I found out my husband was cheating on me. Two days later my body felt like I was hit by a truck. A week later I couldn't get out of my bed because my legs felt like cement. My knees felt a shooting sharp pain I never felt before. A few days later almost all my joints felt like they had tight, painful, hot rubber bands around them. I developed what felt like the flu. Sore throat, congestion, fever. Viral/bacterial/fungal panels all negative. I wasn't actually sick. My hands couldn't lift my fork. They were painful and weak. The worst pain l'd ever felt all around my body. Muscle pain, felt al ..read more

Hi! I was diagnosed with mild SLE a few months ago. Even tho I have symptoms, back pain so bad I can’t bend down, fatigue, nausea/vomitting, diagnosed with rayunads since I was about 12 etc. I do not believe I have it. I feel almost repulsed when I say it (and I never tell anyone) because I feel like it’s a mistake. I have had issues since I was 10 years old and nobody could figure it out. My Ana is 180 so it’s positive idk if that a high one but. I for some reason feel like it’s a mistake? Like what if I’m experiencing normal fatigue and pain and it’s all in my head? My doctor is very very g ..read more

Was only diagnosed ~6 weeks ago, and am in the middle of the flare (horrible fatigue and joint pain for the most part, but some rashes and whatnot as well). Still sort of figuring this whole thing out, ya know? Unfortunately, I am also in perhaps the busiest season of my life: extremely busy at my full-time job, in a pivotal point of my career (I work in tech so not physical work, at least), scrambling to finish 2 university classes within the next few weeks, and having our condo renovated... I am already struggling and running on minimal sleep, lol. Welp, today we learned that my SIL's metas ..read more

Does anyone else have constant eyebags everyday no matter what??? Whether I get a good amount of sleep or no sleep I end up having eyebags no matter what. Does anyone know what helps to get rid of this issue? Or do more people have the same issue as well? submitted by /u/JKSJ4567 [visit reddit] [comments ..read more

For a bit of background: I was just diagnosed last week with SLE and prescribed Hydroxychloroquine 200mg daily. It took years of doctors and tests and vague diagnosis "you just have naturally low white blood cells", or depression, chronic fatigue all the way to "just try a Mediterranean diet". I got to the point where i'd be in tears almost daily because i just feel so tired, sore and unwell all the time and felt like this is just the way I have to live. I started seeing doctors in 2019 for various ailments and now I have been diagnosed with SLE it makes sense, but I am also so angry that so ..read more

My sister has lupus and I’m trying to get her a present that might help, are there any products you would recommend? submitted by /u/0xWilks [visit reddit] [comments ..read more

Hi, I've had lupus foot pain for as long as I've had lupus, but a couple of years ago, I decided I needed to be more active. I'd been in warm water therapy (I recommend it for EVERYONE with lupus) but had moved. So at our new place, I found a warm water pool and just piddled around in it 20 minutes, three times a week. I did not walk in the water, I just piddled around. After a couple of weeks, I had flaming plantar fasciitis! Things calmed down and I got off my feet ... though they never stopped being a problem. Did custom orthotics. Fast forward five years. My feet were still a problem, so ..read more

I’m looking for reasonable accommodations as a PharmTech who works on her feet for 9 hours a day. Sometimes I just sit in my car after work for 30 minutes to muster up enough energy to drive home. I don’t know what to even begin to ask for, I have nice shoes. I have a comfortable uniform. I am allowed to bring my own fan. We have super thin mats to stand on while we fill. I started eating lunch in my car to have a more comfortable and relaxing environment to decompress. I’ve bought pillows for my car, a little desk for my steering wheel, I always have new air fresheners. I keep all of my emer ..read more

This is kind of embarrassing to post, but does anyone get these small rashes on the side of their nose? It's painful and itchy but idk if it's lupus because it's not a sore or a butterfly rash. Please help?? submitted by /u/Firebxrn [visit reddit] [comments ..read more

I got a sore on my nose that I am assuming is due to my lupus about three weeks ago. I have never had one before. The "active sore" that was really painful is done but now there is this area that is basically eroded and it isn't getting any better. I almost think the eroded area seems worse. I did a short course of oral steroids that is now complete and have been using a topical steroid intermittently with Neosporin. Has anyone else dealt with this? Has anything helped heal it without scarring? At this rate it seems like it is going to create a notch in my nostril and I am horrified and embar ..read more