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Let’s catch up, shall we? I haven’t done a ‘Life Lately‘ posts since I was having my wound dressed each day. That feels like forever ago but it has only been a matter on weeks. So, let’s catch up on everything medical that’s happened since my Vedolizumab at the end of May. A general overview of June can be found here. The whole of June can be split into two camps – feeling well enough when waking up that I feel productive and motivated, and then feeling unwell on waking up that I have to spent the day recovering from whatever…

The post Life Lately | Surgical & IBD Update appeared first on Young Crohn's.

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One of the worse things about IBD is having unexpected flare ups. You could be perfectly find and then out of nowhere, a deep burning pain starts to build. It’s uncomfortable, unpredictable and can last anywhere from minutes to hours. The best we can do is try to always prepare for it – having heat wraps, painkillers and medications, safe food or drink options, and natural remedies on standby. And as much as it sucks, try to remind yourself that what goes up must come down. I’ve lived with Crohn’s Disease for almost a decade now and I still sometimes…

The post High and Low Symptom Days appeared first on Young Crohn's.

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How did June’s goals go? Here is what I set myself for the month of June: GOALS: Do one task every day. Do something every day I didn’t do the day before. Keep up my real and honest account of wound recovery. TASKS: Make a start on a new project proposal. Not neglect journaling if I am not blogging. Look after my personal health. Let’s recap… Let’s begin with how Month Three of Recovery went. The beginning of the month was met with stronger painkillers to help settle down the pain in my new perianal wound. As luck would have it,…

The post July Goals appeared first on Young Crohn's.

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Month Three.   Stoma wise; I’ve had abit of a rough time with my ostomy. In the days and then weeks following my Vedolizumab at the end of May, I was experiencing very loose output and multiple empties. I had to rely on gelling solutions to get my output thicker so I could manage it in the bag itself and when emptying. It was exhausting. Added to that my IBD was flaring slightly, I found eating hard due to so much nausea. Thankfully, that has now resolved itself but it’s brought alot more sore peristomal skin in my usual place…

The post June 2019 appeared first on Young Crohn's.

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Okay. So how did we get to the end of June already? We are half way through 2019 already. Already! I haven’t really had a chance to reflect on the goals I set myself back in January. You might be wondering, why reflect after only six months? Well, performance reviews in employment take place monthly, quarterly, and six monthly; why not personal reflection? I’ve spent the first half of 2019 really unwell and needing surgeries. I can see alot of negatives within that but let’s flip that on its head and find the positives through the struggles. I’m going to be using…

The post Reflecting on 2019 – The Six Month Update appeared first on Young Crohn's.

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Why am I using them? Back in late February, I went through a phase where my barrier product wasn’t giving me the protection and security I’d been used to. I started to experience more itching under my baseplate – a sure sign of an impending leak and definitely some skin irritation – and no amount of minor adjustments to my template or routine would fix this: I had to admit defeat and try a new barrier product. I went through a couple of samples of traditional barriers but each one had a downside. Some were too tacky to apply my…

The post REVIEW: Pelican Platinum with Vitamin E Barrier Range appeared first on Young Crohn's.

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How did May’s goals go? Here is what I set myself for the month of May: GOALS: Recover. See more healing of my wounds. Have a solid appointment for my surgical follow up, May 14th. TASKS: Try to complete 50% of my ‘long-term’ to do list. Continue the honest of post op recovery online – social media and blogging. Possibly return to work, completely dependent on my perianal wound.   Let’s recap… Let’s begin with how Month Two of recovery went. I started the month on antibiotics for two weeks. I had my Vedolizumab rescheduled for the second time because my…

The post June Goals appeared first on Young Crohn's.

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Title Stoma wise; IBD wise; Advocacy wise;  Life wise;   Here is what I wrote about in May: Until next time,

The post May 2019 appeared first on Young Crohn's.

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Reality check: I sometimes I push myself. Too hard. I do things beyond what my pain level will allow me. I end up in more agony because I do things that I shouldn’t, or should just leave well alone. But I don’t listen, silly me. To some extent, I think most people with chronic illnesses do this. For some it’s doing what is necessary and paying the price the day/s after; knowing it was worth it. It could be attending an event, being social, travelling or simply doing the household chores. “Pushing through” was something I did alot when I…

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IBD: TAKING CHARGE OF YOUR DISEASE Living with IBD can be difficult sometimes with unpredictable episodes and regular hospital visits that disrupts normal daily activities. However, if the symptoms are well managed, people diagnosed with IBD can live normally with the condition. IBD has been a topic of interest for many people and has become a burden for ages since what specifically causes it is actually not known. So much noise is made about diagnosis and treatment, that Little attention is given to how people diagnosed with this condition are able to accept and live with it for the rest…

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