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This blog has been really neglected lately. Life has been in the way a lot.

Anyway, I've come across a number of articles about women's experience in the medical model I wished to share.

Sadly, the main theme in these is about women's pain and symptoms not being taken seriously by medical professionals. Any woman with endometriosis will have many stories to tell about being told it is all in their head or not they are just looking for attention. Sometimes the focus on this despite all evidence to the contrary that they begin to make you feel crazy, even when you aren't, rather like the lead character in the film, Gaslight.

One day I will get around to doing a post about some of the awful things doctors have said to me over years.

Anyway, there are some good reads here -


https://www.theatlantic.com/family/archive/2018/08/womens-health-care-gaslighting/567149/

https://www.wbur.org/cognoscenti/2018/08/15/why-dont-we-take-womens-pain-seriously-amy-carleton

From a favourite Crohn's blogger - http://opbmed.blogspot.com/2017/06/medical-gaslighting.html

A TED talk about ME/CFS, which applies to anyone with autoimmune disorders - https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

And to lighten to load after all of this, read this fantadfan piece that was at Edinburgh Fringe last year on Crohn's - https://www.bbc.co.uk/news/disability-45045223
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I haven't been doing too well at writing this blog this year. Too much life happening, which is better than too much illness happening.

Anyway, there has been big news in Crohn's land today. The chemists who did the ground work for biological drugs like Humira were awarded the Nobel Prize in Chemistry today.

https://crohnsandcolitis.org.uk/news/nobel-prize-awarded-to-scientists-whose-work-led-to-adalimumab



This is a seriously huge deal. Not only are diseases like Crohn's getting a lot of press from this, but it is also highlighting the future of treatment for people who autoimmune disorders.

Humira and similar drugs are not without their problems; I've written about my experience loads on here. But when they work, they really really work. And they are considered treatment of last resort because of their cost.

The thing is, it is false economy to throw generic immunosuppressants that weren't developed with IBD in mind at people with IBD.  They either end up cycling through different drugs due to bad reactions, cycle through steroid treatment during flares ups or repeatedly end up in A&E or on the surgeons table. The cost of my almost five years on Humira still doesn't equal the cost of an ostomy, long term post surgical complications or being too sick to work.

Yes, it is expensive, yes, it has risks, and biological drugs are totally sci-fi. But they also show that the future is now.
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