i feature in this booklet, if you would like to purchase free here is the link with other promotional stock to help promote organ donation https://www.nhsbtleaflets.co.uk/ViewArticle.html?sp=Sgivingthegiftofliveorgandonationbookolc284-702 ..read more

Hi all to whoever still looks at these posts or bothers to read anymore!  I know my blog is no way as interesting and intense as it used to be!  So I don’t know if I mentioned in my blog before my mum has been working at Harefield (my transplant hospital) at front reception!  Well she has loved it there and met some wonderful people and seen the other side to the amazing hospital that saved my life numerous times back in 2015!  But it hasn’t all been plane sailing and due to some troll and I know this is not nice of me to call someone that but that’s how I view this pers ..read more

So after my last blog although short and sweet (ish) I have had a lot of feedback from people agreeing with me on the subject of “keeping it real” as such.  Following on from the inspiring Natalie who took over Instagram the other day to show the incredible healthy way she is living and doing along side all her day to day treatment and struggles. We had a dear friend Kayleigh story today.  As I said In My blog the other day I wanted them  to show the rough side to cf and they certainly did today! And quite frankly it’s the harsh reality that I find or shall I say thought the c ..read more

So this year Friday the 22nd will be “wear yellow day” for raising awareness for the CF Trust. Do a yelfie! I will actually be at ascot all day but I have my yellow top ready for my morning pre ascot getting ready and to wear for awareness, I mean if I had planned it better I could have worn a yellow dress to ascot but just wasn’t organised enough!  I have been so interested In the Instagram for the trust they had a take over today which I found inspiring however without being negative I think it is a bit difficult for people who aren’t as healthy as her, I Remember pre transplant how ..read more

So CF week (Cystic Fibrosis) started today (Monday 18th June) and I feel the need to talk about it on my blog as this after all is part of my life and what my blog started off about!  So cf in a nutshell...  Cystic fibrosis (CF) is one of the UK's most common life-threatening inherited diseases. Cystic fibrosis is caused by a defective gene. As a result, the internal organs, especially the lungs and digestive system, become clogged with thick sticky mucus resulting in chronic infections and inflammation in the lungs and difficulty digesting food. Yeah I did copy ..read more

So I’m buzzing for this!  Yes I have jumped on the bandwagon but it’s working so fuck all of you judgemental people!  Yes I’ve started using Herbalife to loose weight and feel better! And I feel very positive after my first 5 days! I’ve lost almost 1kg and I’ve had take away curry’s with all the nann bread and rice included with extra sauce. So almost 1kg is good and I’m happy with that!  I’m so on it now though I need that thin sexy body back but with a few curves now to go with it! I’m trying to go to the gym more but feeling quite weak but still going! Trying to run but ..read more

So I’ve been on the hunt for a “proper job” as in workin more than one day a week!  It’s bloody hard! I’ve had a few interviews now and always been told I’m “liked” but don’t make the cut! It’s literally so hard to stay bloody positive when your not getting anywhere with it!  I have another interview tomorrow so again fingers crossed, I’ve got not experience, no qualifications no wonder no1 wants me!  I mean I have a personality- I think! But that only gets you so far aye!  I’m not signing on for job seekers or anything like that I’m just rolling with it! And going with t ..read more

Yes that’s right you read it properly, happy george is back and it’s taken a while and more drugs but I feel almost like myself lately! Which is happy, positive and full of life!  So my last blog was about my pre assessment the fundo op- still waiting for a date so no change there!  So one thing which set me back a bit was about 4 weeks ago after having the best hen weekend away with new friends, I found out that I would no longer be getting DLA/Pip - which means no more Car for me and my £300 a month.  I’ve had this since I was 9 years old and although I know my life is b ..read more

So today I visited Charing Cross Hospital ob my own for my ore op assessment for the fundo op I’m due to have soon.  Was a bit confused as to why I was attending Charing Cross as all of it has been done at st Marys before but I believe the Hospital are partners so all the same team.  It took FOREVER! so not use to how slow it all was! And I had to go through every inch of details with the nurse about my health, life, lungs etc she didn’t believe I knew all my drugs because I struggled to spell a few of them, even though she was googling the names.  I just let her do her think ..read more

I can’t believe I haven’t blogged since September last year!  I use to update this blog weekly how life changes when you have a transplant!  I always said I would be open and honest in my blogs.  But I’m suffering with depression badly these days, I think a lot of it is due to my weight and my body imagine which may sound vein but it can effect woman of all ages! I’ve spent my life being a size 2/4/6 and now I’m 8/10/12 it’s not normal for me and yes I hate how I look.  I constantly get comments like of your healthy now and you’d rather be like this than dead! These com ..read more