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Fibromodem by Purple Law Lady - 4M ago
New Law Removes Healthcare Choices

Earlier this week, very quietly (I think), the Federal Government’s Private Health Insurance Legislation Amendment Bill 2018 passed through both Houses of Parliament, with the support of Labor and the Greens.

From 1 April 2019, private health insurers will NOT be permitted to provide cover for many natural therapies. 

It is now up to the Honourable Greg Hunt MP, Minister for Health, to finalise and publish the supporting Business Rules that are part of the reform laws, (likely) within the next 2 weeks.

What does that mean?

This means that the Health Funds will NOT be permitted to offer rebates on these services.

This means that we will have less access to affordable health choices

This means that we have less than 2 weeks to do something!

This means that the Minister has the delegated power to modify the Rules.

This means that we have less than 2 weeks to influence the Minister. 

Send your thoughts to the Honourable Greg Hunt MP, Minister for Health HERE!

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Fibromodem by Purple Law Lady - 10M ago

I’ve been on a double dose of PEA for 8 days; and, I haven’t felt this awful in a very long time.

When I first got sick, it was the pain in my ankles and wrists that was unbearable. They felt swollen and sore (without looking like it, of course!). Mostly, I have had this pain under control with Lyrica (It’s taken a while to balance the choice of being in pain (no Lyrica) or no brain (with Lyrica)). But, guess what? It’s back! It’s been back since I doubled the dose.

I’ve had a headache for the whole 8 days. I’m too scared to take any painkillers because my stomach (and, consequently, my ass) is VERY upset. My skin is all dried out and spot covered. (Can I blame my grey hair on it, too?) I wake up, after 8 hours sleep (at least), exhausted then, an hour later, go back to bed for another 3-4 hours sleep.

None of this is new. We all suffer from this shit but, it’s gotten lots worse over the past 8 days and, PEA was supposed to fix all of this (at least, a bit!) It hasn’t for me (sadly) and I refuse to feel this bad for another 5 weeks – so, disappointingly, I QUIT!

P.S. I really hope that it’s working for those others who are trying PEA.

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Fibromodem by Purple Law Lady - 10M ago

Forty-two days is the 6 weeks required to judge if your PEA dosage is working. I figure 38 days is close enough…my dosage isn’t doing anything…good. But who’s to say that it’s not responsible for my funk since my crash on Day 4?

Just as I sat down to write this, I realised that I haven’t had a good day since that crash. I have spent most of the time totally constipated. I know that I’m going further down the deep, purple hole; but I don’t know how to stop it. Now, (really important! Please note:) I can NOT know if PEA is responsible; and I definitely don’t blame it…yet! (In fact, as suggested in many articles, I am going to double my dose (to 800mgs three times per day) for the next 2 weeks (because that’s all I have left and, unless it starts working, I won’t be buying any more).) I have to consider that we are in the depths of winter; that it’s exactly 2 years since I broke my ankle and I can only wear sneakers…still; that I don’t have anything to look forward to…any time in the future; that I can no longer afford my life…oh, I could go on forever (couldn’t we all?)

Don’t worry, peeps, it’ll all be a bit better in spring…or, if I’m lucky, within the next 2 weeks.

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Fibromodem by Purple Law Lady - 10M ago

So 4 weeks later, my Mommy has quit our experiment – she’s feeling terrible with recurring kidney infections, depression and extreme fatigue. We all know that we have to wait 6 weeks for PEA results but Mommy has had enough of swallowing extra pills.

Me? Nothing much happening. The winter blues have hit big time and I feel…shit! Nothing is better but, then again, nothing feels worse. I just want to hide in bed, under the covers.

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Fibromodem by Purple Law Lady - 10M ago

After 10 hours sleep (yes, I can sleep forever), I woke up to a whining Ned; jumped (my version) into some clothes, fed him and took him for the toilet. I sat outside for about 20 minutes but my eyes felt like they kept closing so I popped inside and, promptly, fell asleep for another 5 hours. I’m exhausted.

Hmmm…not feeling the PEAs

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Fibromodem by Purple Law Lady - 11M ago

I know Fibro is different for everyone. For me, it is the fog and fatigue that kills me…oh, and the tummy troubles. Yes, I have pain – lots of different passing pains; but I think it’s the other stuff that’s the most damaging.

I‘m at day 11 of my PEA adventure. I know that it can take up to 6 weeks to work; but, after the first 3 days of bubbly energy, I thought (hoped?) that PEA was the answer. I guess I got my expectations up too high because, now, everything is back to normal – my normal (which sucks!) Right now, PEA just seems like another capsule I have to take.

