Loading...

Follow Girl with MS | Tips & Tools for Thriving with M.. on Feedspot


Valid
or
Continue with Google
Continue with Facebook
I was just diagnosed with MS.  Now what? 

There is so much to cover with this title which is why my new book is in production!   But in the meantime take a look at these comments and tips.  Most of them are linked to articles that I have written as a Patient Expert, Health Journalist and Life Coach.  

Become an MS Warrior



1.  Take a deep breath.  It will all be OK.  You are in for a change, but the levels vary for everyone.  Just know that things will get better and life will continue.  MS hits everyone different.  It will be important to be very compassionate toward yourself and your life as this disease unfolds.    

1.    Find a good neurologist – an MS specialist.
2.    Understand you are going through a change.
3.    Emotional balance may seem to slip away – seek help. 
4.    Talk with your MS Dr. regarding Disease Modifying Therapies (DMTs)more
5.    Love YourSelf!  Its good for MS!

2.  Modifiable risk factors:

MRF's are choices we have control over. Things we can start or quit depending upon our needs.  While none of these in particular cause MS, there is substantial proof that the following actions are beneficial for MS patients:

1.    If you smoke cigarettes, quit. 
2.    Reduce, respect or quit alcohol.  
3.    Limit salt intake.
4.    Reduce, respect or quit caffeine
5.    Do not use artificial sweeteners such as aspartame  (excitotoxins)
6.    Take additional Vitamin D(if low)
7.    Take Vitamin B12 (if low)
8.    Take an NRF2 activatorsuch as Protandim™ to fight oxidative stress. 
9.    Eat a healthy diet.  Nutrition is everything!
10.Eat a diet high in fish
14.High-dose biotinand potential for MS
15.Creating your own health:  using diet and nutrition to help MS



3.  Alternative therapies that might interest you:

1.    Yoga
3.   Massage



4.  You may find these fact-checked articles and “MS connections” interesting:

1.    MS and Epstein Barr Virus
2.    MS and antidepressant
3.    MS and decision-making
4.    MS and Sunshine
5.     MS and stem cell treatment
6.     MS and brain stimulation
7.     MS and horseback riding
8.     MS and laughter therapy
9.     MS and sense of smell
10.  MS and Exercise



5.   Life-skills.  Tips  and articles.  

1.    Keep a health journal using Health Storylines APP
2.    Start a hand-written journal.  Handwriting is great therapy.  
3.    Build your support team.  Write down who is on your “Team”:  friends, family, doctors, pharmacist, nutritionist, massage therapist, yogi, God, whomever works for you. This list will grow and evolve during your MS.  
6.    Why me?  3steps to managing your angerwith MS.
7.    For better health, watch your words.  
8.    Can video games help MSsymptoms?  
9.    8 cooling and healing rituals for summer.
10.Get outside for 5 stress-busting exercises.  
11.Superhero saladrecipe for summer
12.3 recipesto help transition into spring. 





Contact me for any question!

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Time to "Make a Change - Make a Difference"!

#selfcareMVMT
Challenge #12

Turn a negative into a POSITIVE!



For one day or five days or everyday, start turning your negatives into a POSITIVE!

This can be one of the toughest challenges yet, but I know you are ready for it.


  1. Wellness begins in the heart and with a positive attitude.  
  2. We often dwell on the negative, forcing ourselves away from the beauty of what might really be happening.  
  3. Problem is we have our own expectations and agendas which may not flow well with others.  
  4. Remember to let go, let God...
  5. Know your limits and controls, learn the serenity prayer.        
  6. Many times, a negative situation will be something you look back on and laugh.  
  7. Remind yourself that energy is limited and best spent on positive living.  
  8. Staple it shut, throw it away, and smile as big as you can!   
  9. You've got this!  


Take action toward wellness with the Health Storylines App by recording your feelings in the MyJournal.

SERENITY PRAYER
While often associated with AA, this prayer is one that every person should learn and abide by.  Our lives are better because of it: 

God grant me the serenity
to accept the things I cannot change; 
courage to change the things I can; 
and wisdom to know the difference.



