hey there wild world of the internet... i don't trust you at all because i have been burned too many times but when i'm feeling wild why not post a question? i have fibromyalgia and nueropathy...like multiple doctors, x rays, blood tests and stick a needle in my skin nerve testing. Does anyone else experience burts of pain like stabbing and throbbing but like bursts of electricity and just laying down? i have no real pain relief for any of this and its just a sexy part of my everyday life... seeking someone who understands submitted by /u/kittiez_n_tittiez [visit reddit] [comments ..read more

I am on intermittent FMLA at my job since Dec, when I was diagnosed. I WFH, but fibro has been getting slowly worse and the pain, fatigue & severe migraines have been hitting me hard - so I've been using it more. Taking the leave 1-3 days a week more recently. I have 240 hrs left I believe. I am worried about what to do when I run out. As I understand, FMLA can't be extended except in rare situations (which I don't meet). I know my job offers short term & long term disability, but before I inquire with them about it, I'd like to have a doctor on board who would agree to sign the forms ..read more

I’m so tired of living with fibromyalgia. It seems like the older I get the worse my symptoms get and I’ve tried so many things to try to make my life a little easier but nothing helps. I just want to have one day where I’m not in constant pain. One day where I’m not so fatigued that it feels impossible to function. I’m trying so hard to be a functioning member of society, I get up at 4am to go to work, I work in a warehouse that makes prescription lenses and what I do is pretty physical, standard warehouse type stuff. I’ve tried to look for jobs that are less hard on my body but I live on th ..read more

Sorry this is long! My first post here. I saw a rheumatologist for the first time ever on Tuesday after some deliberation with my primary and it did not go well but I sort of expected it not to because of the stories I've heard. In about January I started developing a rash on my face. It gets red, a bit puffy, very very hot (several degrees hotter than the rest of my face), and slightly tingly as if a mild sunburn. I took pictures and videos to show my primary. Before my appointment with my pcp I thought through various causes and many google searches trying to find the source such as allergi ..read more

UK based. So I put in my prescription early for a new batch of Venlaflaxin, but my Dr's needed a medication review and gave me an appointment for that 2 weeks later. Just had the review today and they want me to continue on venlaflaxin despite me saying it was becoming more and more difficult for chemists to order in and I'm feeling no improvements to my currently condition, if anything I'm getting worse mentally. I've been on Venlaflaxin for just over a year and have said multiple times I want to try a new medication, or something alongside it I've tried my chemist today and they've told me ..read more

I am symptomatic for fibro- brain fog, poor sleep, chronic fatigue- among a whole other myriad off issue and I visited a doctor a couple of years ago who prescribed me a medication for it. She told me there is no test for fibro but if the medicine works it’ll confirm a diagnosis. I didn’t take the prescription at the time and am still trying to pin down a cause of my complex chronic symptoms. One symptom I get is a burning sensation in my muscles akin to working out. I believe this is lactate build up but from what I understand researchers don’t know where “the burn” during exercise comes fro ..read more

I don't know if it's possible for non citizens to get assisted suicide in the countries that allow it but I'm currently researching that, the world has nothing to offer me or I it. I'm so sick of the constant pain and tiredness, I'm sick of needing help, of having to rely on other people, of losing my autonomy, of being a burden, of not being able to get a decent job, of not having friends or company or someone who could love me and possibly want to spend the rest of their life tethered to a gaping whirlpool of despair. I'm just not cut out for this anymore. This is not a life, or being alive ..read more

Newly diagnosed and trying to understand my symptoms. When I am laying down and trying to relax, I get an excruciating pain in my shins. It feels like the bone is breaking or shattering. That’s the only way to describe the pain. I don’t have shin splints and this doesn’t happen when I’m walking. Does this happen to anyone else? submitted by /u/RefrigeratorPretty51 [visit reddit] [comments ..read more

I’m F36 looking for new pants! I constantly wear pajamas, sweats, and with the heat it’s soccer shorts. With fibro and hEDS, I need things that are flexible and light weight. Jeans are practically a no-go. What are your go to outfits for flare ups?? Where do you find the best pants? I’m in need of ideas! submitted by /u/chzit1337 [visit reddit] [comments ..read more

Hello everyone! I am new to the group, I was diagnosed with Fibromyalgia yesterday. I am twenty-two years old and new to anything Fibromyalgia related. I am writing this post to ask everyone; has anyone tried sensory-deprivation (float tanks) or massages to help with the pain? If so, did they help? I am also open to any suggestions or advice you may have! Thank you so much for your help. submitted by /u/Calm-Sink-936 [visit reddit] [comments ..read more