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Today, we celebrate the seventh anniversary of the day we learned Emily was cancer free after receiving CAR-T cell therapy!

“It is very inspiring to me to be 7 years cancer free and that my story is helping other kids from all over the world. We will continue to raise money for all of the kids around the world that need the same treatment that I got in hopes to try to get them to have the same end result that I did.

Always remember to never give up and smile everyday!” ~ Emily

We feel blessed every day to still have Emily in our lives and we are so thankful to be together as family and celebrate special milestones such as this.

We Believe!

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On May 6-7, Tom traveled to Long Beach, CA to participate in the 2019 PDA Cell & Gene Therapy Conference hosted by the Pharmaceuticals Drug Association (PDA).
 
The discussion Tom participated in, moderated by Michael Blackton of Adaptimmune, was focused on the patient’s perspective of CAR-T cell therapy and how the treatment affects the patient’s experience both while being treated and following. 
 
Many thanks to Michael, and to Brooke Schneider and the entire PDA committee for the invitation to participate, as well as thanks to ValSource for sponsoring the session Tom participated in!
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Team EWF continues to inspire us!

For the fourth consecutive year, the Emily Whitehead Foundation had the honor of being an official charity partner to the Pittsburgh Marathon. Our team of 25 runners participated in a variety of the marathon weekend events, including the 5k, relay, half marathon and full marathon.

For the first time this year, our very own hero and co-founder Emily Whitehead joined Team EWF on the marathon course and completed her very first 5k alongside her parents on Saturday morning!

It was just seven years ago that Emily was breathing only with assistance from a ventilator while fighting through the storm of her immune system being activated to kill her cancer — a memory that Tom says he recounted to himself as he and Kari followed Emily through the finish line.

We were also very excited to learn that our relay team placed 26th overall out of 1,047 teams in the marathon relay on Sunday!

We are so thankful to each of our Team EWF runners for the dedication and inspiration they bring not only to each other, but to the families that we support as well. We appreciate every one of you for running to Activate The Cure with us!

Thank you also to the embassadors who volunteered their time to help out and represent EWF at the Pittsburgh Marathon Expo on Saturday – and to Urban Impact for generously sharing a charity tent (and quesadillas!) with us as we welcomed our runners back from their marathon events.

Next up… Philadelphia Marathon 2019!

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It is an honor to announce that the Emily Whitehead Foundation has co-funded a grant in collaboration with Stand Up to Cancer and the 2019 Innovation In Collaboration Philip A. Sharp Awards to support advanced pediatric CAR-T cell therapy research.

With $125,000 in contribution from the Emily Whitehead Foundation, the $250,000 grant will support the research of Dr. Sarah Tasian, MD of Children’s Hospital of Philadelphia (CHOP) and Dr. Kimberly Stegmaier, MD of Dana-Farber Cancer Institute.

Through their collaborative research efforts, Dr. Tasian and Dr. Stegmaier will study CAR-T cell therapy as it applies to two patient groups that are highly susceptible to relapse — childhood Down Syndrome-associated ALL and Ph-like ALL. Specifically, the research will seek to test the effectiveness of using and training CAR-T cells to target two or more neoantigens, or genetic mutations, found on the patient’s cancer cells.

The hope is that this research can help lead to an increase in long-lasting remissions for these high-risk pediatric cancer populations.

In a press release shared by Stand Up to Cancer and the American Association for Cancer Research, Tom Whitehead is quoted saying, “We are pleased to continue our collaboration with SU2C and fund these extraordinary teams focused on pediatric cancer immunotherapy treatments. We know collaborative research is essential to lead to successful, less toxic treatments that will give more kids the chance to not only survive their cancer but thrive, healthy and happy.”

This is the second contribution EWF has granted through SU2C’s Sharp Awards. In 2018, the Emily Whitehead Foundation contributed $125,000 toward a $250,000 grant that supported the research collaboration of Toronto scientist Dr. Trevor Pugh and CHOP pediatric oncologist Dr. David Barrett.

We are incredibly thankful for the generosity of our donors and supporters alike who have made it possible for us to fund such innovative research projects — and thank you especially to Stand Up To Cancer for sharing our mission to activate the cure for all children with cancer!

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On April 17, we joined Steven Spielberg and Comcast CEO Brian Roberts to unveil “The Universal Sphere” at the Comcast Technology Center in Philadelphia.

The sphere is a public theater experience that plays a short, 7-minute film about the power of ideas and features Emily and Penn Medicine’s Dr. Carl June.

The unveiling event included a fireside chat between Roberts and Spielberg. When Emily asked Steven Spielberg what his favorite part of the film is, he said to her in front of the audience – you are my favorite part of the film.

Today also marks the 7 year anniversary of the day Emily received her first CAR-T infusion at Children’s Hospital of Philadelphia on April 17, 2012. 

It is a great honor to have Emily’s story included in this inspiring project, and it was very meaningful to share this day with Spielberg, Dr. June, and the great innovators at Comcast, DreamWorks, and all who collaborated to bring this exhibit to life.

We Believe!!

Read Full Article
  • Show original
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Today, we celebrate the seventh anniversary of the day we learned Emily was cancer free after receiving CAR-T cell therapy!