Time to Bloom!



"I am worthy of a healthy life"

1.     Carefully and with intention be aware of negative energy and turn it into a positive. 

2.     When positive becomes habit, living with MS will be better.  

3.     Make a change and help yourself to a healthier life. 

4.     Record feelings in My Journal

5.     Share the moment:  #selfcareMVMT


We waited months for schedules to mesh so we could pet an owl, but the owl had to go to school!  So we got photobombed anyway.  #takeTHATms! 

Let these intentions carry you away into a beautiful positive life.  

SHARE:

Instagram – Facebook – Twitter

Because together we’ve got this!

#challenge #dowhatyoucan #spon #takethatms 

#selfcareMVMT



Smile at the World!
Register at the Health Storylines App,  
use the My Journal tool.

 #selfcareMVMT



brought to you by Caroline Craven, GirlwithMS, Self-Care Catalysts and Health Storylines

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Wow. What a great memory from last year!  Hope you’ve gotten your tickets for 2018 as I heard it’s sold out.  I bet they’ll make another $2M at this one!

Gala 2017

Belle of the Ball

                 at least for one night.
MS Advocates: @Longhaulpaul & @thegirlwithMS
And boy was it worth it!

In just two weeks, Gala ticket in hand, it became game on for this girl with MS.  Complete with orange carpet, the 24th Annual Race to Erase Gala is an event not to be missed.  From Hollywood movie stars to MS Celebrities, the Beverly Hilton was packed with folks wanting to make a difference.  And make a difference they did!

MS Advocates: Caroline Craven & David Osmond
A variety of celebrities attended the Gala, including Marg Helgenberger, emcee Kathy Griffin, Medal of Honor awardee Jamie Lynn Sigler, David Osmond (living with MS), Kris Jenner, Paris Hilton and so many more wonderful supporters of the race.

The actual money raised for Nancy Davis' Center without Walls MS Research is not yet known, but one car went for $290,000 at the silent auction.  Wowza!

My escorts were amazing. As the MS took hold of my legs and made me weeble and wobble, out of the blue came an arm and a voice, "Here, walk with me."  Whew!  I thought for sure I'd topple over at any moment.  And who was this voice?  None other than MS advocate Paul Pelland, aka @longhaulpaul.  Well this was convenient.  Two MS advocates walking the orange carpet.  Woot woot!  Yes, we are in La La Land.

And then walks down David Osmond, who I got to meet on the phone during an interview a few months ago.  But we had not met in person. Finally!  And well worth the wait.  David who lives with MS does so much to help build awareness.




When Chicago is playing for a private party at the Beverly Hilton a good time can be expected.  Add the bonus of Quincy Jones, David Foster and Siedah Garrett.  It was the tops!



Not only does this Race to Erase MS raise awareness for MS but it raises a significant amount of funds for MS research. On Saturday, the day after the Gala, there is an MS Forum which has become one of my favorite events. Ever.

The MS community is family.  The hope and inspiration found at the MS Forum is contagious and is greatly appreciated by this MS patient.

A lot of great information was shared by the MS Forum.

The panel included medical specialists:  Peter Calabresi, M.D., Adam Kaplin, M.D., Ph.D, David Hafler, M.D., Daniel Pelletier, M.D., Nancy L. Sicotte, M.D., Emmanuelle L. Waubant, M.D., Ph.D., Howard Weiner, M.D., Vijayshree Yadav, M.D.

Those living with MS on the panel included Nancy Davis, David Osmond and Arnetta Hollis.

Claudia Hurry Hill, living with MS for over 32 years, was the moderator.  More on the forum to come.
____

The Gala was quite amazing. And prepping for it was even more entertaining. After arriving at the Beverly Hilton we ventured over to Neiman Marcus for their amazing popover, consommé and glass of rose before moving on to the Chanel counter to replace some make up. Natasha from Chanel worked her magic and provided my face with a much needed professional touch as well as replenished some product for later use.

