On this episode, our guest is Jo Southall, Occupational Therapist and Patient Advocate. Jo is an Independent Occupational Therapist and an expert patient with many years of experience self-managing complex health conditions. Jo began working life in the sport and Outdoor Adventure industries. After being diagnosed with Hypermobile Ehlers Danlos Syndrome, Jo returned to study and gained a BSc degree in Occupational Therapy from the University of Northampton. Jo was named Changemaker Student of the Year for 2016 in connection with their work in helping to bring wheelchair basketball to the unive ..read more

On this episode, British-Iranian journalist Punteha van Terheyden discusses the recent tragic death of Stephanie Aston in New Zealand and the article Punteha wrote about Steph and Punteha’s own experiences with hypermobility and other medical conditions. Punteha van Terheyden - https://www.vtfeatures.co.uk/ 'Stephanie Aston died after doctors said she was faking her symptoms. I'm not even surprised' - Story by Punteha van Terhayden - https://www.mamamia.com.au/stephanie-aston-death/ People magazine article about Stephanie Aston - https://people.com/ehlers-danlos-new-zealand-stephanie-aston-die ..read more

On this episode, our guest is Dr. Brit Harmon, a Doctor of Physical Therapy who specializes in hypermobility and women’s health. Dr. Brit works to help women to feel more empowered in their ability to create sustainable and obtainable shifts in their bodies and minds. Her background in Hypermobility, the female cycle, holistic health, and the pelvic floor has allowed her to connect the dots in helping women to more fully understand how to care for themselves. Links: https://www.bloomembody.com/ https://www.bloomembody.com/free-resources ..read more

Dr. Brad Tinkle, one of the leading specialists in the treatment and diagnosis of hypermobility disorders, answers many of the key questions relating to hypermbility disorders: how rare (or common) is it? How do we treat it effectively? How do we increase awareness? How do we use social media responsibly? And so much more. It's a can't miss conversation that we hope you enjoy! Dr. Tinkle is an MD, PhD clinical geneticist at Peyton Manning Children’s Hospital in Indianapolis, Indiana. Previously he has been the Medical Director of Clinical Genetics at Advocate Children’s Hospital in Chicagoland ..read more

Dr. Bluestein and Kerry talk to Dr. Liberty Boucher, DDS about issues with the teeth, mouth, and jaw that are common in patients with EDS. Dr. Boucher gives some tips on how to improve the overall health of the mouth ..read more

On this episode, Jeannie DiBon discusses the importance of the breath and takes us through a quick breathing exercise that we can all do at home to bring a bit more ease and calm into our lives. Jeannie is a movement therapist who specializes in working with patients who have Hypermobile Ehlers-Danlos Syndrome and Chronic Pain. If you have any questions or suggestions for future episode topics, feel free to email us at hypermobilityhappyhour@gmail.com ..read more

Dr. Bluestein and Kerry interview Lila Rosenthal, MD, specialist in Mast Cell Activation Syndrome and related disorders. Dr. Rosenthal discusses options for painful menstrual periods, pelvic pain and more ..read more

On this episode, Dr. Bluestein chats with Jyothi Rao, MD, author of "Finding Balance: Empower Yourself with Tools to Combat Stress and Illness". Dr. Rao is Board Certified in Anti-Aging Medicine and Internal Medicine and talks about how she addresses and treats hypermobility disorders and related conditions like Mast Cell Activation Syndrome ..read more

On this episode, Dr. Bluestein and Kerry talk to Jeannie DiBon, a movement therapist who specializes in Hypermobile Ehlers-Danlos Syndrome and other chronic pain disorders. Jeannie has more than a decade of experience in working with and supporting patients with their pain management and guidance on the path to improved health and overall wellbeing. Jeannie’s practice includes movement for pain management purposes, post-surgery therapy and injury rehabilitation and other targeted movement therapies that work with an individual’s current level of strength, balance and proficiency. Jeannie write ..read more

In this episode, Dr. Bluestein and Kerry discuss some of the paradoxes of having EDS including: How many of us are told we “look good” while we feel not-so-great (and the issues that can arise out of that phenomenon) How EDS seems to not exist at all outside of the EDS community but inside the community, it often seems like almost everybody has the condition Why so many of us have similar stories (delayed diagnosis, extreme pain, etc.) and yet we end up feeling so alone and isolated (and what we can do about it ..read more