Just a simple little post about the things I'm trying to cherish in my life.
While It Lasts...
the genuine hugs from my daughter before she becomes the TEENAGER
the giggles E has over the little things we often over look
couple time, though there isn't much of it still, before a deployment
the cool breezes here in Hawaii during the Winter season
the newness of finding that "spot" you haven't traveled to yet on the Island
enjoying a new craft before you find out the hard way it isn't for you after all
the beautiful sunsets on the North Shore...oh my are they a sight to behold
time with family before they get on your nerves...lol
the favorite flavor bite of ice cream or savory snack you sneak into your gaping maw when your child isn't looking or begging your for a bite of it....I'm sure some of you know what I mean. I did it to my parents with the big doe eyes of innocence too.
sneaking into your child's room while they are sleeping to watch them sleep just because you can
hearing my cat call me "maw-maw". He just started to call me that this past week. It is so heart warming.
Grandma, Uncle and Girlfriend are all here visiting for the next week. Grandma has been here since mid January. Today Little E had had enough when the three of them wanted to go some place and she wasn't invited.
Yesterday Uncle and his girlfriend arrived on island. Now that they are here Little E is now second fiddle and she detests it. She was the spoiled one for a few weeks with Grandma. She had all of Grandma's attention. Of course the way in which Grandma told her know was not so nice either. Heck even I would have had hurt feelings. Come on now we all know there was room in the rental car for the car seat even Little E knows that.
They went to the BEACH. You can't do that to a little kid. NO not the BEACH. That is the one place a 3.5 year old loves the most on an island.
So when it started to rain, and it came down hard I told Little E that it served them right to not take you.
See what happens when you piss off a little kid in Oahu! Hopefully they don't piss of Pele next. I'd rather not have a volcano erupt!
Island life is hard. While the other people grew up with in my home town are freezing their butts off I'm here on the island of Oahu enjoying the rainy season. It doesn't rain every day. As a matter of fact we only had a light rain yesterday morning.
Currently I have my husband's family staying with us so we are trying to take a bit of a holiday around his daily work schedule. This isn't easy with the Government pulling their shut down, now we are open but Let's schedule another shut down for February again; all while the family is here mind you.
We did visit the Dole plantation and watch the sunset on the North Shore yesterday. All photos were taken on someone else's phone. Sorry.
However, I do have one from the luau we went to two days before Christmas that I can share with you.
I broke my L-4 vertebrae in a fall from a step ladder. I was about 4 feet up in the air on a 6 foot ladder hanging the Christmas lights when a gust of wind caught the ladder. Down I landed. I now wear a back brace until the surgeon tells me otherwise. No surgery yet. I hope to not have any on my spine. I'll know more in a few days when the surgeon looks at the results of the MRI he requested.
Hard to believe that my little E will be starting Pre-K this year. She'll be 4 in July. She loves playing basketball, and with her Barbies too. Her vocabulary is quite complicated and surprising. There are days I never know what is going to come out of her mouth. A week ago she used ridiculous in a compound sentence and it made complete sense. Where did my baby go? She doesn't like to be called a baby either. Yikes!
As for that false alarm with the missile....Well I grew up next to a SAC base. So ya know what? It is not like I had much time back then to get anywhere before a missile would strike either. Oh and the bomb shelters here on Oahu are not open. They are considering re-opening them now that we are entering a new Cold War. Okay You Think That Might Be A Good Idea?
Other than the car falling apart slowly I think the rest is coming together quite nicely which scares the crap out of me.
So I'm thinking that something is going to go wrong. I mean this is the military and there is Murphy's Law.
We booked the hotel in Hawaii. We booked the plane tickets and upgraded out-of-pocket to first class....I mean why not?
We still need to book a rental car until our suv arrives.
The packing and moving crew arrives on the 21st and I'll be moving the unessential personnel to the hotel that day here on post. Example: me, the cat and Eily. This way we are out of the way and can go swimming with less stress. Let Daddy handle the packers for a change.
I've taken a photo inventory of all of the items in the house to update what we had before. But I'll take a few more photos again soon.
I've purchased a few Tuff Boxes for the more important odd sized items that we want to pack ourselves.
Fingers crossed all will go well.
Yes Bugsy is booked for the vet and the plane ride. He is going with us to Hawai'i.
Graduation is in just a few days. There is just too many things that have to be done and not enough human adult force around the house to get them all done.
Before graduation is clearing. This is stressful enough on my spouse with me adding in the reminders of, "hey remember that project you promised to help me finish before you MOM SHOWS UP?". Well up that doesn't help one bit.
Plus add in one very active toddler. Today this toddler, Eilonwy, wanted to learn to cook on the stovetop. I caught my husband indulging her. I said, "NO!". I gave them both a fig newton calmed down her crying because I took her away from the frying pan. I told him not until she is tall enough to reach the dials on the stove on her own without a chair. Never leave the father alone with the child when it comes to cooking unless he knows what he is doing around a stove. DH has told me he doesn't have common sense and this time he proved it.
I'm having some bad Fibromyalgia flare ups. I'll fall asleep, while DH is home, for several hours while only hoping to take a 30 minute cat nap. This doesn't ruin me for sleep at night as I'm still exhausted and need the sleep too. I cannot fight the fatigue. What is driving me nuts is that I'm loosing my precious computer time to continue the writing I had started earlier in the month. I started a short novel. It was going somewhere this time. I plan on actually finishing one of my stories.