In prepping for the Gala, much fun came from the dress shopping and the hunt for accessories.  Just the right look was of importance.  Orange is the color of MS but it's not necessarily the best color for me.  Also, when one is searching the internet for gowns and evening wear, there are a lot of choices.  Especially when one starts looking at designer and/or vintage gowns. But where was that one dress that would work the best?

Several friends and family in the industry suggested looking at Rent the Runway.  After a simple search, several orange gowns were found. And while my body is usually quite easy to fit, the thought of not being able to try it on was a concern.  So a dress that fit easy and was soft and fluid would be perfect.  And a dress in a softer shade of orange would be even better.  It did not take long for RTR to produce the perfect dress. Easy to wear, and comfortable!  Thank you RTR and Solani dresses for this optimum look.

Once the dress was chosen, time for the accessories.  OK, if the budget matched the choices, I could have spent $1000's of dollars getting ready for this gala.  Tinsel town was on my mind. But instead went for a slight bohemian feel, allowing for fun, costume jewelry.

A friend and I hit the stores. She's also my stylist and I highly recommend her.  Contact me and I'll connect you two.  We hit almost every TJ Maxx, Ross, Zara and H&M within a ten mile radius and found everything we needed and wanted.  We even found back-up options and a back up dress incase they are needed.  Whew.  This is coming together quickly and easily.

The Gala was extraordinaire!  Of course staying at the Beverly Hilton is a treat in itself.  Love this place.

After a lovely day, and an even lovelier evening of food, drink and good cheer, this Girl with MS is inspired and energized.  

I can not thank Nancy Davis enough for all she does to help everyone with MS.  The research provided by her fundraising is invaluable to our wellbeing.  

#takethatMS 



Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
It's April and what better way to kick off spring then to have a #takeTHATms contest.  


I Love this time of year - Easter, spring, renewal, hope.  I find it a lovely way to say #takeTHATms!   In order to do that best this year, opted for bunny ears and a trip to Descanso Gardens to see spring in full color.

The bunny ears are keeping me focused during this busy time.  Seems like there is so much going on!  Life is at it's fullest and the days are getting longer.  Being silly helps me to stay positive.

I've been needing a new ID bracelet showing that I have MS.  Saw these bracelets from MyID the other day and was like, man, I've got to get me one of those!

They're really cool looking, and look basically indestructible.   I'm excited to get mine in the mail.  But it was difficult to decide which color and design to get.  Many cool options.


I spoke with MyID and they are giving one winner a bracelet of their choice as a way to say #takeTHATms.  

 Enter here for a random drawing to win a free MyID medical bracelet.  


There are two basic designs, the MyID Hive and the MyID Sport.  And then there are additions you can make, customization.  Color, sliders, information.  Sliders are these little metal ID tabs that slide onto the bracelet.  Especially important if you suffer from more than one illness, which many of us do.




And all you have to do is enter your name and email at their website here.

Your emails will only be used for the random drawing, then they will be destroyed.  You are not entering any mailing list nor will you receive anything from us.   

Winner will be drawn APRIL 17! 

Thank you MyID for donating one bracelet for our contest.  

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Time to "Make a Change - Make a Difference"!


#selfcareMVMT
Challenge #11

Help someone feel better -  MIND YOUR P's and Q's!





For five days choose to show good manners!

Respect others, respect yourself.  

Remind yourself that you are worthy of a healthy life.

Wellness begins in the heart. 

It feels good to be respectful and thoughtful.  To not take things for granted.  

 You did not do anything to deserve this illness.  But there is something you can do to change it.  You can take control.  You can practice "Self-Care".

Take action toward wellness with the Health Storylines App by recording your feelings in the MyJournal.






"I am worthy of a healthy life"

1.     Carefully and with intention be aware of saying Please and Thank You. 

2.     This helps show respect for others and for you.

3.     Make a change and help yourself to a healthier life. 

4.     Record feelings in My Journal

5.     Share the moment:  #selfcareMVMT


After taking good care of myself -
Out on an adventure!


Let these intentions carry you away into a beautiful positive life.  

