New CF issues
The Salty Cyster
by
3y ago
CFRD...Cystic Fibrosis Related Diabetes. As we, with CF, age there are many complications we may never have dreamed about before.  As many are probably aware, CF patients are getting older...more than half of all CF patients are now over the age of 18.  Because of our malnutrition and breathing complications, our bodies tend to experience more issues as we age and we experience these issues at a younger age than a healthy individual.  It is wonderful to see us all becoming adults and living happy lives.  But with that we still have to worry about our health. I have recent ..read more
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Yarn Love, part 1
The Salty Cyster
by
3y ago
So I said a while back that I wanted to blog more about my life outside of CF, so this is my starting point. I have been doing a lot of knitting and crochet lately and I just find it hard to sit down and type out my thoughts.  I feel like I'd much rather be working with my yarn.  ;) But I've also been following a lot of yarn related blogs lately and I really like what I am seeing and would love to contribute to the yarn blog world.  So I thought maybe I'd "try" to alternate a crafty post with a health related post...or maybe focus more on my crafty things than my health issues ..read more
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Disney and an Update
The Salty Cyster
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3y ago
Holy Cow!  I can't believe that it's been half a year since I posted an update.  LOL.  I said I wanted to blog more, and then I wait six months...woopps. So as of last time, I was in fits of anxiety.  And was also having some health issues, lung wise.  I'm happy to say that those problems have resolved after several medication issues, changes, steroids, drug trials and a wonderful vacation!  It's very ironic because I was quite sick at the same time of year the year before.  Anxiety and lung issues, I mean.  October/November 2015 and 2016 I ended up on ..read more
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Changing Seasons
The Salty Cyster
by
3y ago
I'll preface this by saying, I have a lot to look forward to.  I can't put it all in writing yet, but in due time, you'll hear about it. But I am caught in this ball of anxiety lately. The thought of being stuck inside all winter consumes me, the thought of another like the one we had two years ago...is utterly intimidating.  Trust me, snow up to our first floor windows and several storms every week for at least a month.  The snow in my front yard was up to my shoulders.  I have said many times, I am not ready for that again...yet I love it when it's happening.  LOL ..read more
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Update/Goals for the blog
The Salty Cyster
by
3y ago
So apparently its been quite a while since I blogged.  Woops! I don't even know where to start if I am going to tell you how my life has been...It's been a whirlwind, that's for sure.  I was sick and in the ER twice back in May/June and I think that was the last time I wrote.  Fortunately, it was not a CF kind of sick, it was more of my endometriosis flaring up real bad. Unfortunately, I was in agonizing pain for quite some time, was unable to eat much and lost about 10 pounds.  I ended up in the hospital for 10 days total because they couldn't figure out what exactly was ..read more
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Help me find some patience
The Salty Cyster
by
3y ago
It's been a long time coming, and I am strangely at peace with where we are right now. Actually, thats a lie...this whole business SUCKS.  Every new pregnancy announcement is very close to setting off a whole fireworks of emotion from me.  It makes me incredibly angry that some people have it so damn easy.  Tomorrow is just one example of our long fertility journey.  It will hopefully be the last of the days of fertility testing before we learn what our treatment plan will be.  Two of the things our fertility specialist wanted was for us to do was meet with a genetic c ..read more
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Struggling Today
The Salty Cyster
by
3y ago
I didn't want for this blog (the whole thing, not just this post) to be all sad stuff, but to be honest, thats what its been.  I don't want people who read this to be judging that I am a sad and miserable person.  Because generally, I'm not.  I try to be positive even when I'm feeling down.  My life with Cystic Fibrosis has taught me that…life may shoot you down, but you gotta get back up and make good moments and memories.  But this struggle to conceive has been extremely difficult, more so than any physical pain I've endured over my lifetime.  Every time someone ..read more
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New Job
The Salty Cyster
by
3y ago
So far its going really well.  I started Monday in a supervisory role in a new office, same company.  Its actually the corporate offices and a call center.  My department is relatively small in the scheme of the whole building…but I really like being around others.  It gives me more people to kind of befriend than my prior office.  My old job had only 9-10 people and if you didn't get along with anyone there weren't really places to escape to.  We had a lunch room and that was it.  This new office has probably 30-40 people working at a given time.  N ..read more
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Not the way we planned
The Salty Cyster
by
3y ago
I don't want to say what happened yesterday hasn't made me upset, but on the whole, everything happens for a reason…I truly believe that statement. We were all geared up for our fertility appointment and miraculously we only left about 10-15 minutes later than we planned.  In all honesty…that 15 minutes, may be the reason we are still alive.  We had thought Friday traffic before a holiday and school vacation wouldn't be so bad and we made relatively good time to a certain point…then we were stopped.  Barely moving 5 miles an hour.  As I got angrier, traffic still didn't mo ..read more
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Emotions of Infertility
The Salty Cyster
by
3y ago
It's definitely coming down to the wire here.  It's been 3.5 years off birth control, 3.5 years of trying to conceive naturally and with treatments.  3.5 years of trying all the remedies and all the old wives tales.  3.5 years of watching friends and family become parents (some more than once). 3.5 years of emotional stress of trying to create a family of our own. 3.5 years of infertility. Our second opinion appointment is in just about a week and a half and my emotions are more mixed than ever.  Yes, we've been there before.  We've tried some of the treatments, we've ..read more
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