Friedreich Ataxia Research Association New Zealand (FARA NZ) is a charitable organisation set up to improve the quality of life for people diagnosed with FA, by supporting them and their families and to assist the funding of scientific research to treat this rare neurological degenerative condition.
We host a number of events each year, such as the Lend Us Some Muscle Challenge. In May participants from all across the country challenge themselves, their friends and their family to something physical and fun. It’s super easy to register, then we’ll send you out some transfer Tatts to stick on your flexing muscles to show your support throughout your challenge.
We encourage as many people as possible to undertake
their own community fundraising projects throughout the year to boost our
research budget. Community fundraising can be fun as well as rewarding. With a
little planning, lots of energy and a great team, you can make a big different
to people living with FA.
PERSONAL OR GROUP CHALLENGE
If you’re about to embark on a fun run, marathon, swim, walk, bike ride or any other activity, why not do it in aid of FA. Or challenge yourself to give one a go.
Plan your challenge
Ask family and friends to support your efforts by donating
Patient Panel, Scientific Symposium
Level 5, Murdoch Childrens Research Institute, Royal Children’s Hospital Melbourne
Come along to the patient panel session of our annual fara Friedreich Ataxia Scientific Symposium. Held from 4-6pm, you will have the opportunity to hear presentations from Ron Bartek, President FARA (USA), Jennifer Farmer, Executive Director FARA (USA) and Prof Martin Delatycki (MCRI) on Friedreich Ataxia clinical trials in Australia and internationally, and how you can be a part of them. Click the link below to find out more.