SHARE:

Instagram – Facebook – Twitter

Because together we’ve got this!

#challenge #dowhatyoucan #spon #takethatms 

#selfcareMVMT



Smile at the World!
Register at the Health Storylines App,  
use the My Journal tool.

 #selfcareMVMT



brought to you by Caroline Craven, GirlwithMS, Self-Care Catalysts and Health Storylines

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Time to "Make a Change - Make a Difference"!


#selfcareMVMT
Challenge #10

Help someone feel better -  GIVE a COMPLIMENT!

For five days choose to say one thing nice to your friends, family and strangers!

Remind yourself that you are worthy of a healthy life.

Wellness begins in the heart. 

It feels good to receive a compliment.  So now it’s time to return the favor.  

Maybe you like something they’re wearing.  Maybe it’s the way they smile or are kind. Maybe it’s something nice they did.

 You did not do anything to deserve this illness.  But there is something you can do to change it.  You can take control.  You can practice "Self-Care".  

Take action toward wellness with the Health Storylines App by recording your feelings in the MyJournal.




"I am worthy of a healthy life"

1.     Carefully and with intention be aware of something to compliment. 

2.     Then do it!  Say something nice. 

3.     Make a change and help others feel better. 

4.     Record feelings in My Journal

5.     Share the moment:  #selfcareMVMT






Let these intentions carry you away into a beautiful positive life.  

SHARE:

Instagram – Facebook – Twitter

Because together we’ve got this!

#challenge #dowhatyoucan #spon #takethatms 

#selfcareMVMT



Smile at the World!
Register at the Health Storylines App,  
use the My Journal tool.

 #selfcareMVMT


brought to you by Caroline Craven, GirlwithMS, Self-Care Catalysts and Health Storylines

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Time to "Make a Change - Make a Difference"!


#selfcareMVMT
Challenge #9

GET MOVING!

For five days choose to get moving!
Remind yourself that you are worthy of a healthy life.

Wellness begins in the heart. 

You do not have to run a marathon or compete in an iron man.  Just get up and get moving!  Can’t get up?  We get it. Swing and sway in your chair. Play some music. Get the blood flowing. 

 You did not do anything to deserve this illness.  But there is something you can do to change it.  You can take control.  You can practice "Self-Care".  

Take action toward wellness with the Health Storylines App by recording your feelings in the MyJournal.




"I am worthy of a healthy life"

1.     Carefully and with intention get moving. 

2.     Play some music. Feel it in your blood. 

3.     Make a change and move to the beat of the world!

4.     Record feelings in My Journal

5.     Share the moment:  #selfcareMVMT







Let these intentions carry you away into a beautiful positive life.  

SHARE:

Instagram – Facebook – Twitter

Because together we’ve got this!

#challenge #dowhatyoucan #spon #takethatms 

#selfcareMVMT



Smile at the World!
Register at the Health Storylines App,  
use the My Journal tool.

 #selfcareMVMT


brought to you by Caroline Craven, GirlwithMS, Self-Care Catalysts and Health Storylines

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Time to "Make a Change - Make a Difference"!


#selfcareMVMT
Challenge #8

LOVE YOUR Self!

For five days choose to tell yourself that you are loved.  
Remind yourself that you are worthy of a healthy life.

Wellness begins in the heart. 

Love yourself and begin the healing process.  You did not do anything to deserve this illness.  But there is something you can do to change it.  You can take control.  You can practice "Self-Care".  

Take action toward wellness with the Health Storylines App by recording your feelings in the MyJournal.



"I am worthy of a healthy life"

1.     Carefully and with intention watch how often you are smiling. 

2.     Are you sharing your smile with your friends? Your neighbors?  The world? 

3.     Make a change and smile at the world!

4.     Record feelings in My Journal

5.     Share the moment:  #selfcareMVMT





Stella the Cat reminding me that I am worthy of a healthy life and to do what I can!

Let these intentions carry you away into a beautiful positive life.  

SHARE:

Instagram – Facebook – Twitter

Because together we’ve got this!

