Whitney Dafoe
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Covers articles about living with Severe ME/CFS - advice, resources and inspiration for patients, caregivers, doctors and supporters, by Whitney Dafoe.
Whitney Dafoe
3w ago
I haven’t felt the wind on my back in 11 years. But I still feel free…We are not our circumstances. This physical world does not define us nor can it confine us. We are infinite beings…This year on ME/CFS awareness day, let’s acknowledge what ME/CFS has taken from us, But let’s also look around at the life we still have ..read more
Whitney Dafoe
3w ago
An anthem for ME/CFS and Long Covid patients leading up to ME/CFS Awareness Day. YOU ARE NOT ALONE. This song is a beautiful testament to our connectedness no matter our physical isolation ..read more
Whitney Dafoe
1M ago
I’m desperate to feel better. I would do anything to feel better. So I wind up continuing many treatments without knowing what they are really doing. This can be so stressful and scary. We have to remember that all we can do is our best in a confounding situation that is not our fault ..read more
Whitney Dafoe
2M ago
Laziness is not the opposite of being sick. How have we come to this place where if we show any lack of productivity we are terrified of being labelled "lazy" and therefore not legitimately sick? …how do we start to re-frame the prejudice against us ..read more
Whitney Dafoe
2M ago
…I realized that ME/CFS/Long Covid is not a series of steady states that suddenly switch from one to another…ME/CFS/Long Covid is an ever changing journey and we never know where it will take us. We can do the best we can and no more ..read more
Whitney Dafoe
2M ago
The fact that severe patients have to hurt themselves to advocate for the world to treat Long Covid and ME/CFS patients like human beings is a damning testament to the state of current post viral illness politics…But until researchers find a diagnostic test, we will have to keep screaming at the brick wall of indifference until our voices literally tear it down ..read more
Whitney Dafoe
2M ago
Today we honor all of the millions of people who got Covid and just never recovered….We have arrived here from different places, and while we must acknowledge those differences, we also must remember that we have one common goal: END ME/CFS and Long Covid. It is so important that all ME/CFS and Long Covid patients unite ..read more
Whitney Dafoe
3M ago
How have we come to a place where hospitals are not only abusing people, but *killing* them? These are the most basic centers for health, healing and care in our society…We should feel safe going to a hospital knowing they are the best place in the entire world to be when we are sick or unwell ..read more
Whitney Dafoe
3M ago
Dear Royal Lancaster Infirmary…Every minute you wait is just one more minute of malpractice and abuse exacerbating Millie’s stomach sensitivity and likely making it worse. You are forcing her to hurt herself in order to stay alive…Millie needs a PEJ tube right now, this moment. Not in a few hours, not tomorrow, not in 5 weeks when she is dead. Right now ..read more
Whitney Dafoe
3M ago
ME/CFS is not a joke to use to pawn snake oil products…BBC News, the TV show Dragon’s Den and Giselle Boxer are directly responsible for the future deaths and suffering of millions of ME/CFS patients due to their spread of this bigoted misinformation ..read more