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Today I was formally diagnosed with FM and will probably come away with a ME diagnosis as well. Here's the thing, I was already diagnosed when I was 17 years old. Back when it was “all in your head", and having comorbid illnesses only solidified the idea of it just being in my head. In all my doctor's appointments, I have never mentioned this diagnosis. Never. I didn't want to be accused of being a hypochondriac or worse; q malingerer. How do I feel now? I want to cry. For all the things I've lost. For all the things I never had, for all the things I can forget about ever having. I missed out on life, love, family and friendships because of this. But this is only part of it. Maybe knowing now, what I didn't know then will mean I get a second chance to do things over. I'm afraid of running out of time, like I have with so many hopes and dreams. Maybe something good can come from this. Maybe.
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I was diagnosed with Fibro in 2009 by an excellent neurologist. I had a sleep-study test which showed I had "nonrestorative" sleep. I have been taking topamax for migraines; ambien for sleep; melatonin for sleep; klonopin for anxiety; cymbalta for fibro.; armour thyroid for Hashimoto's; worsening low back pain; sciatica; fibro fog; sjogren's; arthritis, and carpal tunnel in both wrists. My present neurologist tapered me off klonopin. I still have anxiety especially now that I am older. I exercise, however, it isn't easy as I will have residual pain later. (My neurologist is an opioid-fear-based doctor, so I titrated off klonopin. I still have anxiety. I am going to see another doctor as this neurologist knows very little and just wants to pass me off to another doctor, psychiatrist. This is very, very frustrating. I need to be on some anti-anxiety medication. Any suggestions here as to what is possible? It is just very frustrating. I have pain, anxiety and no one seems to want to prescribe anti-anxiety medications. I am not a "drug-seeking individual." I have a B.A. from UC Berkeley, one year of graduate school from UC Berkeley and an M.A. in Clinical Psychology. I have knowledge, experience and have advocated for many. Now I have been advocating for myself. It makes it difficult when I am going through all this. Any thoughts on all this would be most welcomed. Many thanks.
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After almost 20 years of suffering with fibro an extraordinary thing has happened. I was having dementia problems and was sent for a brain MRI.I was diagnosed with HYDROCEPHALITIS, water on the brain. Six weeks ago I had a brain shunt put in. It has been a Godsend. The bonus is that my fibro has quieted down. I haven't asked the neurologist about this yet, but thought I would share.
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I was diagnosed with fibro 3 years ago & was started by my rheumatologist on Cymbalta. It helped a lot for the first couple of years, but then I got all the side effects of the medication. After trying different remedies prescribed by my rheum. and primary care, I almost weaned off the Cymbalta which, in my opinion, is a horrible drug. Meanwhile, the lower the dosage, my fibromyalgia symptoms are all coming back in full force - the pain, the exhaustion, the depression, the tingling, you name it. I want to stay in bed all day. I'm told water exercise is good, but I can't even get myself down to my apt. pool. I am 79 years old and feeling soo sick & hopeless. Today, I am very nauseous. Can someone help me suggestions?
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My doctor and I suspect that I have endometriosis... my friend has fibromyalgia and and endometriosis as well and I have heard about a lot of women having both... and even that their fibromyalgia "hid the symptoms of their endo, allowing thier endo to progress for a long time before they found out that they had it. I was just wondering if anyone has both conditions and if anyone would know the connection between both conditions?
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Diagnosis fibromyalgia chronic pain tiezites (feels like broken ribs. Everyday for life) disease. 2014 my physical health came to sudden crisis. Exposure to life changing event triggered physical pain. "The body remembers trauma" My specialist GP prescribed a low almost non therapeutic dose of prednisolone over a week period sliding scale. I am also hypersensitive to all medication after a"NDE"resus (CCU 10 days) anesthetic adverse reaction morphine overdose during emergency spinal surgery (surg successful) This is the 3rd time we have used this break glass" protocol my body is in complete neuro pain. Painc sets in and it is difficult to stay centered. I use movement mindfullness heated spa.positive home enviorment. Resigned from a 38yr career.limit coffee sugar use A2 mik fresh fruit GF diet. Breath. Delegage stressful tasks limit confrontation toxic exposure. accomplish something everyday. Protocol X2 25mg tab 3 days X1 25mg tab 2 days .5 = 12.5mg pred 2 days then cease Do not use lasix or celebrex U must check with your medical officer. This works for me but we are all different like fine machines. Keep positive even on the hard days u are unique and do not have to prove yourself to others.
