To the makers of the movie Mimi
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2y ago
First of all, I would like to thank you for opening the dialogue about Down syndrome in our Indian society.  Thank you for showing that a child (in utero) with or without a disability deserves a chance to be born. Thank you for showing the varied reactions parents can have when receiving the diagnosis of Down syndrome for their unborn or just born child, even as honest as having talks of terminating the pregnancy. I am a mom to a baby boy Laksh, who turned 4 on the weekend of August 1st when we watched your movie on netflix. I was pleasantly surprised to learn of the plot of the movie ..read more
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Pumping is breastfeeding too
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by
3y ago
  The @WHO says that, “Mothers and babies form an inseparable biological and social unit; the health and nutrition of one group cannot be divorced from the health and nutrition of the other.” And yet somehow I had to justify the need to pump milk at work. Anyway, based on my extensive experience of pumping for a full 3 months this time around, :-) I have come up with 10 tips that moms like me could use. Please note these are tips that I have concluded based on my experience and may be different from what might work for you.  ?Invest in a good hands free pumping/nursing bra ..read more
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First day of school 2020
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3y ago
Yesterday was the Laksh’s first day of school. We had imagined the first day of school to be so different than what actually happened.  We imagined packing lunches and picking out outfits. We imagined taking a bus ride with his peers. We imagined  lots of hugs and tears. We imagined a group to 3 year olds playing and learning together. We imagined a super excited Laksh returning home after spending his very first day in school. Harry Wong rightly said, “The most important day of a person’s education is the first day of school, not Graduation Day.” We wanted everything to go perfe ..read more
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Post Partum depression
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3y ago
Don’t want to take anything away from the seriousness of what happened with Nima, but it has been weighing heavily on me. Writing this post has been very very difficult for me and I am not sure if i should ever share this but I’m trying to #breakthestigma4nima so please hear me out. This is a photo of me on 06/06/2020 seconds after Veer made his grand entry. I felt every emotion that I could possibly imagine, I felt happiness, relief, joy, anxiety, fear, excitement and so much more. I was happy because he was finally here and scared because he was finally here, in the middle of a glob ..read more
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Let's bust some myths for October is Down syndrome awareness month
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by
4y ago
Dear readers, October is Down syndrome awareness month and in honor of Laksh and other amazing people just like him, we are having a celebration on our Instagram page.  When Laksh was born, I did find myself leaning on Dr. Google to help me find some facts about Down syndrome. Being a physical therapist, I was aware of what Down syndrome is but I had never come across anyone in real life who had DS until Laksh. I was so shocked to see some not so accurate and honestly antiquated information on there that it worried me.  Some sites down right made DS look like a punishment for the child a ..read more
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Are we all truly created equal?
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4y ago
Dear readers, I saw part of a speech a fellow mama that inspired me to write this. As parents of kids with different needs that the general folks, we have to take this position of being an advocate. We have to shout the worth of our kids beause sometimes society writes them off based on a diagnosis that’s only a small part of who they are. Parents of kids with typical needs are congratulated on the birth of their children whereas a lot of us are shown sympathy. My family and I have always celebrated Laksh, even in those early days when we were unsure of how to navigate this journey we are p ..read more
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Love and Kindness are never wasted
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by
4y ago
Love and kindness are never wasted. They always make a difference.  They bless the one who receives them, and they bless you, the giver. - Barbara Se Angelis One of my biggest fear is will people be kind to Laksh?  Will people understand that just because he might need more time to understand or  learn something new, doesn’t mean he can’t do that ever.  I hope that people understand that he is curious about things and if given a chance,  a true chance he will flourish. I hope people see in him all the mischief that I can and  all the love that is clearly apparent. I hope that people see wh ..read more
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The magic created by his extra chromosome or because it’s him.
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4y ago
Dear readers, I understand that being a parent is a constant struggle between loving your child to death and wanting to pull off all your hair one by one, but what makes this journey worth all the frustration is this amazing child that calls you mom or dad. I am so lucky to have Laksh as my first born and I do not mean that because he has Down syndrome but because he is an amazing little boy.  He loves with all his heart and I understand that could be due to the magic created by his extra chromosome or just because it’s him. He laughs easily and makes others laugh with him, and I unders ..read more
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My dear son
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5y ago
My heart is always worried for my son and his well being. I know that he has a long road ahead and life can be hard some times but all we can do is make sure to raise a child that is confident and believes in himself/herself. I am writing this open letter to him so when he grows up, he can read this and hopefully understand how much he is loved and valued. And how much for an amazingly brilliant person he is. Please read below. My dear son, I feel like everything in life happens for a reason, and my son you have been the greatest gift that God has given me. I’m doing my best to raise you to ..read more
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Happy 2nd birthday to my lifeline
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5y ago
Oh where have the last two years gone? It  seems like it was yesterday when I was laying in the hospital bed waiting in eager anticipation of meeting you. This is your second year in our life my darling Laksh, but you already have succeeded to change our lives and make it so complete and happy. You are our lifetime happiness.  Baby, you are the main reason which makes your mom and dad smile and also in some way the world around you. We can’t resist your sweet charm and neither can the people that come across you. You my sweet angel are a total heart stealer. I love watching you grow ..read more
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