Whats to come in 2019...
Hayden's Heart
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3y ago
HAPPY 2019!  Cheers to another year in supporting the CHD community!  Here's a quick look at what Hayden's Heart has in store for 2019: January - 5 families who have lost a heart warrior in 2018 will be randomly selected to be gifted a getaway through Hayden's Holiday. Deadline to apply is January 31st. CLICK HERE to register for a holiday.  February is CHD Awareness month! HEART FAMILIES - WE NEED YOU!! Please email info@haydensheart.org a short video clip or photo of your heart warrior LOVING LIFE! Stay tuned for something special happening in efforts to raise awareness for ..read more
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2018 Year in Review
Hayden's Heart
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3y ago
Rob and I want to take a moment to express our deepest gratitude to ALL of you who have supported our mission and efforts in supporting the Congenital Heart Defect community in honor and memory of our sweet Hayden. This past October we celebrated SIX years since founding his legacy and with each passing year we are again reminded of the impact his life has left on not only us – but on all of you as well. In 2018, we hosted our annual 5K for Hayden’s 6th Birthday, TWO summer Golf outings – one in Pennsylvania, and one in New Jersey with The Madison Rose Heart Project – and our ‘Heart of Go ..read more
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WOVEN 2018
Hayden's Heart
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3y ago
It has been a week since we came home from our first couples retreat – WOVEN – and I still don’t know if I have the proper words to express the impact it had on not only MY marriage, but of all of the couples that experienced it alongside us. I was, admittedly, nervous as the weekend approached – having never done this type of a retreat before I wasn’t sure it would be as impactful as our mom retreats have been. The bar was set high – and I didn’t know if we’d come close to reaching it at this retreat.  BUT – it wasn’t too far into the weekend that I realized that it was working ..read more
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Healing of the Heart Retreat - Fall 2018
Hayden's Heart
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3y ago
Last year, I was at lunch with Ady working on Hayden’s House of Healing - talking about the impact these retreats have, how many more people we will impact when we have a house, and how badly we need this space and this dream to become a reality. I was suddenly overcome with emotion and words came pouring out of my mouth. “What if we add a second ‘Healing of the Heart’ retreat next year and I lead it?” I was taken aback by my own words, but in that moment I just knew how right it felt. This past year of planning has been filled with so many emotions. I knew the impact this retreat had ..read more
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I remember...6 years ago
Hayden's Heart
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3y ago
I awoke with a heavy heart this morning... 6 years ago we buried you...I remember so much of that day. I remember waking up again in shock thinking I can’t believe this is really happening. I remember my neighbor coming over sitting on the couch with me crying so hard he couldn’t talk. I remember putting on the same black dress I had worn to my grandmothers funeral years before. I remember walking into the cold funeral home with photos of him everywhere - and still feeling like this must all be some big mistake - some awful nightmare. I remember taking Xanax and hoping that would numb me jus ..read more
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Acceptance
Hayden's Heart
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3y ago
There are said to be five stages of grief – denial, bargaining, anger, depression and acceptance. Over the past six years I have found myself in and out of the first four stages – often times overlapping a few at once. The first two – denial and bargaining – played a huge role in the first year or so after loosing Hayden; but after time, the shock of not waking up next to him faded. And with that progression, bargaining to get him back also declined. However, anger and depression have found their way back to the surface intermittently over the past few years. At times I could see them com ..read more
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Healing of the Heart - summer 2018
Hayden's Heart
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3y ago
When Sabrina and I hosted the first ever ‘Healing of the Heart’ retreat in the fall of 2015, I never in one million years would have thought it would do what it has for the now 100 bereaved heart angel mamas that have attended over the past four retreats. We went into this blindly, desperate to feel a connection with others whose hearts were shattered – but who knew this wasn’t the way the rest of our lives should be. Life would have to go on, and we’d need to find our tribe of people to make it through, and not just survive – but LIVE.   Learn all over how to love hard, laugh out lou ..read more
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Meet timothy
Hayden's Heart
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3y ago
Our 6th annual Pennsylvania Golf Outing is about 6 weeks away - Friday July 27th! We are honoring heart warrior Timothy Wooldridge and family from Bellevue, Pennsylvania. Please visit our website to register! Or email rebecca.perrotto@haydensheart.org to sponsor or support this event! Meet Timothy.... Timothy Wooldridge was diagnosed prenatally with a severe congenital heart defect called Hypoplastic Left Heart Syndrome. It was an incredibly scary time for our family. I was put on bed rest at 30 weeks because of my risks for pre-term labor and his heart defect made it more important than ev ..read more
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How many kids do you have?
Hayden's Heart
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3y ago
The most common small talk question I am asked as a mother is... ‘How many children do you have?’ Easy enough to answer, right? Not in my world... This question often haunts the bereaved mother in more ways than one can imagine. I remember the first time someone asked me that after Hayden died. I was photographing a family for their Christmas card and in walking from one spot to the next, the mother asked me how many kids I have. I stumbled – and in a blip, my thoughts ping-ponged – I instinctively wanted to answer ‘two’ – but figured the next question would be ‘how old are they’ and my ..read more
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Meet Rylan
Hayden's Heart
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3y ago
Meet Rylan... Our Heart Strong Heart Warrior! Rylan's journey began on December 2, 2016 when he was born at a perfect 6lbs 13oz. Shortly as he was born the nurse knew that something wasn't right. After a few hours they said that something was wrong with his heart and he was going to be going to Boston Children's Hospital. A few hours after being in Boston they told my husband and I that Rylan had Total Anomalous Venous Return, (TAPRV) aortic stenosis and an ASD which is a whole in the heart between the upper two chambers. At 6 days old Rylan had his first open heart which took 7 hours but it ..read more
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