Lifestyle Modifications……What Does That Mean?
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
3y ago
Yolanda, a pharmacist who has been diagnosed with MS and blogs at The Patient RPh(Pharmacist) has written this brilliant guest post: As pharmacists, we learn about medication and non-medication (non-pharm) treatment. Non-pharm treatments include the important but elusive category of “lifestyle modifications”. While I am in favor of non-pharm treatments, I cringe every time I hear one of my students say that are going to tell a patient to do “lifestyle modifications”. Why? I find that students think that lifestyle modifications are the same for every person, are easy to do, and that a patient w ..read more
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Endings and Beginnings
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
3y ago
The last 20 months have been the hardest and most painful in my life. Losing first my brother then my mum within 18 months, and with a global pandemic rearing its ugly head in between has been challenging on every single level. At times it felt as if my entire world had brutally shifted on its axis. Life changed beyond all recognition. I made the decision to come off all my MS symptom medication (I took advice from my wonderful neurologist, but decided to go cold turkey – I was in such an enormous amount of pain, what was a little more?) Just as I was thinking about reconnecting with the world ..read more
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My MS Story: Finding a Way Back to Me
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
3y ago
This is guest blog post by Jen DeTracey. She runs the wonderful blog, Women Thriving with MS  – well worth checking out! It’s been over 10 years since I was diagnosed with MS. Ironically, on the anniversary, I didn’t think about it. I realized a few days later it had passed unnoticed. This was a huge celebration for me. I realized MS is just a part of me, not who I am. I learned this many years ago while in therapy to deal head-on with my anger and grief. What showed up most for me was FEAR. At age 44, I was at the peak of my career as a business consultant when MS showed up for a curtain ..read more
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A Year of Eternity
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
3y ago
Grief is retracing the steps of this time last year. That year is almost over and then it will be another year, as that particular day ticks over. Utterly unfathomable in its ridiculousness. A whole year without them? It’s preposterous. That a person so vibrant, so full of life and so mindful and caring of others is no longer here is beyond reason. In amongst this year’s illnesses, birthday celebrations, small daily triumphs, even a pandemic, there is always grief. I would like to say it gets easier, and yes, the raw, visceral grief of losing a sibling lessens its grip, but it is pushed deeper ..read more
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The Teenager
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
3y ago
MS crashed into our lives in 2011, just as The Teenager was starting High School. Unusually for MS, it came without warning – just a huge, life-altering Big Bang over the course of a weekend when my entire body collapsed inside, my mind scattered in all directions and my very being imploded; I couldn’t walk, talk or function. For better or worse, my son was with me, all through the endless search for answers, the waiting, the eventual diagnosis, an employment tribunal, three courses of Alemtuzumab and their brutal after-effects, ongoing treatment and figuring his own way through life. It was a ..read more
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What I’ve Learned in Lockdown
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
4y ago
As we are slowly coming out of this strange time, have I learned anything? My initial reaction would be no, I’ve been too fearful, too worried and too anxious. However, I really want to stay positive, so here are the things I have enjoyed: You find out who your friends are This is so similar to MS – you really do. Those you thought would stick by haven’t and vice versa. I called a friend weeks ago for a catch up and am still waiting the return call. In the same way, I have had the joy of catching up with people I haven’t heard from for ages. Your Boss takes you shopping He sourced and told me ..read more
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Hunkering Down In Lockdown
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
4y ago
I was off work for a week during the dramatic escalation of Coronavirus here in the UK and had felt quite cocooned, my usual MS problems combined with a trapped nerve I was receiving treatment for having kept me at home. Going back to work was unreal: it was the same building site, luckily secluded with only one other person working, but everything was different. I looked around, remembering the Good Old Days when my main concern was picking up milk on the way home. It was utterly impossible to take in, that the world had changed so much and in such an unexpected way. Driving back through an e ..read more
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We’ll Do What We Do Best
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
4y ago
If there’s one thing I know about the MS community, is that when the chips are down, we all pull together. And never more so than now. If I’m honest, it’s strange to be doling out advice to normally-healthy people stuck at home, climbing the walls. Yup, I’m the one now doing the ‘sad face tilt’, murmuring gentle ‘hmm hmm’s’ and suggesting ways to keep engaged and less isolated. Except now, it’s all of us in the same boat, an entire country, a huge swathe of the world. It’s heartening to see a veritable outpouring of resources previously inaccessible to us – working and studying from home, cele ..read more
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Pandemics and Other MS Problems
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
4y ago
You’ve all seen the news. If you’re anything like me, you’ve been glued to it, waiting for specific advice for those of us who live with compromised immune systems. And just like me, you’re probably disappointed. Instead, thankfully, we have our own trusted sources to rely upon during this incredibly confusing time – MS Trust, MS Society and many others have been quick to keep us updated. If you are finding it difficult to get out and buy food, please don’t panic. If you can, ask friends and family and if not, there has been an amazing lift in community measures to make sure no one is left beh ..read more
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Self-Isolation? Just Ask An MSer
Stumbling in Flats . . . a funny old life with multiple sclerosis
by stumbling in flats
4y ago
Pre-MS, I could never imagine a day I did not scoop up my kid and take him out. The very idea of being stuck at home was absolute anathema. I collected cut-outs from newspapers, leaflets and magazines with a zealous streak, not wanting him to miss out on anything. Post-MS, it was a very different scenario; devoted rugby mums would collect him and bring him back brimming with mud, injuries and victories. My friend attended parents evenings and took copious notes on my behalf, which she then relayed to back to me. Those were dark days. When you can’t take your Teenager to the beach as you know y ..read more
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