This week I accomplished cutting, and sewing the hem on a new pair of DH's dress blue pants. They wouldn't have been ready in time for his graduation. He forgot I knew how to sew. I was aghast. I've been sewing since I was 4 years old. I made my first dress at age 8. I know I told him that. My mother was so proud of me. I earned a badge in scouts for it too.
I finished the table I was making for outside for DH. It was made using tanagram pieces. Some of which had to be cut smaller. All had to be glued in place. Next step was using the spray exterior sealer so that it would be waterproof. Good thing too. We had a nasty rainstorm last night. With the glass top that went over it last night none of the water that did get under the glass did any damage.
Yesterday DH and I worked on adding a piano hinge to the antique hope chest that I have. It was my Grandmother's old hope chest that was created from the top half of an upright piano. The last move did major damage to the lid. I was able to straighten the hinges, glue the cracks, fix the deranged lock, and have DH help me add the strut support hinge. Next step is DH is going to build the tray with the legs so that the hope chest sits in the tray. It will work as a proper coffee table. It won't stop the movers from breaking it I'm sure.
Today I still have to dye my hair. I'm waiting for DH to take our daughter Eilonwy with him to the hardware store. Free time for mommy.
DH's family lost a family member. His father died. It was quite sudden. DH had to fly home. We waited for the Red Cross message to come in so that we could put in the paper work and book a flight home. Okay so I booked the flight and his superiors did the paperwork for his release. DH didn't have to do much but just pack up thankfully.
Due to storms his 7 hour flight took 22 hours to reach its destination. That really was horrible. His mother hired a car and driver to pick him up at the new location where the flight path went as the original one was no longer an option.
Three days later he was back home.
We celebrated my birthday this week. My daughter designed my cake. I might like chocolate but not as much as she does. Thankfully DH stepped in and said we needed a white cake or else I'm sure she would have ordered a chocolate one too.
My daughter can now bake brownies from scratch. We baked them from a recipe, a favorite of mine, the night DH had to fly out. I handed her all the ingredients with the exception of the eggs. She got the carton of eggs out of the fridge herself, cracked the two eggs, and put the egg carton back in the fridge. She stirred the entire contents of the bowl and poured it into the greased pan. All I had to do was set the oven and put the pan in to bake. Not bad for a three year old.
I think most Americans baby their kids way too much and under estimate their abilities. My daughter is a bit of a free spirit I guess and learns the same way. She is smart I'll admit that but I'm sure if more parents paid as much attention to their children as I do to mine then they would have children just as bright. Mind you...learning disabled is different and I'm not saying that more attention to your child would change that a bit.
I've been a very bad blogger. No I'm not going to shut down the blog. I've just been very sick.
My liver of course is getting worse. The itching is driving me nuts. Itching is from the build up of bile salts.
Eily is growing like a weed. She is already wearing 4 and 5 in clothing. The rain coat I just bought her is a 5/6. She won't even be 3 for a few more months. How much taller is she going to get before she hits 3?
I'm so tired. I fall asleep on the floor during play time with Eily. Yes, even when she is bouncing on my back. I'm just so exhausted that I don't even care that it hurts. I just can't get up to push her off of me.
Exciting news is that we are getting ready for a move to Hawaii. I can't wait for that. There will be a good transplant hospital nearby. But I still have to get even sicker before they can do the transplant. This fatigue I feel is nothing. I'm still only a MELD score of a 7 at 6 months ago. I'll be getting a lab draw this coming week and my next Hep A shot by Friday.
Wish us luck. I'll try to blog more often. Just so tired.
Here is a picture of me with Eily.
I cut my hair really short so that I don't have to fight with the curly hair tangles. Eily's hair is still long.
Now me with makeup where I try to hide the fatigue.
The lighting I used also helps make me look healthier too rather than the natural sun I was using in the first photo. And I've lost almost 10 pounds from the first photo to this photo I took last week. Took just 2 weeks to lose it and I didn't do anything differently in my food intake either. Got to love being sick.
Time is slipping away. I have a normal routine and it drags me out. I'm gaining weight. I've now gained about 20 pounds in bloat. The whole IBS vicious cycle with the water pill, potassium and IBS meds is wrecking me. I'm not really sure what real energy is. I thought I had a bit of it last week only to plunge back into the funk once again. Maybe I used up all the energy I had to spare last week?
DH is doing quite well in school. He is still in the running for honor graduate. Geez that thunderstorm sounds like it is going to blow the roof off. Sorry for that bit of interruption. Brain see or hears something it processes and off it goes on yet another path. So yes DH is doing well. Today he called me from the school house to help him fill out his dream sheet. The dream sheet is where military personnel write down their list of dream assignments. It doesn't mean they'll get it, but it is a dream sheet. We put Hawaii at the top of the sheet. Who wouldn't want to go there for a few years? They have a good liver transplant hospital there too.
E is doing well. I can't believe that in just a few months she'll be 3 years old. Where did my baby go? By the time we move to the next duty station we'll be able to enroll her in preschool. She continues to spout off large words and long sentences. Her math skills are improving too. She has good manners and is rarely a bad child at restaurants. She isn't perfect. She is stubborn, and wants to do things her way. She still has her daddy wrapped around her little finger too.
Steatohepatitis mild. It has improved since the very first diagnosis of moderate I'm pleased to say.
However the labs showed that my MELD score has gone up and I'm now at a 7.
I did bleed out during the procedure which rarely happens.
Such is life. It is a see saw. I improved but I didn't. I'm okay with that. I'm not going to die today unless something really bad happens like I trip over a match and impale and/or cut a major organ or artery. Likelihood of that is 0.4%.
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