhood cancer patient can live the long, healthy life he or she deserves. That’s why we’re sharing three ways you can help give hope to kids with cancer including:
Start your own Facebook fundraiser and encourage holiday donations towards our mission to end children’s cancer.
Use your klout to be a CureSearch digital advocate – follow us on social media at the links below and share our patient stories, resources, asks for donations and more.
‘Unimaginable battle’: 12-mile York County hike helps fight childhood cancer
(www.heraldonline.com) Hikers will lace up their boots to trek 12 miles Nov. 17 at Baxter Village Trail in Fort Mill to honor and remember local children affected by childhood cancer. It touches particularly close to home for one York County family.
“Our main concern is knowing that childhood cancer research is vastly and consistently underfunded,” said Jonathan Sullins. “And our goal is to raise as much as awareness and money for that and to help out families.”
“Babies don’t get cancer, what is going to happen now?” were the words of Cash’s grandmother when at just 7 months old he was diagnosed with stage two hepatoblastoma, a rare type of liver cancer. While Cash was too little to understand what was happening, the rest of the family was confused and devastated, hearing the life altering and heartbreaking words, ‘your child has cancer.’
Cash underwent a grueling treatment process – starting with a procedure to remove part of his liver just three days after his diagnosis. He was scheduled to start chemotherapy a week later when he went into septic shock following an infection in his drain tube. Doctors were unsure if he would survive. Cash was intubated for almost a week, his condition was touch and go. Fortunately, during the next few days he was slowly weaned off ventilation and eventually the pain medications and antibiotics as well.
Cash’s journey has taught his family that life is short and precious and to always cherish the time you have with kids. His family hopes that through the childhood cancer research programs funded by CureSearch, no parent will ever have to hear those four words that forever changed their lives: ‘your child has cancer.’ They also hope that the world will start acknowledging that children with cancer are just as important as adults.
“My hope is that everyone would read our posts, listen to our pleas for help and start acknowledging that children as just as important as adults with cancer. Please don’t look away, if put in this same position, you would want everyone fighting for your child, too,” said Lisa, Cash’s mom.
Cash, an identical twin and Elmo lover, is an amazing little guy who fought so hard to get where he is today. Consider donating today to help children and families like Cash’s.
CureSearch Industry Advisory Council member Davy Chiodin on why Acerta Pharma supports childhood cancer research
Davy Chiodin speaking at the CureSearch Catapult Summit
Acerta Pharma, AstraZeneca’s Hematology Center of Excellence, is committed to advancing the science of technology to deliver life-changing medicines to patients most in need, and we’re proud to call them a strategic partner. Learn more from Davy Chiodin, PharmD, CureSearch industry advisory council member and vice president – regulatory science, quality assurance and compliance at Acerta Pharma.
Tell us about Acerta/AstraZeneca and its connection to childhood cancer/research.
Acerta Pharma is AstraZeneca’s Hematology Center of Excellence, an integral part of AstraZeneca’s oncology portfolio and cornerstone of the Company’s dedication to fight cancer, both in children and adults.
The AstraZeneca group is increasing its efforts to change the way pediatric drug development is approached internally, and is actively engaging with external stakeholders to contribute in the development of potentially important drugs to pediatric patients.
Blood cancers being the most common cancers in children, pediatric research is close to Acerta’s heart, as AZ’s Hematology Center of Excellence.
What is Acerta/AstraZeneca’s mission?
AstraZeneca and Acerta, are committed to advancing the science of oncology to deliver life-changing medicines to patients most in need. AstraZeneca put in place a combination-focused pipeline with an aim to help address unmet clinical needs in a host of cancers. We are motivated by a dedication to the scientific discovery and collaboration that will one day help eliminate cancer as a cause of death.
Why do you and/or Acerta/AstraZeneca support CureSearch and our mission to end children’s cancer?
CureSearch provides Industry, academia, patients advocates and regulators a true opportunity for connection, as well as an effective platform to review and fund some important research proposals. This chance to have all players at the same table is crucial to advancing the field.
Why is children’s cancer research important to you?
Children’s cancer research faces different problematics than adult’s. It is important to raise and address those differences, so that ultimately, no family ever have to face the loss of a child.
What is your hope for the future of childhood cancer?
My hope is that all the parties involved in getting drugs to pediatric patients can work pre-competitively to generate the data that matters, and advance the field together. This way we might be able to talk about childhood cancer as a thing of the past. That’s the real goal.
What else would you like the public to know about you or your work with CureSearch?
One can argue that, in years of life lost, childhood cancer is more impactful than lung cancer, one of the most common adult cancers out there.
Folks involved in the fight against childhood cancer are truly passionate about ending it, and we’ll welcome any opportunity to chat, educate, collaborate, through CureSearch and beyond!