Celebrating National Cerebral Palsy Awareness Month 2024
Cerebral Palsy Guide
by Cerebral Palsy Guide
3w ago
In honor of National Cerebral Palsy Awareness Month this March, Cerebral Palsy Guide wants to share big and small ways people can show their support and become an ally for people with disabilities. This initiative was started by a cerebral palsy advocacy group in 2006. Supporters, activists, and advocates celebrate by wearing the color green, using the #GoGreen4CP hashtag, and donating to organizations such as the Cerebral Palsy Foundation. Learn how you can get involved in supporting the cerebral palsy community this month. Learn more about cerebral palsy symptoms, diagnosis, treatment, and r ..read more
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Amie’s Story: Adoption and Cerebral Palsy
Cerebral Palsy Guide
by Amie Kroessig
2M ago
My name is Amie, and I am one of the 1 million Americans living with cerebral palsy, a neurological disability that affects mobility and other skills. I also happen to be one of the 5 million Americans who are adoptees. I would like to share my story with you and how my adoptive parents did everything they could to provide the tools I needed to achieve my dreams, no matter my abilities. How It Started In May of 1989, a young woman walked into an attorney’s office, having already made the difficult decision to provide a better home for the child she was expecting by making an adoption plan. The ..read more
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Holiday Travel Tips for Kids With Cerebral Palsy
Cerebral Palsy Guide
by Cerebral Palsy Guide
3M ago
Over 130 million people are expected to travel to visit loved ones this holiday season, but traveling can be stressful, especially for the parents of children with cerebral palsy. Careful planning can help things go smoothly, ensuring nothing your child needs is forgotten. Here are some tips to help you prepare for holiday travel for your child with disabilities. What to Pack in Your Child’s Travel Kit Travel to-do lists can help you remember your child’s important items. However, knowing where to start can be overwhelming and stressful. Give yourself enough time to make a list, and perhaps go ..read more
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CDC to Track Incidence of Cerebral Palsy in the U.S.
Cerebral Palsy Guide
by Cerebral Palsy Guide
4M ago
The Centers for Disease Control and Prevention (CDC) recently announced that it will restart tracking cerebral palsy (CP) cases in the United States. While the CDC has tracked the incidence of cerebral palsy since the 1980s, lack of funding prevented these efforts in recent years. The last published data was in 2010, and since then, many nations have reported decreased rates of CP incidence. However, the U.S. cannot report the same due to the gaps in knowledge and disparities in health care. With improved funding, the CDC can resume gathering data about the number of children who are diagnosed ..read more
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5 Halloween Tips for Children With Cerebral Palsy
Cerebral Palsy Guide
by Cerebral Palsy Guide
5M ago
Children with cerebral palsy (CP) or other disabilities may sometimes feel left out of Halloween activities. However, you can help your child join the Halloween fun with some planning. Whether they use a wheelchair or not, there are several ways to ensure your child has a happy and safe experience with friends, family, and their community. Here are five tips to help create a memorable holiday for your child, while keeping their safety and needs top of mind. 1. Put Together a Wheelchair Costume Wheelchair costumes make Halloween accessible for children with CP who rely on mobility aids and whee ..read more
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Amie’s Story: Working in Theatre With Cerebral Palsy
Cerebral Palsy Guide
by Cerebral Palsy Guide
8M ago
My name is Amie Kroessig from Atlanta, Georgia, and I was born with cerebral palsy. Cerebral palsy is a group of neurological disorders that affects motor and developmental skills. It’s estimated that 1 million people in the United States have cerebral palsy. Thankfully, I have a mild case, but it hasn’t come without its struggles. My parents taught me that despite my disability, I was still capable of achieving whatever I set my mind to. One of these dreams was to work in theatre — an industry that often feels inaccessible to many people — but with the help of resources and support, this drea ..read more
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5 Tips for Parents: What to Do After a Cerebral Palsy Diagnosis
Cerebral Palsy Guide
by Cerebral Palsy Guide
8M ago
A cerebral palsy (CP) diagnosis can feel overwhelming and emotional. Panic, fear, and anger may be common reactions, especially if your child’s disability was caused by medical negligence. How you as a parent navigate a new diagnosis can greatly benefit your child later on. For example, seeking counseling and community can help you and your child gain confidence despite their disability and help you feel more hopeful for the future. The most important thing to remember is you are not alone. Whether you need help exploring financial assistance or finding caregiver resources, we are here for you ..read more
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Remembering Cerebral Palsy Advocate Rick Hoyt
Cerebral Palsy Guide
by Cerebral Palsy Guide
9M ago
The cerebral palsy and Boston Marathon communities are mourning the loss of esteemed advocate and icon Rick Hoyt. Rick passed away at the age of 61 on May 22, 2023. The family lost his father, Dick Hoyt, in 2021. Rick and his father were a beloved disability advocate duo dedicated to pushing the limits. Together they participated in dozens of marathons and triathlons, working hard to change the way people view the sporting abilities of people with diagnoses such as cerebral palsy (CP). Learn more about Rick’s story and the legacy he leaves behind. Who Was Rick Hoyt? When he was born in 1962, R ..read more
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How Alex Roca Campillo Made History as a Marathon Runner With Cerebral Palsy
Cerebral Palsy Guide
by Cerebral Palsy Guide
11M ago
Alex Roca Campillo, a Spanish runner with cerebral palsy (CP), recently became the first person with a 76% disability to complete a marathon. He adds the Barcelona Marathon to a long list of sporting achievements, including five triathlons and six half marathons. Alex doesn’t plan on stopping there. After that history-making day in March 2023, Alex continues to inspire the world to think differently about disability and diversity. His philosophy is to think beyond limitations, believing everyone can achieve their dreams, whether in sports or daily life. “You set your own limits.” — Alex Roca ..read more
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Celebrating National Cerebral Palsy Awareness Month 2023
Cerebral Palsy Guide
by Cerebral Palsy Guide
1y ago
In honor of National Cerebral Palsy Awareness Month this March, Cerebral Palsy Guide wants to share big and small ways people can show their support and become an ally for people with disabilities. This initiative was started by a cerebral palsy advocacy group in 2006. Supporters, activists, and advocates celebrate by wearing the color green, using the #GoGreen4CP hashtag, and donating to organizations such as the Cerebral Palsy Foundation. Learn how you can get involved in supporting the cerebral palsy community this month. What Is National Cerebral Palsy Awareness Month? During the month of ..read more
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