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The Alzheimer's Podcast by Mike Good Of Together In This - Imp.. - 6d ago

In this episode, we chat with former New York Times reporter and current contributor Phil Gutis, an Alzheimer's advocate and man living with the disease.

Phil explains about what he calls the Shiny Object Squirrel and dishes on some awkward moments with strangers. (Spoiler: Phil wasn't the one making it weird.) Plus, he and Christy try to figure out the showering thing. It's complicated. Links in the show notes at DementiaSherpa.com/episode92.

 

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The Alzheimer's Podcast by Mike Good Of Together In This - Imp.. - 2w ago

A lot of times, we're looking for the grand gesture, the big thing we can do to improve our person's quality of life. Inspired by his own past, Bruce Felt came up with a product that's clever, yet simple and effective. It can create positive impact for your person, you, and the rest of the family. If you're not exactly sure what to do during a visit, tune in to this episode of The Alzheimer's Podcast! All links in the show notes at DementiaSherpa.com/episode91.

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Phil Gutis is a former New York Times reporter and current contributor, an Alzheimer's advocate, and a man living with Alzheimer's disease. 

Phil was diagnosed three years ago, at age 54. As you'll hear, he's quite easily able to articulate his thoughts and feelings. And he's generous enough to share them with us in this episode The Alzheimer's Podcast.

Phil talks about the fine line care partners walk between helping and smothering, why solid strategy is crucial for social situations, and a whole lot more. Complete show notes and links at DementiaSherpa.com/episode90.

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In this episode, part two of my conversation with Dr Tia Powell, author of the new book Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End. I highly recommend this book to families and professionals alike--it's worth your valuable time.

This part of our conversation focuses on how the HIV/AIDS crisis shaped Dr Powell as a new doctor; how a shift in thinking from disease cure to disease management can impact daily life; and how we as a community can support both family and professional care partners. 

Finally, Dr Powell shares a gut-wrenching decision she and her family were asked to make more than once, and how that played out.

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In this episode of Navigating Rough Terrain with The Dementia Sherpa, Christy Turner will help you better understand the importance of, and how to use resiliency for better dementia care.

Being resilient means being able to spring back into shape after being bent, stretched, or compressed – all of which you’ve probably felt as a care partner. Think about it as the ability to recover readily from illness, depression, or adversity, and become stronger.

In case you’re new, Christy Turner, the Dementia Sherpa, is a regular guest on The Alzheimer’s Podcast – where she joins me for discussions to help empower you to be successful as you care for someone living with dementia.

She is a Certified Dementia Practitioner, Certified Dementia Care Unit Manager, and Cognitive Stimulation Instructor. She has run award-winning memory care communities in assisted living and skilled nursing levels of care.

Using her 16 years of experience in working with over 1,100 people living with dementia and their families, she’s developed a system that helps families move from crisis management to confidence.

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In this episode of Navigating Rough Terrain with The Dementia Sherpa, Christy Turner, the Dementia Sherpa, and I will be introducing you to the concept of Looping.

Looping is very common in dementia care. It can involve the repeating of stories or fixations. How you approach it and/or embrace it makes a world of difference in your interaction with the individual.

Allow it to happen and you can have a deeper, richer interaction with your loved one. Resist it, and you can create a very negative experience for everyone.

In case you’re new, Christy Turner, the Dementia Sherpa, joins me every other Tuesday for a discussion to help empower you to be successful as you care for someone living with dementia.

She is a Certified Dementia Practitioner, Certified Dementia Care Unit Manager, and Cognitive Stimulation Instructor. She has run award-winning memory care communities in assisted living and skilled nursing levels of care.

Using her 16 years of experience in working with over 1,100 people living with dementia and their families, she’s developed a system that helps families move from crisis management to confidence.

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The Alzheimer's Podcast by Mike Good Of Together In This - Imp.. - 1M ago

In this episode of Navigating Rough Terrain with the Dementia Sherpa, I  speak with Dr Tia Powell, author of the new book, Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End. I was really skeptical about having Dr Powell on The Alzheimer’s Podcast, because she’s a psychiatrist. As a dementia-focused professional, I’ve learned to fear psychiatrists as people who put those with dementia on unnecessary, potentially life-threatening medications. I’ve spent a lot of time pointing out dementia isn’t a mental illness--an idea Dr Powell takes exception with. I asked her about this, and found Dr Powell's point of view so persuasive that I’ll be changing how I talk about this in the future. We also talk about the history of treatment, and how horrific it’s been; why we as a society stigmatize people; and how and why a Quaker community in 1700s England came up with the original concept of “bringing the Good Stuff.” All links in the show notes at DementiaSherpa.com/episode87.

 

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Deborah Dolan is a volunteer with The Association for Frontotemporal Degeneration. She’s a retired geriatric care manager, and her husband Todd had bv.FTD.

In this episode of Navigating Rough Terrain with the Dementia Sherpa, Deborah tells her and Todd’s story, including the challenges in getting a correct diagnosis and insights on care partnering with a person with bv.FTD. We also give you a preview of the upcoming AFTD National Conference May 3, 2019 in Los Angeles. Complete resource links at DementiaSherpa.com/episode86.

 

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The Alzheimer's Podcast by Mike Good Of Together In This - Imp.. - 1M ago

If you’re like most people, the idea of sitting down for an appointment with an elder law attorney, financial planner, insurance salesman, or loan officer falls into that category of things you know you should do but are so icky-sounding that you’d rather scrub bathroom tile with a toothbrush.

I feel ya. But if you’re wondering how you’re going to pay for the care your person needs down the road, this episode is definitely worth a listen. Guest Rachel Hemmingson breaks down the nuts and bolts of a home equity conversion loan (formerly known as “reverse mortgage”) without boring the pants off you (at least, not past the first four minutes or so).

In this episode of Navigating Rough Terrain with the Dementia Sherpa, Rachel explains in plain English who qualifies and how the money can be used, we share 4 real-life stories, and give tips on how to find a reputable professional who can help you explore your options. Plus, I hijack the conversation and go down a rabbit trail on hearing aids.  Resource links at DementiaSherpa.com/episode89.

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The Alzheimer's Podcast by Mike Good Of Together In This - Imp.. - 1M ago

When we’re talking about dementia, it’s often centered around practical how-to’s, physical abilities, or planning for the future. Something that’s often missed is the role of spirituality, which I believe is just as important as all the other things we focus on when we’re discussing dementia.

And that’s why I’m excited to have Dr Sarah Bartel as our guest on the show this week. She’s an awarding-winning columnist, co-host of the popular Enduring Love radio show on Sacred Heart Radio, holds a Ph.D. in moral theology, and is co-editor of the new book A Catechism of Marriage and Family Life.

In this episode of Navigating Rough Terrain with the Dementia Sherpa, Sarah and I talk about the role of faith communities in dementia; where dignity comes from; the importance of rituals; and Sarah explains what catechism means for the non-Catholics among us.

Even if organized religion has left a bad taste in your mouth, I think you’ll enjoy listening in as Sarah brings the Good Stuff and shares it with joy.

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