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We host a number of events each year, such as the Lend Us Some Muscle Challenge. In May participants from all across the country challenge themselves, their friends and their family to something physical and fun. It’s super easy to register, then we’ll send you out some transfer Tatts to stick on your flexing muscles to show your support throughout your challenge.

We encourage as many people as possible to undertake their own community fundraising projects throughout the year to boost our research budget. Community fundraising can be fun as well as rewarding. With a little planning, lots of energy and a great team, you can make a big different to people living with FA.

PERSONAL OR GROUP CHALLENGE

If you’re about to embark on a fun run, marathon, swim, walk, bike ride or any other activity, why not do it in aid of FA. Or challenge yourself to give one a go.

  • Plan your challenge
  • Ask family and friends to support your efforts by donating
  • Remember registration opens 18 April.

The post Get involved in LEND US SOME MUSCLE 2019 appeared first on Fara NZ.

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Thursday 25 October

Patient Panel, Scientific Symposium 
Level 5, Murdoch Childrens Research Institute, Royal Children’s Hospital Melbourne
4-6pm

Come along to the patient panel session of our annual fara Friedreich Ataxia Scientific Symposium. Held from 4-6pm, you will have the opportunity to hear presentations from Ron Bartek, President FARA (USA), Jennifer Farmer, Executive Director FARA (USA) and Prof Martin Delatycki (MCRI) on Friedreich Ataxia clinical trials in Australia and internationally, and how you can be a part of them. Click the link below to find out more.

https://mailchi.mp/9e174e0f3979/faras-13th-annual-scientific-symposium?e=6ffe7645d1

The post 13th ANNUAL SCIENTIFIC SYMPOSIUM & OTHER ACTIVITIES appeared first on Fara NZ.

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Here is the presentation Chronic sorrow From grieving to gratitude from Dr Kirsty Ross, PhD Senior Clinical Psychologist Massey University.

She has also attached some helpful handouts on

10-ways-to-develop-resilience

Accepting Uncertainty

Calming Technique

Mindfulness and Letting go

What is Mindfulness

The post Developing resilience while living with a progressive condition. appeared first on Fara NZ.

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