I decided today to start writing again in hopes of helping others with Chronic Illness navigate through all the emotions and hardships that those who have never had this type of illness can understand. The feeling of knowing you have an illness that causes chronic pain, nausea, dislocations, GI issues, effects your teeth, eyes and hair is hard enough. Imagine now, realizing that this illness will be with you everyday, every hour, for the rest of your life is not something easily imaginable until it happens to you. The energy it takes to function while your body is dealing ..read more

A Day Out of My House: The Farmer’s Market   Saturday was a pretty great day. I woke up in less pain than I had in weeks. There was no way I was going to let this day pass me by. So I called my family and we did one of my favorite weekend activities, go to Jaemor Farms Farmers’s Market.    I love Jaemor farms because it’s not too far of a drive, they have the best produce at very reasonable prices, and it’s a wonderful way to spend the day with the family. But frankly, any day out is an amazing day lately. My joint pain from Ehlers-Danlos syndrome has been terrible lately. Some days I d ..read more

     The Long Road to an Ehlers-Danlos Diagnosis Above is a photograph of my medical binder. Each page in this binder represents a doctor's visit, or diagnostic test I had done as I was searching for a diagnosis. This binder represents five years of my life. During my journey, I've seen a total of 32 doctors (not counting E.R. doctors or physical therapists).       Now, let's start at the beginning. I was completely symptom free until the age of thirty.  That is when my world completely changed. Up until then, I could do splits like it was nothing or hyper-extend my joints. I just though ..read more

Bendy is Beautiful: A Blog About Living With Ehlers-Danlos Syndrome   Hello everyone. Welcome to my blog, Bendy is Beautiful.  For those who are unaware, Ehlers-Danlos syndrome is a connective tissue disorder that causes your body to produce faulty collagen. It can effect many different areas of your body.  The largest problem for me is how it affects my joints. The faulty collagen causes my connective tissue to be far more lax than an average person. Due to this, the connective tissue holding my joints together is too loose and my joints frequently dislocate. This causes chronic joint pain ..read more