Since before November 2022 there have been some issues going on with rising tumour markers. My oncologist and myself had been monitoring them. Then something happened, my oncologist went on leave for a year. We had talks before he left about possibilities of a treatment change or other options. It was something I really feared ..read more

End of the year summary for 2022 Introduction 2022 has been another very busy year as I have continued to work tirelessly to bring about improvements for breast cancer patients, especially secondary/metastatic breast cancer patients like myself. I have worked at national, regional and local levels, and with many stakeholders to make change happen. I ..read more

It’s been nearly two years since Jo Myatt, one of our friends and campaigners died of secondary (metastatic) breast cancer.  It’s shocking that in this time nearly another 23,000 women have died of this awful disease.  I wrote a piece for METUPUK in December 2020, just 2 years ago after she died. https://metupuk.org.uk/2020/12/remembering-jo-myatt-joannemyatt25-friend-advocate-and-supporter-of-metupuk-iamthe31/ Jo was ..read more

It’s the end of another year. Goodbye 2021 Hello 2022 What will you have in store this year? I hope that it is a non-eventful year. Living with metastatic breast cancer all we want is nothing happening.  No health issues, it would be good if everyone could have the same. I had to revise my ..read more

It’s nearly 2021 and I recently wrote about the trauma of what happened this year and posted it on facebook…   It’s been an utter shit year. Covid happened. Diagnosed with a brain met (ie secondary breast cancer in my brain) – targeted radiotherapy for it. Surgery to remove SBC lymph nodes under my left ..read more

  Seven years ago I had a portacath fitted. I want to share some information based on my own experience. This will hopefully help you make the right decisions, if you’re thinking about having this done. I decided I wanted a portacath, as it was getting increasingly stressful every time I had a cannula in ..read more

A long but very important post coming up – please read this. It’s nearly October and we all know what’s in store – #BreastCancerAwarenessMonth – a sea of pink. I’ve been asked a couple of times how to respond to the silly pink games, tutus and feather boas that you will see during October, and ..read more

I’m sure that there are many answers to how you dealt with lockdown and myself?  A few weeks ago I posted on my personal facebook account at how I loved lockdown because it was quiet and our family was together.  It felt like the world had stopped and took a breath with the beauty and ..read more

I wrote a blog back in 2014 “Pinktober it will turn you green” which stated the amount of people that decided to make a new year resolution of exercise and by the end of January the mad rush of people had died down to a dribble. Get fit! Diet! Healthy eating! Lose weight! New Year ..read more

Surgery In January 2018 I had a follow up appointment with my breast surgeon. This isn’t my original surgeon from North Manchester hospital.  I happened to miss 2 appointments possibly for a mammogram (maybe 4 years ago rescheduled them due to one on my daughters birthday and some other issue probably to do with chemo ..read more