Help Me. Help You. Help Her.
Behind the Smile of a Cystic
by
3y ago
"My challenge? Cystic Fibrosis. My dream? To breathe freely with a new pair of lungs." - Kathryn Norris As most of know by now, I am a wellness advocate for, doTERRA essential oils and have loved being able to help other CFers with the, Breathe Respiratory Oil Blend. I want to help Cystics breathe a little easier.  Which, is why I've decided to do a fundraiser in hopes to help all CFers experience the feelings of open airways, calming a cough, and actually geting mucus up and out of your lungs when you use a diffuser. ?Always continue to use your nebulizer medications. ⚠Now ..read more
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Essential Oils and CF
Behind the Smile of a Cystic
by
3y ago
I've heard everything there is to hear about selling doTERRA oils and most of it, is a misunderstand of what they do! Think of it like this aromatherapy has been around for YEARS and so has homeopathic ways of aiding aliments. That's all it is!  ☡THEY DO NOT HEAL, CURE, TURN YOU IN A UNICORN, OR FIX anything. Always keep that in mind when thinking of essential oils. They can help ease, soothe, cool, and aid in a lot of different things, but they will never erase your health problems. Never, ever use them in replace of ANY prescribed medication. Only to help add to your medical treatments ..read more
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Body Image and CF
Behind the Smile of a Cystic
by
3y ago
Having C.F. can be really challenging for your self-esteem. Unfortunately, for us the characteristic of this disease can't be escaped!! Growing up being very thin and being picked on for it can be difficult. I can't count how many times I've been told to eat a cheeseburger or made fun of for being "anorexic" when I wasn't. Hell, I didn't even know what anorexia was the first time I was "mocked" for it. The worst part is people will never change and body image will always be a huge issue no matter who you are. When you start to notice the little things that start to bother you like, your rib ..read more
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CF and Forgetting Meds
Behind the Smile of a Cystic
by
3y ago
Every single day we wake and remember to breathe, because if we don't we die. Our meds and nebs should be just as easy to remember to take right? Wrong! Knowing we need to take medications and do breathing treatments while living with a terminal, lifelong, chronic disease is common sense, yes! However when life happens you tend to forget the simplest things. We are all guilty of forgetting to take our meds, do treatments, and sometimes even to eat. That goes for those of us who are sick and our caregivers. Life is hard! To manage said life while being sick or caring for someome else who is si ..read more
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5 Judgements of CF
Behind the Smile of a Cystic
by
3y ago
Going through life with an unpredictable disease such as CF, it forces you to develop thick skin! It's interesting to me when people find out that you are chronically ill they look at you in new way. The best is what people say to you and about you when they are healthy and think they "know" your disease. It's almost like people tend to believe what or how they think I should act about my life. Living with a debilitating, life long, terminal illness I've heard it all like; 1. "You're sick again? You said you were sick last week too. Very convenient!"      ? Cystic Fibrosis ..read more
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Healthy Foods and CF
Behind the Smile of a Cystic
by
3y ago
I asked a hand full of Cystic's what they felt was the hardest thing to manage both literally and financially and FOOD was the number one answer! I'm the first one to grab something covered in sugar or some deep fried goodness, but my husband and I have decided to start eating healthy. Now, for someone with CF that is extremely risky and tricky as we need salt, extra fat, protein, and sugar to keep us going. Not to mention the amount of calories needed for a Cystic to thrive and maintain what little weight we can gain, is roughly 4,500 a day. So, here are a few tips and pictures for meals th ..read more
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Insurance and CF
Behind the Smile of a Cystic
by
3y ago
All my life I've been a costly female and I don't mean, because I like diamonds and sushi. Since the day I was born my life has been racking up bills, insurance and Medicaid. Big Pharma has pretty much owned me! ?My parents really had no say in the matter if they wanted to see me live and thrive with Cystic Fibrosis. Luckily, I didn't start getting extreamly sick until I was older, but that didn't make anything any more or less expensive. With this I have to explain, I've only paid out of pocket no more than a $20.00 co-pay each month for my personal medications and maybe $10 for hospital vi ..read more
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Unsaid Resentment & CF
Behind the Smile of a Cystic
by
3y ago
?Please, understand this blog doesn't come from a dark place. I'm extreamly happy and so greatful to my health change and still being here, breathing. The people in my life are an absolute blessing. I'd be lost without their love!!!? With that said, lets get deep....I can't help but feel like maybe, if the beach wasn't my saving grace and I didn't make it, that I'd be less of a burden to everyone around. This disease is hell on me in so many different ways. It's also hell on Tyson, my parents, siblings, and friends. I started to see how complicated being connected to me was, many years ago ..read more
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Government Funding Vs. Planned Parenthood
Behind the Smile of a Cystic
by
3y ago
So, I've been trying to decide to post my opinion on here or not. As it really doesn't pertain to CF, but my personal opinion. Then I realized my personal opinion is why most of you follow me. So, here it goes. If, President Trump, I know here we go, decided to defund, Planned Parenthood it simply no longer has Government funding. THAT'S all! No federal funding will be going into Planned Parenthood, your funding however can! He isn't going to banish the organization from the planet. He isn't going to find the Elder Wand and magically, Planned Parenthood is gone! That's not how it works. For ..read more
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Hydration & CF
Behind the Smile of a Cystic
by
3y ago
We're always told to stay hydrated, but it's not always that easy when we get busy. We tend to forget the simplest things like drinking enough water or even to put on lotion for the day. ?When you have Cystic Fibrosis, it can be difficult to tell whether or not you are truly dehydrated or if you were just having an issue related to our sweat glands making us lose a lot of our salt. So, it is tricky to tell if we are in fact, dehydrated. ⚫Here a few ways to figure out if you're starting to get dehydrated and what you can do about it. The first signs are simple, when you are talking to someon ..read more
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