It was a great honour to be invited to speak at the Childhood Cancer Conference 2023 last week. The very intense two-day conference, hosted by Children with Cancer UK, was the first held since the pandemic and my goodness, was it packed with passion.   I was happy to play a small part in a mighty conference, to have an opportunity to talk about Skye and some of the research Blue Skye Thinking have co-funded. Sharing the stage with two men I admire deeply – proactive problem solver and fellow bereaved parent John Rainsbury of Little Hero charity and Professor Steve Clifford from Newcastle ..read more

Many of you will know that Skye held onto his sense of humour in the face of suffering so horrifically from his brain tumour and treatment side effect. Last night, on the anniversary of his death, we watched some of the funniest and sweetest home videos of baby Skye and remembered the happy days pre cancer. We hope to bring joy to someone's day by watching his infectious giggle over an everyday household item ..read more

This is possibly the most important campaigning update that I have sent out in all my years working with Brain Tumour Research. It contains a call to action for every one of you who campaigns alongside us to improve options and outcomes for brain tumour patients through improved research funding. After this week’s launch of the APPG on Brain Tumours (APPGBT) inquiry report, we can now confirm that there will be a general debate on Brain Tumour Research Funding within the main chamber of the House of Commons on Thursday 9th March with MPs requested to be in the chamber by 14:00.  What a ch ..read more

We wish we had just one more chance to see your happy smile To laugh and celebrate with you just for a little while May the winds of heaven blow softly and whisper in your ear How much we love and miss you and wish that you were here Skye and some of his best buddies at his 4th Birthday Party - ignorant bliss and the absolute best of years ..read more

"When life seems hard, the courageous do not lie down and accept defeat; instead, they are all the more determined to struggle for a better future." Her Majesty The Queen Christmas Speech 2008 ..read more

   Southbourne 2022   Skye and Andrew 2018 Like millions of other parents this week, my boys posed for me by the front door, and I took the traditional ‘first day of a new school year’ photo. I experienced a fleeting pang as my dear first-born son, Skye was missing from the line up and would have been super excited to be heading off to secondary school (OMG am I THAT old?). These feelings of heartache cannot last long as a second later, we were all sprinting along the road, the wagon loaded with kit (although inevitably with missing items), leaking water bottles, wellies that ..read more

Happy Holidays and a BIG thank you to all our supporters this year. We have achieved a lot despite the challenging times for all charities. Do take a look around our new website when you get a moment https://www.blueskyethinking.org We wish you health and happiness for 2022 ..read more

It has been an absolute honour to have assisted Sacha on this wonderful resource to help break the barriers of such a taboo subject, yet one of life’s most important - how to have a good death. It is not necessarily a ‘best seller’ in number of copies sold (thank goodness), but for a family facing the subject matter, there will be no finer book to read. Sacha Langton-Gilks explains the challenges, planning and conversations that can be expected facing the death of a child from illness or a life-limiting condition. Practical advice on how to work with healthcare professionals, drawing up an Ad ..read more

You always said you wanted to go to Legoland when you were better. You said in your very mature way, that it was nicer to look forward to things rather than the thing itself. Maybe you were right, or maybe they were never quite as fun when you were feeling so poorly but I often wonder if we should have taken you and not waited. You wanted to keep the special day a goal to aim for and I will always respect you for that. It was with an incredibly heavy heart that I agreed to take your brothers and what better day to pick than your 13th birthday my darling boy. Flynn is so much like you and was ..read more

New Research Targeting High-Grade Childhood Brain Tumour Announced! YOU DID IT! Huge thanks to Oxfordshire for helping fund new research targeting high-grade childhood brain tumour. We are very proud to be co-funding this incredible feat in progressive science together with Little Hero and Children with Cancer UK Watch this news story on BBC SOUTH TODAY NEWS this evening at 6.30pm A more personalised and targeted treatment approach that Professor Clifford and his ground-breaking team of researchers are offering through INSTINCT-MB, elicits significant hope of progress for children of the futur ..read more