Autism Is
Stay at Home Crazy
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1y ago
I am autistic. I was diagnosed late in life, but it made the past more comprehensible, how I was and am and how the world was and is with me. What is autism? Weird question, really. Autism is a diagnosis. A disorder. A condition. An explanation. A description. Experiencing autism is like experiencing depression or genius or dyslexia: different for everyone, but inseparable from the person. It isn't something you can tease out from everything else about a person. Is isn't like diabetes or arthritis or autoimmune disorders, where there is a fairly clear line between the person and the proble ..read more
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Autism travels (poorly) part one
Stay at Home Crazy
by
1y ago
We went on a trip to my niece's wedding this weekend. It was a short trip; we flew in on Friday, back on Sunday. It being report card and IPP time for the husband, we couldn't take a lot of vacation time. I had the usual anxiety attack while packing, but breathed through it, took my meds, and got it done. We had a friend stay at the house to keep the pets company. We were ready. Except, as it turned out, I was not. Hubs got off work, we headed for the airport. We parked in long term parking. We did not take a pic of where our car was, or make a written note of it. (This would bite us in the ..read more
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Runner
Stay at Home Crazy
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1y ago
The Kitten has upped her elopement game, and I can't run worth a damn. I have plantar fasciitis and am about as non-athletic as you can get. She has bolted into traffic when I release her car seat, when I have turned to hang up my keys before locking the deadbolt on the front door, and, memorably, out the gate, down the alley and up to ring a neighbour's doorbell before I caught up to her. Any lapse holding her hand or task that requires me to let go for even a second results in her bolting off with no awareness of personal safety, no response to my calling her name or saying stop! or chasing ..read more
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Functional schooling
Stay at Home Crazy
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1y ago
When my daughter was first diagnosed, it wasn't much of a surprise. She was 4, not talking, not playing with peers or adults, not toilet trained, repetitive actions and behaviours, PICA, elopement... Still, it hurt to know that both of our children were going to have similar struggles, require similar time, effort and (oh ye gods) more flippin' paperwork. We dealt with it, moved on, got her the placement in an early intervention preschool program. Her January birthday meant we could wait an extra year to start kindergarten, and we arranged for her to stay in her preschool setting for her "kin ..read more
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Decor by Crazy
Stay at Home Crazy
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1y ago
Watching interior decorating shows always makes me wonder what the designers would make of our little palace in the suburbs. We went with a theme of "easy to clean" and "not likely to break" with a colour palette of "doesn't show dirt". The furniture is classic "hand me downs from the parents" with Ikea accents, professionally distressed by pets and children. Window treatments in the "came with the house" style and flooring in "we can redo it when the kids are older". Family room decor is mainly "children's arts and crafts" with accents of "put it on a high shelf" and vintage heirloom &nb ..read more
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Weak and weary
Stay at Home Crazy
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1y ago
Rough week for America. A man who legitimizes rape culture, homophobia, misogyny, racism, sexism, violence and hatred has been elected to the presidency. So many Americans that I love are hurting. People wondering if their marriages will be valid tomorrow.  People wondering if their identities will be respected. People afraid that their religious affiliations will lead to loss of citizenship, freedom and safety. People who are disabled in some way are afraid that their basic needs as humans will not be met, that they will not be able to get appropriate health care, education, or housing ..read more
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Service (or not)
Stay at Home Crazy
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1y ago
Is it too much to ask that a service provider put my child before their convenience? Yesterday we finally had a meeting to discuss my daughter's services. They had been put on a 6 month "break" because her home aide was suddenly not working for them anymore. No explanation given, no transition, just a call that she was no longer working there, and that they had no on to replace her. Kitten spent weeks waiting by the door for her after school, crying, "My L---e. My L---e has disappeared!" At that point, we should have went looking for a new service provider. But then my dad got the news tha ..read more
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On awareness
Stay at Home Crazy
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1y ago
Last week at the bus stop, I talked to another mom as we stood there waiting for the first child to make it off the bus. That child is autistic, with what is clearly SPD and is always crying and throwing his backpack, noise cancelling headphones, and finally himself at his mom as he exits the bus. She is likely trying to break him of the habit of expecting her to carry him off the bus, and I feel for her. He is probably 60+ pounds and nearly 5 feet tall, and she is quite tiny. The mom I was chatting with looked slightly appalled as the usual routine crying and screaming took place. I noted th ..read more
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Social Worker's Month
Stay at Home Crazy
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1y ago
It is, I am told, Social Work Month. A lot of special needs parents and adults have had interactions with this group of overworked, underappreciated professionals. This is one of mine. My son was 4 when we started him in an early intervention program. At that time, he was non-verbal, had a lot of SIBs, was inclined to dump everything in the kitchen into large, disgusting piles, and he was a frequent fecal smearer. As I have mentioned before, all government funded therapies for early intervention are in-home. We had a few rough spots with our first service provider, although at the time I most ..read more
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Positive notes
Stay at Home Crazy
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1y ago
Looking over the past few weeks, I have been in a morass of depression and anxiety. My mother died the Monday before Christmas, triggering a massive low that I can't seem to shake. So, I have been trying to dig up some positive emotion to help me through. I have been griping a lot about people being ignorant, thoughtless and clueless about autism, and treating my kids (and me) like freaks or weak vessels. The details of those aren't important, and I need to stop dwelling on them. But for every incident of that sort, there is a balance of positive encounters with people who are more kind and g ..read more
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