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It isn’t easy being a hospital patient. First of all, you’re not well, otherwise you wouldn’t be there. But when anyone (including the medics) asks how you are, you hear yourself answering “I’m fine, thank you”, when what you really want to do is yell, “I’m feeling really bad.” Secondly, you’re away from home, everything is different to what you’re used to and after just a few days you can feel yourself becoming institutionalised and letting everything happen around you rather than to you. I
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Humour can be found in any situation. Honestly, it can, although sometimes you may have to stretch the parameters of what is normally classed as amusing. This story started with a yawn followed by eight days in hospital and then home again, with ongoing antibiotics and opiates. Is there humour in that? Let’s see… Starting point John and I had both noticed the excessive yawning. Then I started dropping asleep. Anyplace, anytime, anywhere. One day I was trying to have a sensible conversation
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Do I have MS? Am I active enough? Do I like chocolate? It may surprise you to know that these questions are related. My answers are: yes, I have MS, no, I’m not active enough. And ‘do I like chocolate?’ is a really silly question! So why am I asking these three questions? Well, it’s that time of year again when I do my bit to raise awareness of MS. MS Awareness Week  This year, the event will be running in the UK from Monday 22nd to Saturday 27th April. (Well, it could be Tuesday 23rd as there
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There’s no getting away from it. We all need to to go the loo, probably several times a day. So there I was, enjoying a chat and a cuppa with Ann, my friend and neighbour, when I realised we were talking about toilets. And why not? Ann is currently choosing a bathroom suite and was telling me about the amazing range of choices on offer. Well, you know what I’m like, I started to wonder if my choices are the same… Same but different Toilets offer a choice between wall or floor mounted, high or
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I expect you all have a doctor who looks after you. A General Practitioner who can treat a whole range of symptoms and conditions but who sometimes has to refer you to a consultant for more specialised advice. My miscellany of medical conditions means I have a General Practitioner and separate consultants for all my various illnesses. So who manages my health? is it the GP? Is it (one of) the consultants? Or is it me? First, heal thyself I once saw a locum (the spellchecker kept changing that
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I need to start by being humble (no sniggers, please…). In the year since I launched my website I have picked up all the Awareness Days I could find and written about them. Well, last Saturday was Disabled Access Day and I missed it! For this I’m sorry but, at present, I’m struggling to focus on anything cerebral. I’m blaming it on changes to long-term medication and zero hours sleep for a few nights. Yes, zero.  Disabled Access Day You may not have heard of Disabled Access Day - to be honest,
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Kidney disease is a silent killer. There is no cure. In the UK there are three million people with chronic kidney disease and worldwide the number is a mind-boggling 850 million. Okay, so I hope that’s got your attention… World Kidney Day is this coming week, on Thursday March 14th. It is an annual, global awareness campaign to help us understand the importance of our kidneys. Or, as it was somewhat dramatically explained to me - when your kidneys die, you die! All across the world there will
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‘I don’t like taking tablets’. How often do you hear this? Or ‘I stopped taking those tablets the doc gave me as they didn’t suit me’? This might apply to you but, if so, please don’t say it to me! I need to take a lot of medication - 35 tablets a day covering the alphabet from A to Z (Alfacalcidol to Zopiclone).  Of course I would rather not take so many drugs and of course I don’t like the side effects but, you know, they’re all prescribed for a reason. My medication was changed for the
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Hindsight is a wonderful thing. Foresight is also a wonderful thing but it seems to be sadly lacking when it comes to strategic plans for our National Health Service. Don’t get me wrong, I am a huge fan of the NHS but that doesn’t mean I can’t see where things need improving. And I’m tired of the NHS being described as ‘in crisis’.  Changes are needed and changes we will have following the implementation of the latest ten year plan announced last month. The details are still under wraps but I
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A soap opera! That’s what my life has become, with several episodes every day. And it’s because of my Multiple Sclerosis. I hadn’t realised this until I was reading about how MS has been depicted in the most popular soap operas, every episode watched by millions of people. I thought this must be an excellent way of telling viewers what it’s like to have MS and how it can develop. Then again, maybe it isn’t… Colin The first character I can find to be diagnosed with MS was Colin Russell in
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