Reclaiming lives after Stroke We help younger Stroke Survivors reclaim their lives through active peer support and independent recovery. Different Strokes is a charity run by younger stroke survivors for younger stroke survivors.
New charity partnership aims to raise £300,000 to help support thousands of stroke survivors to #SurviveAndThrive
Scotmid has announced Chest Heart & Stroke Scotland as its 2019/20 Charity of the Year – aiming to raise £300,000 to support stroke survivors to rebuild their lives and thrive.
The year-long partnership between the charities – including Northern Ireland Chest Heart & Stroke (NICHS) and England’s Different Strokes – and Scotmid aims to not only raise a substantial amount of funding but also to increase awareness of the vital work the charity carries out in helping people, who have suffered a stroke.
In the communities served by Scotmid, one in five people are affected by chest, heart or stroke conditions. 100,000 strokes take place in the UK every year and more people are surviving. Leaving hospital is only the start of their rehabilitation journey. Without support, survivors can be left feeling anxious and frustrated, which can lead to social isolation and depression.
Chest Heart & Stroke Scotland (CHSS), Northern Ireland Chest Heart & Stroke (NICHS) and England’s Different Strokes support people across the communities, which are served by the retailer’s stores, to rebuild their lives.
The rehabilitation support workers and volunteers help people, who have survived a stroke, to achieve the things that are important to them, so that while their life will never be the same again, it will still be worth living.
Staff across Scotmid’s food stores, Semichem stores, Scotmid Funerals and Lakes & Dales stores in Scotland, Northern Ireland and northern England will take part in various fundraising activities including bake sales, sponsored runs, zip slides, triathlons and much more to support the charities.
Jane-Claire Judson, Chief Executive at Chest Heart & Stroke Scotland, said:
“We’re absolutely delighted to have been chosen as Scotmid’s Charity of the Year! The new partnership will help thousands of stroke survivors and their families in Scotland rebuild their lives.
“Throughout the year Scotmid will be raising money to fund our vital Rehabilitation Support Services. Our services support people after a stroke to regain their confidence, achieve their personal goals and get back to doing the things they love. We are really looking forward to working together to help ensure there is no life half lived in Scotland!”
Austin Willett, Chief Executive at Different Strokes, said:
“It’s fantastic to be involved in this partnership, and to be able to benefit from the fundraising efforts of Scotmid, Semichem Stores and Lakes & Dales stores. We’ve worked closely with CHSS in the past year, so not only does this help to cement our partnership work but will help to raise funds for Different Strokes. The monies raised by Scotmid employees in the North of England will directly benefit Different Strokes, so we are delighted to be a beneficiary of this and really appreciate the support.”
John Brodie, Chief Executive of Scotmid Cooperative, said:
“We are really excited to announce our new Charity of the Year partnership with Chest Heart & Stroke Scotland. The target of this year’s partnership will be to raise money to fund the charity’s vital Rehabilitation Support Services.
“This is a cause that strongly resonates with our staff, members and customers because one in five people in the communities we serve will be affected by chest, heart or stroke conditions.
“Our core purpose is to serve our communities and to improve people’s everyday lives, so the partnership is an excellent fit. Our aim during this charity partnership will be to raise the funding to help people, who have suffered from a stroke, to both survive and thrive.
“There are a lot of plans in the pipeline already for fundraising, so we look forward to talking to staff, members and customers about how they can help us to raise as much money as possible for Chest Heart & Stroke Scotland.”
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The post Charity Partnership with Scotmid Coop appeared first on Different Strokes.
Call for national neurology plan following largest ever survey of people with neurological conditions
People with neurological conditions are facing long waiting times, poor access to specialists and a lack of personalised care. That’s according to a new report published by The Neurological Alliance. The report is based on the largest ever survey of people with neurological conditions in England, with 10,339 responses. It also found failings in the social care and welfare system, as well as discrimination in the workplace for people with neurological conditions. The Neurological Alliance argues that a National Plan for Neurology in England must be urgently developed to address the failings in the system. Additionally, The Neurological Alliance is encouraging people to take action by writing to their MP about the issues raised in the report.
Of the 10,339 respondents, 39 per cent reported seeing a GP five or more times before being referred to a neurologist. Following referral, one in three patients waited more than 12 months for their appointment. The survey also found wide regional variation in waiting times. Furthermore, the longest waits are experience by people with neurological conditions living in the most deprived areas. Access to other specialists, such as specialist nurses, physiotherapy or mental health support is also subject to postcode lotteries.
The survey also identified the need for improved information provision when people are diagnosed. Only 43 per cent of respondents said they were offered written information. A similar proportion were not signposted to places to find out further information. This can be compared to 73 per cent of people with cancer who said they were given written information at the time of diagnosis. This comparison shows what is possible in terms of good care. Only 55 per cent of people with neurological conditions stated that they felt involved in decision-making for their care. This can be compared to people with cancer where the national score for feeling involved in decision-making is 78 per cent. Just ten per cent of neurological survey respondents have been offered a care plan to help manage their condition.
The survey also highlighted the acute failures of the social care system. Half of respondents say that the system is barely meeting their needs. The survey shines a light on informal carers of friends and family, who are propping up a failing system. Almost half of respondents indicated that they receive care (that they do not pay for) from a friend or family member. Respondents suggested that becoming dependent on family and friends can change relationships and people often feel themselves to be a burden. Disability discrimination continues to be widespread with over one in three respondents saying they had been discriminated against because of their neurological condition. 29 per cent state that their contract of employment has been terminated because of their neurological condition.
