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Sometimes - you don’t realize how much something hurts until you touch it. Or until you know it’s there. The trail failed. 17% progression in tracked lesions ... under the 20% threshold but alas ... 2 new spots appeared in my liver, a new spot on my psoas muscle and that weird lump on the back of my mid-right rib cage ... cancer too. Those new spots mean I’m out. The docs at MDA delivered the
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Hi. It's been forever - I know. And I'm sorry. 3 months is a long time when you've been counting time like I have been. And yet it goes by much faster than I'd like it to. In a blink it feels like Christmas is over and the new year is only a couple days away - which is actually what's true. Christmas is over and New Year's is literally 2 days from now. In the last 3 months - I've managed to
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I got an update from NIH today about that TIL trial I’m in. I'm out. They didn't find anything they could work with, and nothing they could artificially modify to work with either. The trial is over for me. It also shuts the doors to any kind of vaccine trial or anything new they are rolling out as well ... since finding reactivity was the starting block for all of that.  I’ve been scared and
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It starts the same way every time. I run my hands through my hair and suddenly there's a lot more than "just shedding" wrapped in my fingers. It's a knowing when you see it in your hands. A heaviness that settles in your chest - with a sigh of resignation. You know what's coming, what you need to do to get there ... and yet you still hold out hope that maybe ... just maybe ... you're one of the
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