One Breath at a Time - Living with Cystic Fibrosis
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A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog is to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is.
One Breath at a Time - Living with Cystic Fibrosis
5y ago
I went to see Five Feet Apart Friday night. I have never been so nervous and excited to see a movie at the same time. I put a lot of pressure on the movie, because having light shed on cystic fibrosis is something that I have been wanting for a long time. Sadly, most of the time when it is mentioned in a TV show, it leaves me feeling disappointed. So the fact that a big Hollywood movie is focused solely on the disease is huge! So is the movie accurate? Does it really do justice to cystic fibrosis and what it is like living with it? Should people go see it? Will it raise awareness? Yes, yes, y ..read more
One Breath at a Time - Living with Cystic Fibrosis
5y ago
People keep asking me for my feelings about the new movie, Five Feet Apart, so I thought I would take some time to write down my thoughts. For those of you who don’t know, Five Feet Apart is a movie that features main characters who are living with cystic fibrosis. This is the first major Hollywood movie to really dive into life with CF at all. Now, the CF community is pretty divided on whether they are happy about the movie or not. I am so excited about it! This is a huge opportunity to raise awareness and money for CF! People who have never heard of cystic fibrosis are going to see this mov ..read more