TRISOMY TWENTY-ONEderful | Down Syndrome Child Blog
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This blog is a vault of thoughts and, of course, the daily adventures of life with Tessa and the rest of their family. Here you will read much about the life with Tessa and how her Down Syndome has made a big impact on all of them.
TRISOMY TWENTY-ONEderful | Down Syndrome Child Blog
4y ago
Seven years ago this month, 47 Strings: Tessa’s Special Code was released out into the world. I never imagined that a simple YouTube video would quickly turn into a hard copy children’s book.
And guess what friends? I have BIG news to share with you…
After seven years, five reprints and many reader requests, 47 Strings is finally available as an e-book! We are excited to have this option available for readers!
Over the years, 47 Strings has been shared in homes, schools, organizations, welcome baskets, clinics and libraries across the United States and in various countries around the world ..read more
TRISOMY TWENTY-ONEderful | Down Syndrome Child Blog
5y ago
Middle kids. Always drawing the short straw, am I right? This one feels it the most. My middle is stuck between an older sister who has several different appointments throughout the year and more demanding developmental needs, and a younger one-year-old brother who constantly keeps us one our toes.
Her independence makes her easily overlooked; often leaving her to take the backseat to her siblings. It’s the unfortunate role that sometimes comes with birth order. As cliche as all the middle child stuff is, she is a textbook case. Never one to play independently and always wanting us to impress ..read more
TRISOMY TWENTY-ONEderful | Down Syndrome Child Blog
5y ago
I can’t imagine a bigger thief than time. The fact that one year can pass by so quickly is both amazing and upsetting. At this time last year, I was preparing for our baby boy’s impending arrival. Swollen, grouchy and uncomfortable yet embracing those final weeks.
Man I miss that bump…sometimes.
Somehow I am currently preparing for his first birthday in a couple weeks while trying to figure out where the last twelve months have gone. So check in on me friends, because I am struggling at the thought of never having an infant of mine in the house again.
You would have thought that I mourned this ..read more
TRISOMY TWENTY-ONEderful | Down Syndrome Child Blog
5y ago
She sat on the floor for the last round of practice. It was only the second dance practice they had attended. I got within her line of sight and signed to Tessa to stand up.
She refused. “My side hurts too bad mom.” I knew better and I signed to her once more…stand up. She stomped her feet two times and exclaimed that she couldn’t do it; that she just couldn’t keep up. “Yes you can,” I reminded her.
When practice was over, she pouted all the way to the car. “I’m not good at dance mom. I did really bad.” No matter how many times I reassured her that she did great, she remained discouraged. Abou ..read more