“It is very inspiring to me to be 7 years cancer free and that my story is helping other kids from all over the world. We will continue to raise money for all of the kids around the world that need the same treatment that I got in hopes to try to get them to have the same end result that I did.

Always remember to never give up and smile everyday!” ~ Emily

We feel blessed every day to still have Emily in our lives and we are so thankful to be together as family and celebrate special milestones such as this.

We Believe!

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

On May 6-7, Tom traveled to Long Beach, CA to participate in the 2019 PDA Cell & Gene Therapy Conference hosted by the Pharmaceuticals Drug Association (PDA).
 
The discussion Tom participated in, moderated by Michael Blackton of Adaptimmune, was focused on the patient’s perspective of CAR-T cell therapy and how the treatment affects the patient’s experience both while being treated and following. 
 
Many thanks to Michael, and to Brooke Schneider and the entire PDA committee for the invitation to participate, as well as thanks to ValSource for sponsoring the session Tom participated in!
Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

Team EWF continues to inspire us!

For the fourth consecutive year, the Emily Whitehead Foundation had the honor of being an official charity partner to the Pittsburgh Marathon. Our team of 25 runners participated in a variety of the marathon weekend events, including the 5k, relay, half marathon and full marathon.

For the first time this year, our very own hero and co-founder Emily Whitehead joined Team EWF on the marathon course and completed her very first 5k alongside her parents on Saturday morning!

It was just seven years ago that Emily was breathing only with assistance from a ventilator while fighting through the storm of her immune system being activated to kill her cancer — a memory that Tom says he recounted to himself as he and Kari followed Emily through the finish line.

We were also very excited to learn that our relay team placed 26th overall out of 1,047 teams in the marathon relay on Sunday!

We are so thankful to each of our Team EWF runners for the dedication and inspiration they bring not only to each other, but to the families that we support as well. We appreciate every one of you for running to Activate The Cure with us!

Thank you also to the embassadors who volunteered their time to help out and represent EWF at the Pittsburgh Marathon Expo on Saturday – and to Urban Impact for generously sharing a charity tent (and quesadillas!) with us as we welcomed our runners back from their marathon events.

Next up… Philadelphia Marathon 2019!

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

It is an honor to announce that the Emily Whitehead Foundation has co-funded a grant in collaboration with Stand Up to Cancer and the 2019 Innovation In Collaboration Philip A. Sharp Awards to support advanced pediatric CAR-T cell therapy research.

With $125,000 in contribution from the Emily Whitehead Foundation, the $250,000 grant will support the research of Dr. Sarah Tasian, MD of Children’s Hospital of Philadelphia (CHOP) and Dr. Kimberly Stegmaier, MD of Dana-Farber Cancer Institute.

Through their collaborative research efforts, Dr. Tasian and Dr. Stegmaier will study CAR-T cell therapy as it applies to two patient groups that are highly susceptible to relapse — childhood Down Syndrome-associated ALL and Ph-like ALL. Specifically, the research will seek to test the effectiveness of using and training CAR-T cells to target two or more neoantigens, or genetic mutations, found on the patient’s cancer cells.

The hope is that this research can help lead to an increase in long-lasting remissions for these high-risk pediatric cancer populations.

In a press release shared by Stand Up to Cancer and the American Association for Cancer Research, Tom Whitehead is quoted saying, “We are pleased to continue our collaboration with SU2C and fund these extraordinary teams focused on pediatric cancer immunotherapy treatments. We know collaborative research is essential to lead to successful, less toxic treatments that will give more kids the chance to not only survive their cancer but thrive, healthy and happy.”

This is the second contribution EWF has granted through SU2C’s Sharp Awards. In 2018, the Emily Whitehead Foundation contributed $125,000 toward a $250,000 grant that supported the research collaboration of Toronto scientist Dr. Trevor Pugh and CHOP pediatric oncologist Dr. David Barrett.

We are incredibly thankful for the generosity of our donors and supporters alike who have made it possible for us to fund such innovative research projects — and thank you especially to Stand Up To Cancer for sharing our mission to activate the cure for all children with cancer!

Read Full Article
  • Show original
  • .
  • Share
  • .
  • Favorite
  • .
  • Email
  • .
  • Add Tags 

On April 17, we joined Steven Spielberg and Comcast CEO Brian Roberts to unveil “The Universal Sphere” at the Comcast Technology Center in Philadelphia.

The sphere is a public theater experience that plays a short, 7-minute film about the power of ideas and features Emily and Penn Medicine’s Dr. Carl June.

The unveiling event included a fireside chat between Roberts and Spielberg. When Emily asked Steven Spielberg what his favorite part of the film is, he said to her in front of the audience – you are my favorite part of the film.

Today also marks the 7 year anniversary of the day Emily received her first CAR-T infusion at Children’s Hospital of Philadelphia on April 17, 2012. 

It is a great honor to have Emily’s story included in this inspiring project, and it was very meaningful to share this day with Spielberg, Dr. June, and the great innovators at Comcast, DreamWorks, and all who collaborated to bring this exhibit to life.

We Believe!!

Read Full Article

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