Episode 354: Arlene Faulk, Part 4
Chronic Wellness
by Annette Leonard
8M ago
To see Arlene’s tai chi: https://www.youtube.com/user/faulktaichi To visit Arlene’s website: https://arlenefaulk.com/ If you’re in the Chicago area and want to take classes: https://faulktaichi.com/arlene-faulk/ Thanks for joining me for this final installment of my conversation with teacher and author Arlene Faulk. As she began to do tai chi she found that she didn’t recover, but started to feel “less” of something. She documented that process. In so doing she found that recovery can be subtractive rather than additive. With a father and brother who are both physicians, Arlene, did have some ..read more
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Episode 353: Arlene Faulk, Part 3
Chronic Wellness
by Annette Leonard
8M ago
To see Arlene’s tai chi: https://www.youtube.com/user/faulktaichi To visit Arlene’s website: https://arlenefaulk.com/ If you’re in the Chicago area and want to take classes: https://faulktaichi.com/arlene-faulk/ Welcome back to the third installment of my conversation with writer and teacher Arlene Faulk. What was it like having a chronic illness at work before the ADA or insurance portability/insurance for preexisting conditions? As her symptoms worsened, she contacted an insurance company for a quote about what it would cost to privately cover herself. She was told she was uninsurable. If sh ..read more
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Episode 352: Arlene Faulk, Part 2
Chronic Wellness
by Annette Leonard
8M ago
To see Arlene’s tai chi: https://www.youtube.com/user/faulktaichi To visit Arlene’s website: https://arlenefaulk.com/ If you’re in the Chicago area and want to take classes: https://faulktaichi.com/arlene-faulk/ Welcome back to part two of my conversation with tai chi teacher Arlene Faulk as we discuss her most recent book, Walking on Pins and needles about her journey with MS. Rejoining our interview, Arlene was living in New York City, in her late 20s, and realizing that her family’s pattern of not asking for help might not be serving her. What was it like to ask for help? Living with daily ..read more
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Episode 351: Arlene Faulk, Part 1
Chronic Wellness
by Annette Leonard
8M ago
To see Arlene’s tai chi: https://www.youtube.com/user/faulktaichi To visit Arlene’s website: https://arlenefaulk.com/ If you’re in the Chicago area and want to take classes: https://faulktaichi.com/arlene-faulk/ My guest today is teacher and author Arlene Faulk. Arlene writes about her journey with MS and discovering the healing power of tai chi in her powerful new memoir Walking on Pins and Needles. In this episode we start back at the beginning of your symptoms, the first day of a rigorous management training program when she is just 22 years old. Under a tremendous amount of stress, she sta ..read more
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Episode 350: Rituxan and the Vaccine
Chronic Wellness
by Annette Leonard
8M ago
I'm recently back from seeing my team of specialists up in Seattle. I go up to UW several times a year to consult about my lung disease. This trip I was able to consult with a rheumatologist who treats other patients with antisynthetase syndrome. As you know I take Rituxan (Rituximab, Ritux) as an infusion for my autoimmune disease. Part of how it works is it kills and keeps B cells from maturing. The COVID vaccine (and other MRNA vaccines) rely heavily on B cells to replicate and produce the autoantibodies that make the vaccines effective. While I've had 4 COVID vaccines at this point, I've b ..read more
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Episode 349: Money and Chronic Illness Part 2
Chronic Wellness
by Annette Leonard
8M ago
Thank you to those of you who have responded about this topic. In recent conversations, I've talked with some folks about their application for disability and with someone else who is thinking about leaving work because of illness/disability. At a time when managing the chaos of these diagnoses and their impacts: relationships ending, friendships changing, our bodies hurting, to also have our housing and finances also be jeopardized is terrifying. One has to leave work in order to apply for SSD (social security disability) and more than 80% of applicants are turned down the first time they app ..read more
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Episode 348: Money and Chronic Illness Part 1
Chronic Wellness
by Annette Leonard
8M ago
This will be the first of a few installments about finances and chronic illness. Poverty is both a cause and a result of chronic conditions. More than half of the US has a chronic condition. Thinking about my own experience and autoimmune disease, we carry a predisposition for these diseases, but they are often ignited by an illness, accident, injury or trauma. How much might poverty contribute this kind of disease expression? Worse outcomes and death can be traced to poverty. If my family and friends hadn't supported me financially, I would not still be living in this house. I first got sick ..read more
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Episode 347: Opening Doors to our Future
Chronic Wellness
by Annette Leonard
8M ago
For my birthday a friend gave me an astrological reading. During that conversation, I was told that I have the gift of processing but can sometimes get stuck in doing that. She offered me the metaphor of a room with two doors. The one in front which represents the future is closed, the one behind me which is not quite closed, represents the past. The "not quite closed," is indicative of my tendency to keep working, processing, and holding on to the past. However, if I would just open the door in front of me, the wind created by that change would close the door behind me. The more actively I pu ..read more
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Episode 346 No Shirt. No Shoes. No Service.
Chronic Wellness
by Annette Leonard
8M ago
I'm feeling crummy today! I've just received my 4th dose of vaccine. I'm eligible because of being severely immunosuppressed/immunocompromised. I'm on a number of meds to suppress my immune system, one of them is an IV drug called Rituxan. Rituxan works by killing and keeping B cells from maturing. This is a problem because B cells are the primary way that vaccines produce and "remember" the antibodies created by vaccines. There are numerous studies now demonstrating how ineffective the COVID vaccine is in people receiving Rituxan. One study said that it was "statistically insignificant for pe ..read more
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345 Handling Isolation
Chronic Wellness
by Annette Leonard
8M ago
345 Handling Isolation by Annette Leonard ..read more
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