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Hello. I'm new here, so please bear with me. I am an ex-correctional officer. Two years of walking on concrete 6 days a week_8hrs a day, has taken its toll on my feet and legs. It started last year with pain in my lower leg and foot(always left side). The pain in my foot was always on the bottom with throbbing sensations long after getting home and resting for hours. It would last in spurts of 30mins. and go away after about 2 hrs or so. O would go weeks/ months with no problems. As of today I haven't been able to walk for 3 days. The pain in my foot is constant with no leg pain. I'm an having to walk on the ball of my foot...once the pain medicine kicks in, but cannot put pressure on my foot flatly. My foot feels very tight, but is not swollen. I am so afraid that this will become permanent. I quit my job 2 months ago, for other reasons, and plan to go back to work next month. I need to be able to walk! Asking for advice and prayers, Mrs. Williams
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My first blog. I have had alot of fibro symptoms for many many years. Im 58 now but the pain, sleep and other problems started probably 20 years ago.at first I thought it was just from work but it got worse as time went on. 5 years ago I started telling my wife something was wrong, didnt know how much longer i could keep doing my job. I worked at an meat processing plant on the cold side. I would miss a lot of work due to "flu symptoms. Finally 3 years ago i could not walk into the cold anymore. Dr. Put me off on temp dissability while they sent me to specialists trying to figure out what was wrong. No dr had a solution. After 6 mos. On short term my long term dissability said "there is nothing wrong with you. Dr. Has no diagnosis of any debilitating disease." Went back to my dr. After cussing at me and telling me it was all in my head, he refused to see me again. Went to another dr. Same hospital group. I tell him i have no income and need to go back to the job i know i cannot do. He puts me back to work. 2 mos later i pointed out. I dont know how to get an unbiased opinion on my problem, u go to a dr. They look u up on their computer, find your records and agree with other drs. I got another job stocking groceries. 11 mos later i point out. That was 6 mos ago. Finally my new dr says " you probably have fibromyalgia".wife asks "can he get dissability for this"? He laughed in our face. I am in so much pain constantly i just want to take a bunch of drugs but my mother went through this and became addicted to pain killers. I am at a loss. I cannot keep a job. Drs. Think i just want dissability cause im lazy. Why would someone who has worked their whole life and is making $45,000 a year want to go on dissability making $1200 to $1300 a month? My wife goes to the same dr that would not see me anymore. I went with her to an app awhile back and the dr had the gull to ask how i was doing. Dont know where to go from here. Any help would b appreciated.
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Hi Guys, I am pretty new to this forum, as I wish to seek advice, pre seeking medical advice. I’m 23 years old and I have experienced chronic pain for many years in different ways. I had gynaecological complications when I was younger and with various diagnoses, consultants couldn’t come up with a satisfying answer. In March of this year I had a car accident and haven’t been in the same body frame since. Since working alongside a new colleague that has been diagnosed with fibromyalgia, I have been monitoring my symptoms. I am finding that I am writing lists as I easily forget things, I experience more pressure headaches and dizziness. I struggle to get good quality amounts of sleep, I wake numerous times in the night, and I feel very fatigued in the mornings. I have recently noticed pain I’m experiencing in my back, abdomen, shoulders and armpit areas, as well as joints of my arms and legs.. it’s been a growing concern but put it down to heightened activity in the workplace, but I have recently monitored pins and needles in my arms and hands, as well as my feet and also I have noticed the pain and stiffness I have been experiencing when waking up. Any suggestions welcome, as I haven’t yet consulted a doctor due to putting it down to other things.
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