For the past 2 weeks, it is my tummy that dictates my activities for the day. Right now, as I type this, I am sitting on my couch with a heated blanket wrapped around my tummy and lower back (that’s the bits that hurt so much).

When I started the PEA, I was totally and absolutely constipated (the kind of constipation that the phrase ‘stick up your ass’ fully describes). Today, my insides are falling out (know what I mean?) and my body is fighting to keep them in. There’s cramping…and then, there’s cramping!

This is my normal.

And, so far, I’m really sorry to say, PEA doesn’t seem to be making a difference…yet!

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Fibromodem by Purple Law Lady - 11M ago

Tummy

I spent most of the day under my (new – thank you, Mommy!) heated throw blanket on the couch, clutching at my ovaries…(weird image, huh?)

At 6.50pm, the pain lessened and my period arrived.

Sleep

3.30 am – 10.30 am (Ned’s whinging woke me up)

Oh, God, this is boring! …even for me!

Change of plan, me thinks…I shall only post when I have something to tell you.

Cool?

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Fibromodem by Purple Law Lady - 11M ago

Tummy

Nothing interesting to report.

Still no period.

Sleep

3.30 am – 10.30 am (alarm tone Happy by Pharrell Williams – start the day as you intend to end it!)

Pharrell Williams - Happy (Official Music Video) - YouTube

Getting to sleep seemed more difficult (remember I was still buzzing?) I slept through to my alarm without waking. Still didn’t want to get up (Maybe I’m one of those people who will NEVER bounce out of bed?)

Activities

Unfortunately, I crashed. I couldn’t even make it through the check-out with Mum (Thanks, Mommy, for paying for my groceries!) I headed to the car park to sit in the car, while my 68 year old mother hauled the shopping (at least, we have a disabled parking permit!) Mommy drove us back to her place where I picked up my car to drive home.

BUT every setback is a set up for a comeback!

Mood

Still hyper and talkative…until the crash! Then I just felt weak and tired…but, despite the disappointment, I was still in a relatively good mood…just exhaustipated.

See ya later, alligators!

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Fibromodem by Purple Law Lady - 11M ago

Tummy

After yesterday’s a-ha moment, I didn’t take any Colloxyl last night…and I pood like a normal person (that’s once!)

My actual tummy feels so much lighter…and comfortable.

Still no period.

Sleep

3.15 am – 11.15 am I don’t remember waking up during the night at all. Still didn’t want to get up, though (could that be more because my bed is so comfy and warm?)

Activities

Mood

Firstly, I had a shower. That’s a big thing (as some of you understand) What’s that got to do with mood? I hear you ask. Well, embarrassingly, I don’t shower every day. I’d be lucky if I shower once a week (I don’t work (anymore) or leave my house every day, so I don’t think it’s AS bad!) I have to be feeling relatively good to bother going to the trouble. Guess what? I’m feeling good.

I’m buzzing…literally! Anyone remember Xenedrine (before the original ‘recipe’ was banned in Australia)? The weight loss supplement? I’m feeling like when I was taking that. Personally, I don’t mind it (but it might not be to everybody’s liking). I’m hyper, I can’t stop talking and my body is not sure what to do with all this dancing blood in my veins (seriously, I feel like I have cartoon atoms zooming around inside) but I’m in a great mood!

And, the fog? It feels like I’ve put on a pair of prescription glasses and, all of a sudden, I can see clearly. I still lose my train of thought, my words…but I feel like a heavy blanket has been lifted.

See you tomorrow…

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Fibromodem by Purple Law Lady - 11M ago

Tummy

OMG! I pood! I don’t know if it was the PEA or the 4 Colloxyl I had last night…with the 3 from the night before and 2 the night before that…Whatever! I pood (3 times)! I am feeling so much better…but I really wouldn’t attribute that to PEA…yet.

No period yet.

Sleep

2 am – 11.45 am Only woke once but still had to drag myself out of bed,

Activities

Ahhh…now I don’t know how to measure mood; but, today was a very good day. (Once again, I can’t necessarily attribute this to PEA or to the relief of being empty.) I found myself dancing and singing around my kitchen. I laughed at myself and decided to record myself. I even called my neighbour so she could look out the window. Don’t believe me?

You Make Me Feel Like Dancing - YouTube

And, I can assure you that I don’t do THAT everyday (although I used to)! (That song is my PEA alarm tone – I want to be able to go out dancing!)

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