My 13-year-old son Declan is non-speaking, autistic and uses an AAC device to communicate. We haven’t moved at all yet Declan is in seventh grade and has already attended twelve different schools. That is a lot of change for someone who doesn’t tolerate routine change well. We love our special education co-op but the lack of a physical school or local classmates takes a giant toll. I wish we had a regular school community and I had the support of parent peers. Overall, we are really isolated. It’s taken me years to make peace with it but we don’t do normal, everyday things like families with n ..read more

Yesterday, I went on a field trip to the Minnesota Zoo with my oldest son Cooper and his class. It was pretty amazing really. He is 13 and autistic and it’s a really big deal that his class goes on field trips because not all special education programs do. But it’s so good. It’s so good for the kids and the community and the businesses and the parents. Cooper and I walked together every second of the way. We held hands or he held onto my arm. He was never out of my sight. Let me tell you he did amazing. I can’t believe how far he has come in situations that used to be impossible. As ..read more

,When I think about that little newborn baby—the first one I birthed, the first true obsession of my life—I recall the haze of sleepless nights and the excitement of new life. Babies are so raw and new; they wholly need you. You carry them and everything they will one day become. The fears, the worries, the hope, the determination. He matters merely because he exists, and to exist is a miracle on its own. Looking at that tiny being, my expectations were simple: health and happiness. But that little baby, who challenged me in countless ways, also faced trials of his own. From the moment ..read more

My son, I wonder if you will always reach for my hand when we are walking. I wonder if you will always be precious and innocent. I wonder if you will always gasp at birds and at squirrels. I wonder if you will always point to airplanes. And wave to strangers. And bark when puppies walk by. I wonder if you will always run up to a mud puddle with such joy and excitement and then look back to get my attention before you jump in. I wonder if we will always dance and twirl and rest in the middle of tree covered paths. I wonder if you will always pick up handfuls of sand and watch the grains fall ..read more

It’s 64 degrees out today. In April. In Minnesota. The pool is set at 80 degrees. We opened it this weekend. Our second son Sawyer has had multiple friends over to play. They jump. They shoot hoops. They talk baseball and hockey and Fortnite and girls. Our third son Harbor doesn’t leave their side. Not even for a second. He is a shadow to these older boys. I listen. And read. And smile. And referee. And judge jumps. And Cooper, my oldest, he is right there with them. He is 13 years old. He doesn’t say much. He signs swim. And points. He stays in the pool the whole entire time with the other bo ..read more

Two years ago, before we understood all that we do now, we were making our way through a very difficult time with our daughter. She was self-harming, and as it is for all families supporting children who have this disposition, we were frantic to help. She was just plain as day, telling me her problem and the solution as though to say, “I am thirsty and am getting a juice box about it.” She said, “Mom, this is where I put the nail so that my bad brains could come out. I don’t want to be mean or mad anymore, so I am going to let it out.” We spent an overnight and the following morning talking a ..read more

I never thought I would have four kids. I’m not sure if I’ve ever shared that before. I thought two, maybe three. But four? It still surprises me sometimes. Four is loud. Four is chaotic. Four is wonderful. Four is fulfilling. A few days ago on Easter I woke up first. Which most definitely surprised me because as my two middles went to sleep last night I heard them plotting to wake up early to catch the Easter bunny. As I got the coffee going my third son came downstairs. Together we woke up Sawyer and the youngest. We hunted for baskets, hand-in-hand. It felt almost magical. One basket hid ..read more

I took two of my kids on a walk this morning. It’s our first real spring like day in Minnesota. Sawyer rode his bike and I pushed the little one in the stroller. Five minutes in, Sawyer’s bike tire popped. Like dramatically. Like in a cartoon. WHOOOSH the air blew out. His face fell. A popped tire was not in his plans. I told him that we would park his bike in the neighbor’s yard so we could get our walk in. As his mom, I knew his wiggles needed let out. And I needed to be out of my house for a few minutes. As we walked, he climbed on the stroller. In and out. Under and over. He also let me ..read more

Autism Spectrum Disorder became a constant companion in our life one April day a five years back. I think back to that day and realize both how naive and how unprepared I was for the journey ahead. There are a lot of things I would go back and tell myself on that day that I sat with tear-filled eyes not knowing which way was up. These are just a few I would tell myself or a new mama sitting in the dark with a fresh diagnosis… First, take a deep breath. It is going to be OKAY.  It will be okay…whatever your version of okay looks like. It may be filled with therapies and mountains to climb ..read more

When you don’t have a child with a disability, you don’t think too much about it. Until your life is touched by it, you think about it differently; it’s personal. Of course, everyone knows there are individuals with disabilities, but it’s not directly affecting your life. There is not much you can do anyway. That is where you are wrong. We need to stand and advocate for everyone, especially those who are vulnerable. March is Disability Awareness Month. I am proud to say in Massachusetts, the governor declared March Developmental and Intellectual Disability Month. This shines a light on these ..read more