My name is Mike Good and I created Together in This to help educate all caregivers by providing you with streamlined resources and easy to use tools. I cover general caregiver topics and emphasize solutions for Alzheimer's disease.
Phil Gutis, Assistant Sherpa, is with us again today. Phil is a former New York Times reporter and current contributor, an Alzheimer's advocate, and a man living with Alzheimer's disease. Phil was diagnosed three years ago at age 54.
One of our recurring topics is the terminology in Dementia World. One of the words that’s commonly used in this world that I really don’t like is “journey.” After listening to what Phil has to say about it, I’ve started to think about that differently.
A couple other things you need to know before we jump into the episode: There’s a point, around the 24ish minute mark, where we head in a totally different direction than I anticipated. I was a bit shocked when it happened in real-time.
Second, what you’ll hear in this episode is from part of a longer than usual recording session, recorded later in the day than usual.
As a result, you’ll notice some changes in Phil’s language. There are spots where words don’t come as easily or quickly as usual.
In 2015, Pfizer researchers discovered their own anti-inflammatory drug, Enbrel, appeared to reduce the risk of Alzheimer's disease by 64%. Last Wednesday, four years later, the rest of us found out about it. Phil and I discuss in this bonus episode.
No matter how obvious or ubiquitous something is (or we think it is) everyone starts out as a newbie at some point. A couple of months ago, I met someone who'd never heard of the Alzheimer's Association.
I’m happy to have Heidi Rowell on the show to talk about programs and events the Alzheimer’s Association offers...for anyone who may not know, and for those who could use a refresher.
*Note for Phil Phans: Phil Gutis, AKA The Assistant Sherpa, isn't on the show this week. But we talk about him anyway, because Heidi's a fan, too. Phil will be back next week.
Phil Gutis is a former New York Times reporter and current contributor; Alzheimer's advocate; and a man living with early onset Alzheimer's. Diagnosed 3 years ago at age 54, Phil wonders, "Did I do this to myself?"
In this episode, we discuss the role of genetics and healthy living (or not so much) in developing Alzheimer's disease, plus my favorite topic, quality of life.
In this episode, we chat with former New York Times reporter and current contributor Phil Gutis, an Alzheimer's advocate and man living with the disease.
Phil explains about what he calls the Shiny Object Squirrel and dishes on some awkward moments with strangers. (Spoiler: Phil wasn't the one making it weird.) Plus, he and Christy try to figure out the showering thing. It's complicated. Links in the show notes at DementiaSherpa.com/episode92.
A lot of times, we're looking for the grand gesture, the big thing we can do to improve our person's quality of life. Inspired by his own past, Bruce Felt came up with a product that's clever, yet simple and effective. It can create positive impact for your person, you, and the rest of the family. If you're not exactly sure what to do during a visit, tune in to this episode of The Alzheimer's Podcast! All links in the show notes at DementiaSherpa.com/episode91.
Phil Gutis is a former New York Times reporter and current contributor, an Alzheimer's advocate, and a man living with Alzheimer's disease.
Phil was diagnosed three years ago, at age 54. As you'll hear, he's quite easily able to articulate his thoughts and feelings. And he's generous enough to share them with us in this episode The Alzheimer's Podcast.
Phil talks about the fine line care partners walk between helping and smothering, why solid strategy is crucial for social situations, and a whole lot more. Complete show notes and links at DementiaSherpa.com/episode90.
In this episode, part two of my conversation with Dr Tia Powell, author of the new book Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End. I highly recommend this book to families and professionals alike--it's worth your valuable time.
This part of our conversation focuses on how the HIV/AIDS crisis shaped Dr Powell as a new doctor; how a shift in thinking from disease cure to disease management can impact daily life; and how we as a community can support both family and professional care partners.
Finally, Dr Powell shares a gut-wrenching decision she and her family were asked to make more than once, and how that played out.