#challenge #dowhatyoucan #spon #takethatms 

#selfcareMVMT



Smile at the World!
Register at the Health Storylines App,  
use the My Journal tool.

 #selfcareMVMT






brought to you by Caroline Craven, GirlwithMS, Self-Care Catalysts and Health Storylines

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Time to "Make a Change - Make a Difference"!

#selfcareMVMT
Challenge #7

SMILE MORE - SPREAD THE JOY!

For five days choose to smile more and spread the joy.

Smiles are contagious and help folks feel better. 

Then record your feeling in the MyJournal section of the Health Storylines App.

Register at the Health Storylines App,  
use the My Journal tool.




Sometimes we find our minds wandering down roads unwanted.  
Be aware and make a change!

1.     Carefully and with intention watch how often you are smiling. 

2.     Are you sharing your smile with your friends? Your neighbors?  The world? 

3.     Make a change and smile at the world!

4.     Record feelings in My Journal

5.     Share the moment:  #selfcareMVMT


Let these intentions carry you away into a beautiful positive life.  

Register at the Health Storylines App,  
use the My Journal tool.

SHARE:

Instagram – Facebook – Twitter

Because together we’ve got this!

#challenge #dowhatyoucan #spon #takethatms 

#selfcareMVMT



Smile at the World!
Register at the Health Storylines App,  
use the My Journal tool.

 #selfcareMVMT



brought to you by Caroline Craven, GirlwithMS, Self-Care Catalysts and Health Storylines

Read Full Article
Visit website
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 
Empower Others with your Blood 

There is one thing certain with my Multiple Sclerosis (MS) and that is to help as many people as possible learn to live better despite their illness.  This includes helping the medical industry find answers.   Helping others provides a purpose in life and allows me to say #takeTHATms!

One company looking for answers is DxTerity, which is developing genomic tests to help people with MS better manage immune-mediated diseases.   They are currently recruiting people with multiple sclerosis for a unique research study called EMPOWERStudyMS

EMPOWERStudyMS is collecting blood samples from MS patients across the U.S. to help identify biomarkers and other gene expressions among patients; what is termed genomic testing. 

If you’ve been diagnosed with MS you can join this groundbreaking research to help researchers develop an at-home blood test to monitor MS disease activity.

Click here to learn how you can participate.   I did.


Participating in the study is easy and can be done from the convenience of your own home.  You won’t have to visit a clinic at all!  Answer a few health surveys online and collect a few drops of blood with a simple, fingerstick collection kit.  Drop the kit in the mail and you’re done. 

Well, my EMPOWERStudyMS kit came and I did it!


Z8MnWpK1SbySLyA6QpwJSA - YouTube


VIDEO: 

Caroline Craven @thegirlwithMS opens her kit and explores the contents for her EmpowerStudyMS kit.

Compared to all of those daily injections I used to take for my MS, the finger prick was a cakewalk. 

I pricked my finger, collected blood and sent off my sample.   Easy peasy for the most part. 

My problem was that my blood did not cooperate as best it could.   The instructions were clear but fear my cognitive fog kicked in a bit and caused some problems.  My fingers did not warm up properly and the blood barely trickled out to be collected.  The second lancet was good to have but I should have waited till my hands were warmer.  I am not sure enough blood got collected but we will find out.  The folks at EMPOWERStudyMS were very nice and are sending me another kit so we can confirm a better collection. 

I greatly appreciated the human connection for all of my questions and answers.  This is a research study, and we are “just a number” but you would never know that by the kind of service being provided.  Feeling quite special to be a part of this important event! 

During the intro video I got the blue lancet mixed up with the blue collector container.  But got it straightened out when it came to it.   
One of my mantras this year is to be part of the solution, not the problem.  I am now part of the solution.   You can be too! 


For more information about the study and to see if you qualify, please visit:  www.EMPOWERStudyMS.com


#takeTHATMS





Read Full Article
Visit website

Read for later

Articles marked as Favorite are saved for later viewing.
close
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

Separate tags by commas
To access this feature, please upgrade your account.
Start your free month
Free Preview