The Hepatitis C Trust is the only UK charity for hepatitis C. For patients by patients. It is an entirely patient-led and patient-run organisation. The Trust's mission is to reverse the rapidly increasing death toll caused by hepatitis C in the UK until no-one dies from this preventable and treatable disease and, ultimately, it is all but eradicated in this country.
Day 5 - Infected Blood Inquiry Hearings – (7th May 2019 London)
Today we attended and heard the stories of three brave women either infected or affected by hepatitis C caused by contaminated blood in the course of differing hospital procedures, all extraordinarily different and yet with the same themes emerging that are common to all of us who have lived with this illness.
Today we attended the morning session where we heard evidence which was brave, compelling and harrowing. Both evidence sessions were very different, Caroline who was infected after September 1991 when blood should have been screened and Stephen, a haemophiliac who shared his story, including his childhood at Treloar School.
Our apologies to any of you calling our helpline at present or waiting to hear back from us from earlier messages. We are extremely busy as a result of publicity around the launch of the Infected Blood Inquiry.
We will of course get back to you as soon as possible, so please do leave your contact details so we can call you back, or email firstname.lastname@example.org and we will be in touch.
Our Head of Support Services, Samantha May, has been working alongside members of the Infected Blood Inquiry over the last few months to assist them in gathering evidence and identifying people who have been infected and affected via our long running national patient-led helpline.
She attended the first day of the Inquiry this week and writes about the electric atmosphere in the room and the shocking initial testimonies.
The Hepatitis C Trust has welcomed the announcement of NHS England’s historic hepatitis C ‘elimination deal’, but called for the deal to be supported by a Government-backed elimination strategy to achieve the target of eliminating the virus by 2030 at the latest.
At the end of this month, the first public inquiry into the infected blood scandal will begin to hold public witness hearings. Having campaigned for a full-scale public inquiry into the scandal for decades, individuals, public bodies and charities alike will hopefully get the answers they are owed at last.
The Hepatitis C Trust has today launched its 2019 Local Elections Patient Activist Toolkit, a guide to campaigning on hepatitis C by ensuring your local council candidates commit to tackling the virus.
On Thursday 2nd May, elections will take place in around 270 local authority areas in England and all 11 local councils in Northern Ireland.
The key national report on the UK’s progress towards eliminating hepatitis C has been published by Public Health England. The annual report, ‘Hepatitis C in the UK: 2019’, sets out that although a lot has been achieved towards the World Health Organisation’s target of eliminating hepatitis C as a major public health threat by 2030, there is still much to do.
Please note that The Hepatitis C Trust helpline will be closed from 4.30pm on Wednesday 3rd April until 10.30am onWednesday 10th April. All callers who leave a message will be called back, or you can email email@example.com and someone will get back to you.