The MS Gym Podcast
689 FOLLOWERS
Multiple Sclerosis Podcast for living a life by design not diagnosis. Stay tuned to listen to the latest news.
The MS Gym Podcast
3M ago
I have the privilege today to interview our latest guest Dr. Samantha Roman, better known on TikTok as Dr. Sam. You'll learn valuable insights from our guest, who's not only a John Hopkins MS-trained neurologist, but a fellow MS warrior. In today's podcast, we'll discuss Dr. Sam's:
Extensive education in mental health and neuroimmunology
Experiences in MS research
Initial symptoms, diagnosis, and MS treatments
Experience with "medical student syndrome"
Views on diet, exercise, and lifestyle choices
Following on social media, most notably TikTok
Desire to educate our community about all ..read more
The MS Gym Podcast
4M ago
Join us for our podcast as we learn more about Brenda, one of the Original Gymmers (OG) in The MS Gym. Today, she'll talk about her:
Initial symptoms
Unexpected diagnosis
DMT and treatment choices
Journey to find The MS Gym
Her commitment to exercise
Her change in vocation
Travel bug origins
Mobility aids that assist her in her passion for global travel
Upcoming plans
Advice to fellow Chronic Illness Warriors
MS Gym Links
The MS Gym ..read more
The MS Gym Podcast
5M ago
Life can change so quickly when diagnosed with a chronic illness. Things we once held tightly to like our jobs, hobbies, abilities, family and friends can disappear in the blink of an eye. We can find ourselves lost and isolated from the world around us. Today’s podcast guest tells us how she channelled her own struggles, fear and uncertainty into her TikTok videos and created a safe space and community for others who are struggling with chronic illness. What started out as a wobbly dance turned into 41,000 engaged followers, and a whole world of purpose.
Join me as we get social with Julie an ..read more
The MS Gym Podcast
6M ago
Social media is all around us and is a valuable tool for spreading knowledge, influencing others, and creating awareness. Today, we will learn from Toronto-born Christina Andaya as she shares about how she uses social media to:
Create community and share about her own MS journey
Raise awareness about atypical MS symptoms and unusual diagnosis in minority ethnic groups
Collaborate with organizations, such as MS Canada and #sothisisMS
Showcase her involvement in the Miss Galaxy Canada competition
Explore career opportunities
Learn more about Christina Andaya.
Instagram
Christina Andaya - Socia ..read more
The MS Gym Podcast
6M ago
Today's episode is a super special one because I get to reintroduce and/or introduce the MS Gym to the masses.
The MS Gym has been around for almost 6 years and has thousands of followers, but there are upwards of 3 million people worldwide who have MS, so there's always someone newly diagnosed out there or just discovering us who may want to know more about exactly who we are.
Who's the founder? Where's it located? What's it all about? How can I benefit from it? And, what does it cost?
Our audience is going to get all of that information and more in today's episode as I had the unique o ..read more
The MS Gym Podcast
11M ago
With summer, vacation months upon us, at least here in the U.S., for those of us living with mobility issues, it adds on an extra layer of complexity and consideration into planning a trip.
Things like...Is your vacation rental gonna have steps? Is it going to have an elevator? Are you going to be able to get to your connecting flight fast enough through the airport? Are you going to hold everybody back because you're slow? Are you even going to be able to enjoy yourself on the trip? You know what I'm talking about.
Today's guest is going to tell you how you can conquer all of your fear ..read more
The MS Gym Podcast
1y ago
Welcome back to our 3rd and initially unplanned episode with Dr. Richard Burt, author of the recently released book, Everyday Miracles and the OG provider of HSCT here in the US.
Let me explain why we thought it would be useful for our listeners, as well as Dr. Burt to come back and re-hash some of Dr. Burt's touch points from the first two episodes. In particular his stance on NOT treating PPMS and non-active SPMS with HSCT.
You see, after the first two episodes, I witnessed rumblings of concern and discontent within the online HSCT community. I belong to multiple HSCT groups and most had at ..read more
The MS Gym Podcast
1y ago
Today, we'll chat with one of our Original Gymmers, Jan J, and learn about her:
Misdiagnosis and surgical treatment
Primary symptoms and their impact on her life
Change in occupation
Adventures living in foreign lands
Love for travel and how that looks after diagnosis
Introduction to the The MS Gym
Love for the Members Only Corner Facebook group
Strategies to keep calm and maintain a positive outlook
Ability to find joy in daily chores
Future travel plans and bucket list destinations
Goals for finding continued freedom
Advice to keep moving your body
The MS Gym Links:
The MS Gym
  ..read more
The MS Gym Podcast
1y ago
Join me today to uncover what purposes and desires reside in your heart that you want to share with the world.
Are you passionate about a specific hobby, diet, activity or cause?
Today, I'll talk about my own desire to become an advocate for disability and also my favorite clothing line lululemon.
It's my desire that disability be part of the "diversity" movement in word and in action.
Links
The MS Gym
Join me on my advocacy journey:
Jodesfeltham on Tiktok
Jodesfeltham on Instagram ..read more
The MS Gym Podcast
1y ago
I'm super excited about these next two episodes!
Of course, any episode that has to do with HSCT (hematopoietic stem cell transplant) is super important to me. For the last 10 years, I've been a vocal advocate for HSCT. Screaming about it from the top of my lungs through social media, blogging, and to anyone who would listen or inquired. As you may or may not know, my co-host, Jodi, and I have both received HSCT for our MS. I had mine in Russia 10 years ago, and Jodi in Mexico in 2018. So when Dr. Richard Burt's team reached out to us to discuss all things HSCT, as well as his recently release ..read more