Research Highlights for 2019
Life As We Know It
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5y ago
Solve ME/CFS Initiative: ME/CFS RESEARCH: THE FIRST QUARTER OF 2019 IN REVIEW An interactive guide to the promising new discoveries of 2019 By Rochelle Joslyn (PhD) Edited by Allison Ramiller 2019 is off to a strong start for ME/CFS research! From the search for sensitive and specific biomarkers in neuroimaging and CPET testing, to ..read more
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Let's Build Our Power - #DisabilityVoteCA
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5y ago
Let's Build Our Power - #DisabilityVoteCA Are you an independent living center, disability organization, service provider, community group, activist, or artist collective? The Disability Organizing Network joins national REV UP to celebrate the nationwide effort to increase and promote the collective power of the Disability Vote! We invite YOU to join us!  The Disability ..read more
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Advances in Understanding CFS
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5y ago
Source: JAMA         Preprint Date:  July 5, 2019 URL: https://jamanetwork.com/journals/jama/fullarticle/2737854?resultClick=1 Advances in understanding the pathophysiology of Chronic Fatigue Syndrome ---------------------------------------------------------------- Anthony ..read more
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ME/CFS Primer available to purchase
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5y ago
The Young Persons' ME/CFS Primer* <https://www.frontiersin.org/articles/10.3389/fped.2017.00121/full> is now available for on-demand printing as a monograph, complete with index, from theBookPatch.com for $10.00 USD + shipping <https://app.thebookpatch.com/BookStore/myalgic-encephalomyelitischronic-fatigue-syndrome-diagnosis-and-management-in-young-people--a-primer ..read more
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Love and Chronic Fatigue Syndrome
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5y ago
ABC Australia: Cat O Dowd, a sex therapist who lives with #ChronicFatigueSyndrome, joins Nat to talk about navigating dating, relationships and sex around CFS/ME. <https://www.abc.net.au/radio/programs/the-hook-up-podcast/chronic-fatigue-syndrome-and-love/11218260> ..read more
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Life as you know it....
Life As We Know It
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5y ago
Prof Ron Davis, world renowned scientist, tells you why you should all be afraid of CFS/ME. It could happen to you. "Your life as you know it, will be over"... take notice. Share this post. We need donations to find a cause and treatments https://vimeo.com/327053612 ..read more
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Meta-Analysis Shows Blunted Heart Rate Contributes to Activity Intolerance in People with ME
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5y ago
<https://www.meaction.net/2019/03/23/analysis-shows-blunted-heart-rate-contributes-to-activity-intolerance-in-people-with-me/> Meta-Analysis Shows Blunted Heart Rate Contributes to Activity Intolerance in People with ME March 23, 2019 By #MEAction The Workwell Foundation issued the press release below about its meta-analysis of 20 years of ..read more
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"M.E. Patients and the Researchers that Silence Them"
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5y ago
"M.E. Patients and the Researchers that Silence Them" (March 19) http://bit.ly/2URlEYs i.e. https://medium.com/@lcelliott2/m-e-patients-and-the-researchers-that-silence-them-c2b81111ee0 Extract: Quite simply, what I, and patients like me want, is a commitment to biomedical research funding, an awareness among doctors that Graded Exercise Therapy ..read more
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