A Blog About The Role of Mold Toxins in Chronic Illness. This blog focuses on exploring the connection between mold toxins (and other toxicity) and diseases related to Myalgic Encephalomyelitis (M.E.). The main authors are Erik Johnson and Lisa Petrison, with additional essays by guest authors.
The group has a very specific mission and some specific ways of doing things. Therefore, I am asking that those who would like to participate in the group please read this blog post to learn more about the group before posting or commenting in the group.
From January 2015 until a few months ago, I ran a Facebook group called Mold Avoiders. It eventually became one of the largest mold groups on Facebook, with more than 9000 members.
Although the group was in some respects a success in that many people stated that it was helpful to them, it also took up a very large amount of my time. Toward the end, I was spending more than 40 hours a week answering questions in the group and dealing with administrative issues.
The Locations Ratings section of the Paradigm Change website is designed for mold-sensitized people who already are pursuing mold avoidance to quickly and easily rate locations that they have visited or lived, so that other mold avoiders can learn about their experiences.
Julie Rehmeyer is a math and science journalist and ME/CFS sufferer who turned to the mold avoidance approach described in the book A Beginner’s Guide to Mold Avoidance in 2012, after becoming bedridden much of the time with periodic bouts of paralysis.
After spending two weeks tent camping in Death Valley, California, she returned to her home and realized that she reacted strongly to her home and possessions.
By early 2007, I had been sick with the disease now officially called “ME/CFS” for more than a decade. I was in bed and comatose almost all of the time and seemed to be getting sicker and sicker by the minute.
It was at this time that I first listened to the soundtrack for the Broadway musical “Grey Gardens.” The show is based on the famous documentary movie of the same name, and depicts two impoverished but formerly upper-crust relatives of Jacqueline Kennedy Onassis who lived reclusively from the 1950’s to the 1970’s in a falling-apart mansion in the exclusive vacation community of East Hampton, NY.
People who have become particularly sick with mold-related illness usually report experiencing a wide variety of symptoms themselves – and very often say that they have noticed that their partners, children and pets seem to be exhibiting symptoms as well.
During their first four years of marriage, Almanzo Wilder and Laura Ingalls Wilder had far more than their fair share of difficulties.
Several years’ worth of their crops were destroyed by hail or hot dry winds, in most cases just a few days before harvest. They both became sick with diptheria that kept them close to death in bed for weeks, with lingering symptoms for a long time afterwards. Almanzo acquired partial paralysis that periodically interfered with his ability to walk or use his hands. Their only son died of spasms a few weeks after his birth. Their very nice house dramatically went up in flames and burned to the ground.
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