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There is a new trial underway for patients whose thyroid cancer is no longer responsive the RAI treatment.

Your oncologist will have to ensure that you fit into the criteria necessary for the trial.

You can be referred to any of the following centres .

Bristol Haematology and Oncology Centre
The Christie, Manchester
Churchill Hospital, Oxford
The Royal Marsden, London
University Hospital Southampton
Royal Surrey County Hospital

Opening soon:
The Beatson West of Scotland Cancer Centre
Nottingham University Hospitals

You can read about the trial here

The post Selimetry Trial appeared first on Butterfly Thyroid Cancer Trust.

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Butterfly Thyroid Cancer Trust by Butterflythyroid - 9M ago

This study run by the University of Sheffield and Sheffield Teaching Hospitals aims to determine patients’ quality of life following surgery for either thyroid or parathyroid disease. The survey will take 10 minutes to complete.

The focus of this study is to look in depth at the effect of low blood calcium levels, one of the potential side effects of this type of surgery, has on quality of life. Our research group is working on new ways of reducing this side effect of surgery.

We would be very grateful if any patient who has had thyroid or parathyroid surgery could complete the survey, regardless of whether they themselves have ever had low blood calcium levels.
Here is the link :

https://redcap.shef.ac.uk/surveys/?s=PYKF74KHFF

The post New Patient Survey appeared first on Butterfly Thyroid Cancer Trust.

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A new clinical trial is being proposed for people whose thyroid cancer is deemed ‘low risk and we would like to know how patients feel about this .
If you were told that your thyroid cancer when you were given the diagnosis please could you help us by taking this short survey?
Many thanks ! 
 

The post A new clinical trial for people whose thyroid cancer is deemed low risk appeared first on Butterfly Thyroid Cancer Trust.

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NICE have finally given their decision on Lenvatenib and Sorafenib.
Both drugs are recommended for the treatment of thyroid cancer which is no longer taking up RAI.
However,patients can only have access to one of the drugs.
This means that patients who are already taking Sorafenib will not be able to have Lenvatenib when and if they need it.
This is a dreadful decision.
The only exception is if a patient had has Sorafenib and had to withdraw from it due to toxicity.
We await comments from NHS E England on this .

The post NICE decision on Lenvatenib and Sorafenib appeared first on Butterfly Thyroid Cancer Trust.

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Butterfly hosted the first ever UK Patient/Doctor Thyroid Cancer Forum on 5th December 2016 in London.

Part 1

Part 2

The post Thyroid Cancer Forum 2016 appeared first on Butterfly Thyroid Cancer Trust.

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Butterfly Thyroid Cancer Trust by Butterflythyroid - 1y ago
New data protection rules are coming into force 25th May 2018.
We will be contacting all of our members to ask them to ‘opt back in’ by sending us an email to say that they would like to remain a member of BTCT and that they understand that we hold their details on file via a secure server.
Please send us an email if you would like to remain.

The post GDPR 2018 appeared first on Butterfly Thyroid Cancer Trust.

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Butterfly Thyroid Cancer Trust by Butterflythyroid - 1y ago
Project RAI re vamp is well underway with more than 15 RAI units across the UK having benefited from a refurb courtesy of BTCT.
Patients are delighted to be able to have their RAI treatment in a room that is warm and welcoming .
Take a look at what we are doing :
Does your RAI suite need an update?
If so please contact us.

The post Project RAI Revamp appeared first on Butterfly Thyroid Cancer Trust.

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