ME/CFS Inpatient Study Findings – BHC’s Statement
Bateman Horne Center
by Tahlia Ruschioni
1M ago
Since the recent release of the NIH intramural publication detailing findings from the ME/CFS Inpatient Study, there has been a whirlwind of impassioned commentary. While we harbor mixed sentiments about the paper, we’ve committed professionally to maintaining an open mind, clear perspective, and collaborative spirit with all stakeholders contributing to the field. Our nonprofit endeavors to… Source ..read more
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How to Be a Demanding Diplomat as a Severe ME/CFS Caregiver
Bateman Horne Center
by Angela Linford, Communication Director
1M ago
Galen Warden is the mother of an adult son with severe ME/CFS. Bateman Horne Center partnered with her to provide essential guidance on caring and advocating for individuals with ME/CFS. This blog post includes: Presentation Description and Time Stamps In this presentation, Galen discusses the importance of logistics for individuals with severe ME/CFS, how a medical proxy can streamline the… Source ..read more
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Jennifer Bell, APRN, FNB-BC, Medical Practitioner
Bateman Horne Center
by Callie Reed
3M ago
“Over the last 28 years, I have mostly worked in rural primary care settings in Maine and Hawaii. I never would have thought that my rural health care experience would be a perfect training ground for managing post-infectious fatigue syndromes. Rural medicine taught me to have strong assessment and management skills in all areas, as specialty practices were few and far between – sometimes on other… Source ..read more
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Long COVID Treatment Trial 
Bateman Horne Center
by Suzanne D. Vernon, PhD
3M ago
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID. The combination of these drugs has two specific mechanisms of action that could inhibit herpesvirus reactivation and keep these viruses in a latent state or… Source ..read more
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A Year of Successful Medical Education
Bateman Horne Center
by Tahlia Ruschioni
8M ago
Today we are marking the successful first year of the Medical Education Resource Center (MERC) at BHC, supported by Open Medicine Foundation with a message from our Education Director, Tahlia Ruschioni. I am often asked when we will know that our medical education has reached enough clinicians to make a difference for patients with ME/CFS, Long COVID, fibromyalgia and related conditions. Source ..read more
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Leaky Gut, Suppressed Immune Response, & PEM
Bateman Horne Center
by Suzanne D. Vernon, PhD
8M ago
I met Armin Alaedini in 2008 at a meeting in San Francisco that was about solutions for Lyme and other tick-borne diseases through cutting edge science. I was fascinated by his presentation on immunological findings in post-treatment Lyme disease and I approached him about collaborating on ME/CFS. At this time, I had just started as the scientific director at the CFIDS Association, now Solve... Source ..read more
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You & M.E.
Bateman Horne Center
by Bateman Horne Center
8M ago
You & M.E. Grief that remains a forever process. Revolving door, repetitious. The body I once took for granted. The endless energy I once had. Nothing good comes from resentment. Evaluating the symptoms present. They come and go, multisystem involvement. I feel like a prisoner to all of it. I used to just expect my ability. The ease of tasks and thinking critically. The way my mind worked... Source ..read more
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Caregiver Guidance
Bateman Horne Center
by Angela Linford, Communication Director
8M ago
This blog post covers the eleventh chapter of the ME/CFS Crash Survival Guide. The information provided can also apply to individuals with Long COVID and other multi-system chronic complex illnesses that have post-exertional malaise (PEM) symptoms. Click here to download the entire guidebook. When someone you care about experiences a crash, it can be scary and leave you feeling helpless. Source ..read more
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Brain Fog in ME/CFS and Long COVID
Bateman Horne Center
by Suzanne D. Vernon, PhD
9M ago
This week our paper about possible causes of brain fog in ME/CFS and Long COVID was published in Frontiers of Neuroscience. This study included a large group of ME/CFS patients, Long COVID patients, and matched healthy controls. We hypothesized that cognitive impairment characterized by slower reaction time was caused by blood pressure and heart rate disturbances of orthostatic intolerance. Source ..read more
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A Good Day…
Bateman Horne Center
by Bateman Horne Center
9M ago
-Margo This was submitted as part of the Reflections of ME/CFS and FM and Long COVID Awareness Day Virtual Event on May 9th, 2023. #MillionsMissing #MillionsMore #Hope4MECFS #Hope4FM #Hope4LongCOVID # Source ..read more
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