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I’ve noticed that I often get held up or feel paralyzed by the excuse of not knowing what to do. I label it as an “excuse” because ..read more
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My husband, Justin, and I have an annual tradition. Every summer, we go to our second-favorite city, Baltimore. We have been making this ..read more
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Normalizing the cardiac levels of frataxin via gene therapy or an alternative strategy could be an effective treatment for cardiac ..read more
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Friedreich's Ataxia News by Matthew Lafleur - 6d ago
“But the bird fly! I want jump off the roof!” My 3-year-old mind believed this totally. I stamped my tiny shoe. I had made up my mind ..read more
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I recently traveled to the bona fide destination wedding of some dear friends. The groom has had a significant and recognizable impact on ..read more
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Developing gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is quite another. German legal ..read more
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I celebrated my birthday Aug. 24. I wrote in my recent column about the importance of looking forward with a positive attitude despite my ..read more
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Friedreich’s ataxia can occur as a late-onset disease, with symptoms appearing after age 50, a case-report shows. Late-onset cases lack ..read more
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“The heart really is an amazing machine,” the technician mused in the dim examination room.  I was shirtless on the sterile white ..read more
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There are more than 7 billion different opinions in the world — one for each person on this planet. I’m not an authority on much, ..read more

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