About the survey
The National Neurology Patient Experience Survey presents a comprehensive picture of the experiences of people living with a neurological condition in England. The survey has been run biennially by The Neurological Alliance since 2014. The survey ran online and in select neurology clinics between October 2018 and March 2019. It was managed by survey company Quality Health. It received 10,339 responses. The full survey findings and methodology, along with the stories behind the data, can be read HERE
About The Neurological Alliance
The Neurological Alliance is a coalition of 80 organisations working together to transform outcomes for the millions of people in England with a neurological condition. For more information about the survey or for a discussion about the findings please get in touch email@example.com or 01923 882590.
The post Call for National Neurology Plan Following Largest Ever Survey appeared first on Different Strokes.
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The post RECLAIM: An Event for Younger Stroke Survivors in Oxford appeared first on Different Strokes.
We are delighted to share that the NHS has announced today that they will be routinely funding life-changing PFO closures in stroke survivors,
An announcement posted on the NHS England website today states:
“Thousands of people are set to benefit from an innovative new heart procedure to prevent strokes in younger people.
The new treatment, unveiled today as part of the NHS Long Term Plan, tackles ‘hole in the heart’.
Hole in the heart – or Patent Foramen Ovale (PFO) – is a common condition which can trigger strokes.
Thousands of people living with PFO in England live in fear of another stroke and this potentially lifesaving procedure helps remove the risk by closing the hole, giving people with the condition peace of mind about future health risks.
The new measure, to be available across the country, is expected to benefit up to 1,500 patients a year.
Tackling major killer conditions such as stroke and heart attacks is a major part of the NHS Long Term Plan published earlier this year.
Professor Stephen Powis, medical director for NHS England, said: “This truly lifesaving and life-changing procedure will now be available across the NHS, and will mean people can live without the worry of having a stroke.
“As part of the NHS Long Term Plan, we will continue to test the most advanced procedures available anywhere across the globe, collecting real world evidence to ensure NHS patients receive world-class care while delivering value for the taxpayers’ pound.”
A PFO is a small flap-like opening between the top two chambers of the heart which helps with circulation when a baby is still in the womb.
It usually closes after birth, however can stay fully or partially open increasing stroke risk, where small blood clots pass through the hole and get stuck in the arteries of the brain.
PFO usually does not cause any symptoms with the function of the heart, so it often is not picked up until someone suffers an event like a stroke or is tested for other conditions.
Most people will not require surgery to close it or medication, unless they have other conditions such as a history of stroke, or have a high risk of developing blood clots.
The new surgery involves a small device made up of two umbrellas joined at the centre put into the hole to close it up. The procedure normally takes around an hour and is performed under local anaesthetic and it costs around £8,000 per patient.”
Lauren McMillan, Marketing Co-ordinator Different Strokes, said:
“We are delighted by the announcement today from NHS England. This decision is so significant for the stroke survivors and their families affected, who have spent the last few years living in limbo. This outcome will not only prevent further strokes but allow everyone affected to begin to move forward in reclaiming their lives. “
The post PFO Closure Operations Given The Green Light by the NHS appeared first on Different Strokes.
Different Strokes held a training day for new volunteers including Ambassadors and Group Co-ordinators on Wednesday 3rd July. This was a great opportunity for our new recruits to get together, learn more about us, and to discuss ways in which we can effectively promote the charity to ensure that many more people are aware of what we do. Those who attended were Frances, Sue, Anthony, Sas and Jim, who will be supporting us in an ambassadorial role going forward, and Nathan, Nick and Kat, who in recent months have become Group Co-ordinators. Seven of these individuals are stroke survivors, further demonstrating our ethos of survivors supporting survivors.Our new ambassadors (L-R) Frances, Anthony, Sas, Sue & Jim Austin Willett, CEO said‘It was great to be able to meet our new ambassadors and group co-ordinators, and to have such an engaging and interactive day which everyone fully participated in. I know that everyone will do a great job in helping to promote the charity and running groups in their local area. The day was such a success that we hope to run similar events in the future, so would be delighted to hear from anyone else who would like to be an ambassador or start up a new group.’Caroline our Group Network Coordinator with our new Group Co-ordinators Kat, Nathan and NickOur thanks to support from Irwin Mitchell for providing us with free premises and catering for this event.
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The Stroke Alliance For Europe (SAFE) is a non-profit-making organisation that represents a range of stroke support organisations (SSO’s) from across Europe.Its goal is to drive stroke prevention up the European political agenda and prevent the incidence of stroke through education.Each year SAFE holds a number of Regional Conferences and our CEO Austin Willett attended one in Paris on Thursday, May 9th.SAFE member organisations from 30 European countries gather at these meetings to discuss the following items:A review of SAFE’s work, including the updating of its strategy.Discussion of the implementation of the Stroke Action Plan for Europe, focusing particularly on work that can be done in each countryThe utilisation of the SSOFT website to enable the growth of SSOs and more effective advocacyPreliminary findings and messages arising from the Economic Impact of Stroke researchSAFE Research ProjectsSAFE and World Stroke Day Round-up of activity from attending membersAustin said: ‘It was great to be able to catch up with colleagues doing similar work to Different Strokes in other countries, and to hear about what initiatives are taking place at a European level. As well as the bigger picture of what is happening across Europe, it was really good to hear about specific initiatives that individual organisations are working on, and to be able to update people on our work at Different Strokes, such as our recent campaign regarding PFO Closures.’
The post Austin attends The Stroke Alliance For Europe- Regional Conference 2019 appeared first on Different Strokes.